Best Cf Community Podcasts (2025)

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Intimate Partner Violence & Cystic Fibrosis — Brooke Jones PhD(c), LCSW & an Adult with CF (Video) 29:06

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19h ago29:06

29:06

In a 2023 study across five US CF centers, 33% of women with cystic fibrosis reported experiencing intimate partner violence (IPV) in their lifetime. This IPV awareness month, CF social worker Brooke Jones, PhD(c), LCSW, and an adult with CF discuss the impact of chronic illness on romantic relationships, the increased risk of IPV among people with…

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Intimate Partner Violence & Cystic Fibrosis — Brooke Jones PhD(c), LCSW & an Adult with CF (Audio) 6:21

19h ago6:21

6:21

In a 2023 study across five US CF centers, 33% of women with cystic fibrosis reported experiencing intimate partner violence (IPV) in their lifetime. This IPV awareness month, CF social worker Brooke Jones, PhD(c), LCSW, and an adult with CF discuss the impact of chronic illness on romantic relationships, the increased risk of IPV among people with…

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Sweat Chloride: More Than Just a Number with Dr. Patrick Sosnay 17:47

3d ago17:47

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If you’ve ever been part of the cystic fibrosis community, you’ve probably heard of the sweat chloride test, maybe you’ve even had one yourself. But what does that test really measure, and why does it still matter in the age of CF modulators? Laura talks with Dr. Patrick Sosnay, Vice President and Head of CF Development at Vertex Pharmaceuticals. B…

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Ep 45: Remi Returns! How She Raised £7K to Buy Power-Assisted Wheels 29:00

6d ago29:00

29:00

Send us a text We welcome back friend of the show, Remi! She tells us all about the Be:Loved night, we catch up on how everyone’s doing, and we hear Carol’s Talking Tale. Remi also shares her struggle to get power-assisted wheels — proving once again that if you want something done properly, you’ve sometimes you’ve got to do it yourself! You can fi…

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The Power of Speaking Out about CF with Peter Proimos 43:11

10d ago43:11

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When Pete Proimos decided to share his cystic fibrosis story at 40, after decades of silence , it marked a turning point. That decision, guided by his philosophy “Out at 40,” sparked a movement built on honesty, empathy, and empowerment. Today, as CEO of the Filotimo Foundation, Pete is redefining what it means to thrive with an invisible illness a…

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The Heart Behind Liam’s Mission: A Mother-Son Journey of Advocacy, Art & Resilience 31:08

17d ago31:08

31:08

Turning Diagnosis into Purpose: Deana and Liam’s Mission When Liam was diagnosed with cystic fibrosis (10 years ago) at just three weeks old, Deana’s world shifted overnight. What began as one mother’s fight for her child has grown into a movement empowering families, educators, and kids facing chronic illness, all through courage, creativity, and …

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Can Vibe Coding Unlock the True 10X Developer (and Enterprise ROI)? | Cloud Foundry Weekly #73 1:26:33

19d ago1:26:33

1:26:33

This week on Cloud Foundry Weekly, we’re joined by Keith Lee for an exciting deep dive into the future of AI-powered development. We’ll be running live virtual vibe coding agents to stress-test AI services deployed on the Tanzu Platform Cloud Foundry environment. Expect real-time results, insights, and maybe a few surprises as we push the platform …

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CF Day EU 2025 Preview & CFF Updates | Cloud Foundry Weekly #72 32:35

19d ago32:35

32:35

Ram Iyengar and Chris Clark will join the show to give a preview of CF Day EU 2025 and share the latest news and updates in the Cloud Foundry ecosystem!By Nick Kuhn and Nicky Pike

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Ollama vs. vLLM: Performance Showdown | Cloud Foundry Weekly #71 1:02:24

19d ago1:02:24

1:02:24

Keith Lee will be joining the show this week to really deep dive into the performance differences between Ollama and vLLM. Especially when running them in our favorite Cloud Foundry distribution, Tanzu Platform.By Nick Kuhn and Nicky Pike

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Ep 44: We Meet the Artist, Flo Perry: Finding Joy in Art and Teaching 29:00

