Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
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Cf Community Podcasts
CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
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This is the Fight2Breathe podcast, hosted by Caleigh Haber, a cystic fibrosis survivor and two-time double lung transplant recipient. The podcast aspires to be the go-to platform for the CF community, featuring powerful personal stories, expert insights, and the latest advancements in CF care. Each episode engages individuals living with CF, their families, caregivers, and medical professionals, fostering understanding, celebrating victories, and tackling challenges. Tune in to inspire, educ ...
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The weekly teachings from the Sunday worship service of Christ Fellowship church of Elizabeth, NJ. At Christ Fellowship, we seek to love God, make disciples, and change the world.
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Our goal for this podcast is to strengthen our community by sharing our members' success stories.
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Cloud Foundry Weekly deep dives into various aspects of the Cloud Foundry ecosystem. Join Nick and Nicky as they interview special guests from the community and deep dive into special features within the VMware Tanzu and Cloud Foundry ecosystem.
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Relevant information on health, fitness and events for CF kindred members and our local community
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A dynamic Cystic Fibrosis Podcast, educating people on the different experiences and lives that CFers face. Discussing all sides of CF, including the fearful, the ambitious, the emotional and the challenging. A podcast that is purposely made to educate but more importantly comfort fellow CFers and support the CF community💛
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An original podcast that gets inside the heads of the Cystic Fibrosis Community to talk about all kinds of topics with respect and honesty.
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In technology, you need to modernize or die, and in this podcast, we take you behind the scenes in the ColdFusion community to talk with the leaders, to find out what they are doing to push the language forward, with tools, frameworks, modules, lessons and best practices.
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A body that looks and feels like YOU. A mind that’s clear & focused - ready for MASSIVE & CONSISTENT action. A life of fulfillment, passion, meaning & purpose. That’s what we are here to share with you. Join Katy Ferguson, M Ed., CF-L1, Pn1, CPT and Nathan Ferguson, MSW, LCSW as they help you create the life, the body and mind you want NOW. Together, with their blend of hilarity, stories, and more than a decade of service to the mind and body fitness community - they will help you stop opera ...
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A Peer-to-Peer community-driven podcast born in the UAE where we talk all things endurance sports.
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Tanzu Platform 10.2 Launch Party!: Cloud Foundry Weekly: Ep 61
1:10:33
1:10:33
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1:10:33Join us to celebrate the release of Tanzu Platform 10.2! Our special guest will be Darin Zook as we dive into the latest and greatest features in your favorite Cloud Foundry distribution :)By Nick Kuhn and Nicky Pike
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Minisforum MS-A2, JetKVM and Tanzu Platform: Cloud Foundry Weekly: Ep 60
1:06:53
1:06:53
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1:06:53We will explore some new homelab gear today on the show and how it can be used with Cloud Foundry!By Nick Kuhn and Nicky Pike
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Tanzu Platform Installer on my Mobile Homelab: Cloud Foundry Weeky: Ep 59
1:09:35
1:09:35
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1:09:35Keith Lee and DaShaun Carter rejoin the show to continue our discussion on home labs and the automated installer of Tanzu Platform!By Nick Kuhn and Nicky Pike
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Regional Data Services on Tanzu Platform: Cloud Foundry Weekly: Ep 58
1:04:08
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1:04:08Mad scientist Mark Fynes will join the show this week to discuss his work on running cloud foundry/bosh-vended data services as a regional service!By Nick Kuhn and Nicky Pike
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Substack is where I discovered Dr. MeiLan Han! I was browsing through and was pleasantly surprised to read an article, and learn that she wrote a book called, Breathing Lessons. And to top it off, she’s from my home state of Michigan. I also learned the Dr. Han’s book was “a passion project during the pandemic.” I’m delighted to share a conversatio…
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In this powerful episode of Our Fight to Breathe, host Caleigh Haber sits down with her close friend Nick Di Brizzi Jr., a double lung and kidney transplant recipient who has turned his journey with cystic fibrosis into a mission of hope and service. Nick, an actor, athlete, and founder of the Breathe Like a Boss Foundation, shares nearly a decade …
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Cystic Fibrosis’s Impact on Mental Health
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1:02:10In this powerful episode of Our Fight to Breathe, host Caleigh Haber welcomes KC White, Chair of the Board of Trustees at the Cystic Fibrosis Foundation and a leading voice in the CF community. KC, who holds a Master's degree in Applied Positive Psychology from the University of Pennsylvania, brings over two decades of advocacy experience and deep …
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In this episode, host Caleigh Haber interviews her personal CF physician, Dr. Patricia Eshaghian, Director of the Adult Cystic Fibrosis Program at UCLA Health. Dr. Eshaghian shares her journey into CF care and explains why specialized, accredited CF centers are crucial for patient outcomes. With over 20 years of experience, she emphasizes how compr…
