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CAH PULSE

CARES Foundation

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CAH Pulse takes us on a journey to educate and bring attention to the challenges and triumphs of individuals living with Congenital Adrenal Hyperplasia (CAH). Each month patients, family members, medical professionals, researchers and caregivers share their stories, experiences and advice living with this challenging condition. Our hope is to further connect and champion this incredible community. *This podcast was recorded under a SAG-AFTRA Collective Bargaining Agreement*
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Smokers Lounge Productions

Smokers Lounge Productions

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Become a Paid Subscriber: https://podcasters.spotify.com/pod/show/smokersloungeproductions/subscribe Here At Smokers lounge productions are providing a real and real funny home for all creative podcast content plus venturing into future projects. So come and listen to our flagship podcast Menthols Entertainment Hour along side with The Creepside plus our new up and going podcast The Slab!! Please support us with our NEW MERCH LINE https://mr-menthols-merch.myspreadshop.com/
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In this limited podcast series, we’ve brought together a series of conversations with experts from medical science to finance to help demystify investing in biotech, medtech and digital health (also known as the life sciences). This podcast has been brought to you by Life Sciences WA (Western Australia’s Life Sciences Industry Association) in collaboration with Talking HealthTech. It has been possible with funding support from the West Australian government through the New Industries Fund an ...
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In this gripping episode Dina and Stephanie tackle a most important and controversial topic, putting an end to the dangerous stigma which far too many children (both boys and girls), parents and adults living with CAH encounter, causing adverse effects on their lives. This episode is a crusade to make a difference to the lives of so many who live i…
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In the mid 1960's, Tim was diagnosed with CAH just weeks after he was born. His CAH simply didn’t set off many alarms with his medical team, nor his parents. As a result, he seemed to breeze through time with little challenges and even went 50 years without a single adrenal crisis! However, Tim had learned some difficult news at the age of 30, than…
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In this masterfully eye-opening episode, Stephanie and Dina pick the brilliant mind of CARES Foundation's Medical Director, and Professor & Pediatric Endocrinologist at the NY Presbyterian Weill Cornell Medical Center, Dr Karen Su. Dr. Su helps to clear up the confusion over "stress dosing" an adult or a child living with CAH. Of great importance t…
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Is ten-year-old Raelie unphased by her CAH? Find out in this important episode of CAH Pulse where Stephanie and Dina speak with Amanda and her strong, brave and laid back 5th grade daughter, Raelie. This insightful mother daughter duo gives us an up-close view through the window of their daily lives navigating and troubleshooting life with this rar…
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In another compelling episode, Dina and Stephanie introduce us to Abby, a mom of two small boys, one of which is her “salt waster”. Little Nash is only seven months old but he is already doing amazing things like swallowing medication in pill form and being the happiest joyful baby Abby could have hoped for. However, not everything with baby Nash i…
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In this memorable episode, Ryan, who has seemed to manage his classic salt wasting CAH head-on with an organized, matter of fact approach, has been faced with new challenges to consider now that he is in his 30's. Ryan's mom, Heidi, knew in his first 2 weeks of life that something was just not right with her baby and thanks to her intuition and dil…
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Welcome to the Creepside. Listen and be disturbed by the first story of the second book "the creepside part II" written by DJ of the Smokers Lounge Productions. This story swells with a full cast of Michael black , his wife ASHER (thank you again) and lets not forget in his second appearance NICK with be the voice of the devil himself. so please si…
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In this episode of CAH Pulse, Stephanie and Dina speak with Lydia who was diagnosed with classic CAH at birth and although she received relatively good medical care from the start, she had little understanding about her condition. As a young adult, Lydia reveals that she foolishly decided to test the importance of taking her medication by eliminati…
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