20d ago29:00

29:00

Send us a text In this episode, we chat with the incredible Flo Perry — a fine artist who found her way to painting via an unusual path: chemistry! Flo shares her artistic influences, her inspiring career change, and how she’s discovered happiness and balance through both painting and teaching, including her work with Community Focus. We’re truly l…

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Vaccines for the Cystic Fibrosis Patient — Richard Moss, MD (Video) 47:53

22d ago47:53

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People living with cystic fibrosis face unique health challenges, especially when it comes to respiratory infections. In this podcast, Dr. Richard Moss provides data demonstrating which populations are most at risk of adverse health complications post-infection, and explores why vaccines for the flu, COVID-19, and RSV are essential tools for protec…

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Vaccines for the Cystic Fibrosis Patient — Richard Moss, MD (Audio) 47:53

22d ago47:53

47:53

People living with cystic fibrosis face unique health challenges, especially when it comes to respiratory infections. In this podcast, Dr. Richard Moss provides data demonstrating which populations are most at risk of adverse health complications post-infection, and explores why vaccines for the flu, COVID-19, and RSV are essential tools for protec…

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Heather Ashle, a CF warrior whose love of fantasy is her gift to others 36:14

24d ago36:14

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I had the joy of meeting Heather Ashle in person at a Family Night hosted by Children’s Hospital of Michigan a couple months ago. Her energy lit up the room as she spoke—honestly, nervously, and beautifully, about what it means to live with cystic fibrosis (CF). It was her first time speaking at a CF event, and you could feel how much it meant to h…

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Gut Microbiome & Cystic Fibrosis — Emily Yelencich, MS, RD (Video) 33:32

29d ago33:32

33:32

Many people with cystic fibrosis report gastrointestinal discomfort as a daily challenge and barrier to optimal quality of life. In this podcast, Emily Yelencich, MS, RD, provides an overview of the key differences within the microbiome of people with CF compared to the general population, and how those differences result in increased difficulties …

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Gut Microbiome & Cystic Fibrosis — Emily Yelencich, MS, RD (Audio) 33:32

29d ago33:32

33:32

Many people with cystic fibrosis report gastrointestinal discomfort as a daily challenge and barrier to optimal quality of life. In this podcast, Emily Yelencich, MS, RD, provides an overview of the key differences within the microbiome of people with CF compared to the general population, and how those differences result in increased difficulties …

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Sick Chick Strong: The Story of Jennifer Dunlea 55:06

1M ago55:06

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The unstoppable Jennifer Dunlea is an advocate, a fighter, and an all-around powerhouse. Born with Cystic Fibrosis, Jen has faced more medical battles than most people do in a lifetime, including surviving a rare cancer at just 23 years old. She’s a two-time double lung transplant recipient, living with diabetes and gastroparesis, and still somehow…

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Ep 43: The Return of the CF Choir! What Music Means to Us 29:00

1M ago29:00

29:00

Send us a text In today's episode, we are thrilled to be back with the CF choir, guided by our singing teacher Sarah. We'll be exploring some brilliant tunes, such as Sunshine on My Shoulders and Wake Me Up Before You Go-Go! while learning vocal techniques to help develop and support our voices. We also chat with some of our singers to discover why…

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Resistant Infections in Cystic Fibrosis — Ali Al Safi, MD (Video) 45:43

1M ago45:43

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People with cystic fibrosis face an increased risk of developing infections, which can lead to severe adverse health impacts. In this podcast, Dr. Ali Al Safi provides an overview of common CF-specific pathogens and their clinical implications, discusses how resistant infections develop, and provides insight into current evidence for optimal durati…

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Resistant Infections in Cystic Fibrosis — Ali Al Safi, MD (Audio) 45:43

1M ago45:43

45:43

People with cystic fibrosis face an increased risk of developing infections, which can lead to severe adverse health impacts. In this podcast, Dr. Ali Al Safi provides an overview of common CF-specific pathogens and their clinical implications, discusses how resistant infections develop, and provides insight into current evidence for optimal durati…

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Bacteriophages in Cystic Fibrosis Lung Infections — Paul Bollyky, MD, PhD (Video) 1:03:34