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Join host Caleigh Haber as she welcomes Ben Mudge, a fitness coach, cystic fibrosis advocate, and author of the upcoming book Fitness Without Limits. Born with CF and diagnosed at three days old, Ben has transformed his approach to health from a military-influenced upbringing into a thriving 13-year coaching career helping others embrace their pote…
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In this powerful episode, we sit down with Caleb and Tiffany Remington (@ustheremingtons) to explore life beyond Trikafta, the groundbreaking CFTR modulator that has transformed the CF landscape for roughly 90% of patients. Caleb, who lives with cystic fibrosis, and Tiffany, his wife and caregiver, share their honest perspective on navigating this …
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In this powerful episode of Our Fight to Breathe, host Caleigh Haber sits down with Emily Kromar-Grolinkoff, founder of Emily's Entourage and a nationally recognized advocate for cystic fibrosis research. Diagnosed with CF at six weeks old, Emily has transformed her personal journey into a global movement, building a groundbreaking nonprofit that a…
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CF Caregiving: A Husband’s Perspective
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1:13:30In this deeply personal episode, host Caleigh Haber sits down with her husband Bryan Takayama to explore the often-overlooked perspective of CF caregivers. Bryan, an entrepreneur and co-founder of Notion State, shares his decade-long journey from meeting Caleigh one year post-transplant to becoming her primary caregiver through organ rejection, a s…
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Navigating the Complexities of the Healthcare System
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45:09In this episode of Our Fight to Breathe Podcast, host Caleigh Haber Takayama sits down with Aaron Stocks, Senior Manager of Case Management and Operations at the Cystic Fibrosis Foundation's COMPASS program. Aaron brings a unique dual perspective—he both lives with cystic fibrosis and professionally helps others navigate the complex healthcare syst…
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Coping with Grief and Keeping the Legacy Alive
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44:25In this deeply moving episode, host Caleigh Haber sits down with Diane Shader Smith, a powerful advocate in the cystic fibrosis community and author whose daughter Mallory lived with CF until age 25. Diane has channeled her grief into meaningful advocacy work, sharing Mallory's story through the acclaimed books "Salt in My Soul" and "The Diary of a…
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Intersecting Identities: Coming Out and Living with CF
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44:36Episode Description: In this powerful episode of Our Fight to Breathe, host Caleigh Haber sits down with Brandon Wright, a 37-year-old licensed social worker and certified dementia practitioner living with cystic fibrosis. Brandon shares his deeply personal journey of navigating identity at the intersection of chronic illness and being a member of …
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Life Post Transplant and the Transplant Games
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1:02:48Join host Caleigh Haber as she sits down with Matt De Fina, a two-time double lung transplant recipient, father, athlete, and advocate who has earned 37 medals competing in the Transplant Games of America and World Transplant Games. Matt's journey from end-stage cystic fibrosis to becoming a competitive athlete showcases the incredible possibilitie…
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In this episode, host Caleigh Haber welcomes her mother, Lizeth Bosch Haber, as her first guest to share the remarkable journey that shaped both their lives. As Caleigh's primary caregiver and fiercest advocate, Lizeth provides an intimate look into the realities of raising a child with cystic fibrosis, from navigating the initial diagnosis and eme…
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Personalized Mission: The Rosenau Family Foundation story
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34:10"Oh, the people you’ll meet, and the places you’ll go..." That classic Dr. Seuss line couldn’t have been more true when I found myself at a rare disease conference, taking with Dr. Gabriel Cohn. A quiet presence with a resume that reads like a roadmap through the last 30 years of rare disease breakthroughs, Dr. Cohn is the kind of person who remind…
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Welcome to Our Fight to Breathe, a podcast amplifying voices from the chronic illness and rare disease community. Hosted by Caleigh Haber, who lives with cystic fibrosis and has undergone two double lung transplants, this show explores the realities of life with serious health conditions—the triumphs, grief, medical complexities, and human stories …
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Despite the higher rates of incontinence among people with CF - due to coughing, which puts strain on one's pelvic floor muscles - stigma and embarrassment keep many people from seeking treatment. In this podcast, Georgia Brown, MLA, an adult living with CF, shares her personal journey with incontinence, opening up about her initial challenges in s…
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Despite the higher rates of incontinence among people with CF - due to coughing, which puts strain on one's pelvic floor muscles - stigma and embarrassment keep many people from seeking treatment. In this podcast, Georgia Brown, MLA, an adult living with CF, shares her personal journey with incontinence, opening up about her initial challenges in s…
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Costco to Connection: Magazine to Mic with Michelle Glogovac