1M ago1:03:34

1:03:34

Advancements in CF care have led to increased quality and length of life for many people with CF, yet chronic lung infections remain a persistent challenge for many. In this podcast, Paul Bollyky, MD, PhD, explains what bacteriophages are, how they are being used to treat certain infections faced by people with CF, and what the future of research f…

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Bacteriophages in Cystic Fibrosis Lung Infections — Paul Bollyky, MD, PhD (Audio) 1:03:34

1M ago1:03:34

1:03:34

Advancements in CF care have led to increased quality and length of life for many people with CF, yet chronic lung infections remain a persistent challenge for many. In this podcast, Paul Bollyky, MD, PhD, explains what bacteriophages are, how they are being used to treat certain infections faced by people with CF, and what the future of research f…

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Deploy GPT-OSS in your datacenter: Cloud Foundry Weekly: Ep 70 1:04:49

1M ago1:04:49

1:04:49

Join the show today to learn tips and tricks on how you can run the latest open weights model from OpenAI "GPT-OSS" in your own Datacenter, HomeLab, or Enterprise.By Nick Kuhn and Nicky Pike

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Tales from Production, Debugging LLMs: Cloud Foundry Weekly: Ep 69 1:45:10

1M ago1:45:10

1:45:10

Cote will join the show this week to talk about how Cloud Foundry Platform Engineers can adapt to the new challenge of managing and maintaining the next generation of AI-powered applications. We will pull from real-life examples from our Tanzu Platform customer base.By Nick Kuhn and Nicky Pike

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From Patient to Powerhouse: Leslie Baldwin's story 33:04

1M ago33:04

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The challenges and triumphs of living with a rare disease. Leslie Baldwin shares her personal journey with Common Variable Immune Deficiency and Ehlers-Danlos Syndrome. You'll hear what fueled her passion for advocacy and the creation of Michigan Rare (MI-RARE). Together, they discuss the power of community, the importance of patient empowerment, a…

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Cystic Fibrosis, Body Image & Eating Disorders (Video) 30:06

1M ago30:06

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People with cystic fibrosis may face an increased risk of developing eating disorders and body image challenges. Factors such as the burden of eating, pancreatic insufficiency, the impact of medications, and exercise disturbances have all been documented as contributing concerns for individuals living with CF. In this podcast, individuals with CF—D…

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Miss America raising hope and awareness for CF 36:12

2M ago36:12

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Miss America 2025 Abbie Stockard: A Champion for Kids, Health, and Cystic Fibrosis Abbie Stockard, Miss America 2025, joins us to share her incredible journey, from Auburn University nursing student and Tiger Paws dancer to national advocate and role model. At just 22, Abbie has earned over $89,000 in scholarships through the Miss America Opportuni…

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Ep 42: We Meet Hasel, an Artist With Asperger's & Discuss How Opening Up Makes Us Feel 29:00

2M ago29:00

29:00

Send us a text In today’s episode, we interview the incredible artist Hasel, who began creating art during lockdown and now produces a new piece almost every day. She opens up about living with Asperger’s and shares how painting and drawing have boosted her confidence and helped her express herself more clearly. We are treated to another poem by Ca…

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CF Bridge of Hope: A Conversation with Dr. Golnar Raissi (Video) 19:04

2M ago19:04

19:04

In this podcast, Dr. Golnar Raissi, co-founder of the nonprofit CF Bridge of Hope, describes how the program pursues its mission to improve the health of individuals with cystic fibrosis and extend the same treatments that are available in the United States to those who live in resource-limited areas of the world. The program brings children with C…

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CF Bridge of Hope: A Conversation with Dr. Golnar Raissi (Audio) 18:59

2M ago18:59

18:59

In this podcast, Dr. Golnar Raissi, co-founder of the nonprofit CF Bridge of Hope, describes how the program pursues its mission to improve the health of individuals with cystic fibrosis and extend the same treatments that are available in the United States to those who live in resource-limited areas of the world. The program brings children with C…

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MRI Fingerprinting: Revolutionizing Care for Rare / Dr. Chris Flask 36:28

2M ago36:28

36:28

What if a scan could do more than show you a picture, what if it could tell you a story about what’s happening inside a child’s body, in real time? That’s exactly what Dr. Chris Flask is working to make possible. Dr. Flask is a Professor of Radiology, Biomedical Engineering, and Pediatrics at Case Western Reserve University and University Hospitals…

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Securing Your MCP Servers on Tanzu Platform: Cloud Foundry Weekly Ep: 68 1:02:01

2M ago1:02:01

1:02:01

Mark Fynes and Corby Page join the show this week to deep-dive on their work around Securing MCP Server endpoints. Learn how you can use Tanzu Platform to serve as a platform to host and secure your MCP servers.By Nick Kuhn and Nicky Pike

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JupyterLab & LangChain on Tanzu Platform: Cloud Foundry Weekly: Ep 67 1:04:35

2M ago1:04:35

1:04:35

Kirti Apte and Yannick Levedar join the show this week to explore running JupyterLab & Langchain on Tanzu Platform and Cloud Foundry! Repos used in the show: cf-jupterlab-uv: https://github.com/yannicklevederpvtl/cf-jupyterlab-uv code examples: https://github.com/kirtiapte/cf-jupyterlab-samples/tree/main…

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Morning Coffee & Security Review: Cloud Foundry Weekly: Ep 66 1:15:15

2M ago1:15:15

1:15:15

V Körbes and DMZ join the show in this special early edition episode to discuss updates on the security landscape, Tanzu Platform, and Cloud Foundry!By Nick Kuhn and Nicky Pike

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Tanzu Hub 10.2 Deep Dive: Cloud Foundry Weekly: Ep 65 1:16:56

2M ago1:16:56

1:16:56

Continuing our coverage on Tanzu Platform 10.2 - Ray Belleville will join the show this week to deep dive into the Tanzu Hub! Don't miss this episode to learn about how Tanzu Hub can help you manage your Cloud Foundry foundationsBy Nick Kuhn and Nicky Pike

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Analyze Documents with Multilingual RAG: Cloud Foundry Weekly: Ep 64 42:36

2M ago42:36

42:36

Oded Shopen is our special guest this week! We will delve into his work, utilizing LLMs to perform multilingual RAG with the Tanzu Platform. This episode will provide an excellent primer on how to build applications on Cloud Foundry that can expand traditional RAG use cases across multiple languages. Oded's App Repo: https://github.com/odedia/sprin…

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Cline + Qwen3 = Vibe Coding MAGIC? Cloud Foundry Weekly: Ep 63 1:00:46

2M ago1:00:46

1:00:46

Join us live as we attempt to vibe code an app live with the power of Cline, LLMs powered by the Tanzu Platform. Hopefully, we can get an app coded and cf pushed to the platform in a matter of minutes!By Nick Kuhn and Nicky Pike

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Tanzu Platform 10.2 Part Deux: Cloud Foundry Weekly: Ep 62 42:31

2M ago42:31

42:31

FYI - We had A LOT of technical difficulties on this one with Streamyard! Did my best cleaning up the audio on the podcast version posted here, but bear with us on this one :) Darin Zook joins the show this week to continue our coverage of the Tanzu Platform 10.2 release!By Nick Kuhn and Nicky Pike

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Singing, Acting and Advocacy: It's in Julia Rae's DNA! 39:44

2M ago39:44

39:44

“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia Rae From the moment Julia Rae could speak, she was singing, and from the moment she could dream, she was already imagining a bigger stage. As her mother fondly recalls, at just two years old, Julia was watching Barney on TV and asked, “How do I get in …

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"Heaven's Perspective" :: Jennifer Cedeño 47:24

2M ago47:24

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This teaching is part of our August 2025 series, “Time to Lead." All year we will be examining our lives through the lens of God’s Word as we focus on different areas of the Word for 2025: Transformation: Living in the Fullness that God Intended. This episode was recorded on August 10, 2025, during our 11:00am worship service. Today’s speaker: Jenn…

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Nontuberculous mycobacteria (NTM) & Cystic Fibrosis - Amy Leitman, JD (Video) 12:14

3M ago12:14

12:14

Nontuberculous mycobacteria (NTM) infection prevalence has increased among those with cystic fibrosis (CF), impacting 1 out of 10 people with CF. In this podcast, Amy Leitman, JD, shares what nontuberculous mycobacterial (NTM) lung disease is, and why its resistance to many treatments poses serious risks to those living with cystic fibrosis. Amy is…

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Nontuberculous mycobacteria (NTM) & Cystic Fibrosis - Amy Leitman, JD (Audio) 12:14

3M ago12:14

12:14

Nontuberculous mycobacteria (NTM) infection prevalence has increased among those with cystic fibrosis (CF), impacting 1 out of 10 people with CF. In this podcast, Amy Leitman, JD, shares what nontuberculous mycobacterial (NTM) lung disease is, and why its resistance to many treatments poses serious risks to those living with cystic fibrosis. Amy is…

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Sophie Holmes: 36 marathons in 36 days 36:59

3M ago36:59

36:59

Never Just Surviving: Sophie Holmes on Running 36 Marathons with Cystic Fibrosis Despite a schedule packed with training, advocacy, and breaking world records, Sophie Holmes of the U.K. always makes time to share her story, and we’re so grateful she did. Diagnosed with cystic fibrosis at just four months old, Sophie was told she might not live past…

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"Where Are We Now?" :: Carlos Cedeño 1:08:55

3M ago1:08:55

1:08:55

This teaching is part of our August 2025 series, “Time to Lead.” All year we will be examining our lives through the lens of God’s Word as we focus on different areas of the Word for 2025: Transformation: Living in the Fullness that God Intended. This episode was recorded on August 03, 2025, during our 11:00am worship service. Today’s speaker: Carl…

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"Called to Build" :: Elliott Johnson 51:28

3M ago51:28

51:28

We are stronger together when we are united. We can accomplish God's purpose when we are united. We can be the church when we are united. All year we will be examining our lives through the lens of God’s Word as we focus on different areas of the Word for 2025: Transformation: Living in the Fullness that God Intended. This episode was recorded on J…

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Advocacy in Action: From the Front Lines 52:28

3M ago52:28

52:28

“It’s an honor to be an advocate,” says Laura Bonnell, founder of The Bonnell Foundation. “We are the government—people are. If we don’t fight for fair laws that help the people they’re meant to serve, who will?” In this episode, Laura is joined by five passionate advocates—some seasoned, some new—who recently traveled to Washington, DC, to meet wi…

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Ep 41: Meet Maria, Fitbit Anxiety & the 'Hidden Disabilities' Lanyard 29:00

3M ago29:00

29:00

Send us a text In this episode, we welcome our newest member, Maria, and get to know her story. We ask about her life experiences and discover how she navigates the world with restricted eyesight—always with resilience and an incredible sense of humour. Later, Gila shares an honest and heartfelt review of her experience using a Fitbit. She opens up…

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The power of yes: it saves lives (Mike Walters and Jason Vandiver) 47:00

4M ago47:00

47:00

We have a powerful conversation about dedication, innovation, and impact in the cystic fibrosis community in this podcast. I’m joined by two incredible guests from MVW Nutritionals: Mike Walters and Jason Vandiver. Mike Walters is a true pioneer in pharmaceutical business and innovation, with nearly four decades of experience. He began his career a…

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Tanzu Platform 10.2 Launch Party!: Cloud Foundry Weekly: Ep 61 1:10:33

4M ago1:10:33

1:10:33

Join us to celebrate the release of Tanzu Platform 10.2! Our special guest will be Darin Zook as we dive into the latest and greatest features in your favorite Cloud Foundry distribution :)By Nick Kuhn and Nicky Pike

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Minisforum MS-A2, JetKVM and Tanzu Platform: Cloud Foundry Weekly: Ep 60 1:06:53

4M ago1:06:53

1:06:53

We will explore some new homelab gear today on the show and how it can be used with Cloud Foundry!By Nick Kuhn and Nicky Pike

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Tanzu Platform Installer on my Mobile Homelab: Cloud Foundry Weeky: Ep 59 1:09:35

4M ago1:09:35

1:09:35

Keith Lee and DaShaun Carter rejoin the show to continue our discussion on home labs and the automated installer of Tanzu Platform!By Nick Kuhn and Nicky Pike