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47:44From Costco to Connection: Podcast Advice That Changed Everything When I spotted a feature on podcasting in The Costco Connection, I was excited. When I saw Michelle Glogovac featured? I knew I had to reach out. That decision turned into one of the best moves I’ve made for growing my podcast. Michelle, THE Podcast Matchmaker®, publicist, and author…
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Voices of Care: A Live and Unfiltered Conversation
1:16:39
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1:16:39Live from Mix and Mingle Education Day: A Powerful Conversation with Caregivers In this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of caregivers—grandparents, parents, stepparents, dads, and friends—for a heartfelt discussion about the emotional journey of caring for a loved one wit…
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Live from Palo Alto, CF Day NA 2025! : Cloud Foundry Weekly : Ep 57
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49:43Join the Cloud Foundry Weekly crew as we go live from Cloud Foundry Day NA 2025 from Broadcom's beautiful campus in Palo Alto! Special thanks to Amelia Downs, David Stevenson, Greg Otto, and Beyhan Veli for the joining the show!By Nick Kuhn and Nicky Pike
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Exploring Tanzu Small Runtime : Cloud Foundry Weekly : Ep 56
1:08:55
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1:08:55DaShaun and Keith will join the show to discuss Tanzu Small Runtime and the various ways it can be deployed! Keith's Installer: https://github.com/KeithRichardLee/Tanzu-GenAI-Platform-installerBy Nick Kuhn and Nicky Pike
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Optimizing Qwen3 CPU ONLY inference on Tanzu Platform: Cloud Foundry Weekly: Ep 55
1:05:18
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1:05:18Hot off the presses in model releases - we will explore the Qwen3-30b-a3b MoE model running on the Tanzu Platform. Early testing shows it performs exceptionally well on somewhat older enterprise-grade server CPUs (aka Cascade Lake). This show will provide some insights on how enterprises can use their existing server infrastructure to start their i…
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Vibe Coding with Cote and Tanzu Updates: Cloud Foundry Weekly : Ep 54
1:03:39
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1:03:39Cote will join the show to discuss his latest experiences in the vibe coding scene and recap the latest and greatest updates on VMware Tanzu strategy!By Nick Kuhn and Nicky Pike
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Obesity in CF: A New Challenge in a Healthier Future
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38:12Cystic Fibrosis and obesity? Until recently this has not been a topic of conversation for the CF community. The reason for obesity in the CF community is better health and longer lives, so the concern is now a reality. University of Michigan CF doctor, Carey Lumeng is researching the issue. As he says in this podcast, researchers have a lot to lear…
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70 years strong: The Luanne McKinnon story.
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1:03:30A 70-year-old person with cystic fibrosis. It’s a phrase that wasn’t just uncommon a few decades ago—it was virtually unheard of. When Luanne McKinnon was diagnosed in 1969 at just 13 years old, doctors told her parents she might live to be 19 years old. Today, Luanne stands on the edge of her 70th birthday—a milestone that not only redefines possi…
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Eight miles. Two friends. One cause. In this inspiring episode, Jacob Venditti opens up about his life with cystic fibrosis, offering candid updates on his health and the challenges he faces as he prepares for a lung transplant. He emphasizes the vital role of community support and shares how his work with the Live Fearlessly Foundation fuels his m…
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Unique Transplant Journeys: Stories of Strength and Resilience (Video)
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34:24April is National Donate Life Month, a time to raise awareness about the importance of organ donation. In this podcast, adults with CF, Elyse Elconin-Goldberg, Missy Peterson, and Willem Wery, reflect on their experiences preparing for, undergoing, and recovering from double lung transplants. With unique journeys, Elyse, Missy, and Willem discuss t…
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Unique Transplant Journeys: Stories of Strength and Resilience (Audio)
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34:24April is National Donate Life Month, a time to raise awareness about the importance of organ donation. In this podcast, adults with CF, Elyse Elconin-Goldberg, Missy Peterson, and Willem Wery, reflect on their experiences preparing for, undergoing, and recovering from double lung transplants. With unique journeys, Elyse, Missy, and Willem discuss t…
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From Bulky to Breakthrough: The Future of Airway Clearance
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27:37From Clunky to Cutting-Edge: The Evolution of Airway Clearance with Nicole Dunn When our daughters first received their vest machines, they felt like they weighed a hundred pounds and had to be plugged into the wall. The vests didn’t fit well—riding high in the armpits and leaving much to be desired in comfort and function. Fast forward 25 years, a…
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🔥Unbreakable in the Desert🔥: The Desert Grit - Spartan Middle East Ambassadors Panel
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1:00:44🔥 Spartan Middle East Ambassadors Panel –Shadi Nasser, Jason Castillo + Fahad Taqi + RA George (Host) Join George in this power-packed episode of The Race Space Podcast as he sits down with Spartan Race Middle East Ambassadors Shadi, Jason, and Fahad for an inspiring panel chat ahead of the iconic race at Bab Al Shams (April 19). USE DISCOUNT CODE …
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Is Cloud Foundry the Agentic AI Platform? : Cloud Foundry Weekly : Ep 53
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1:03:07Corby and Kirti return to show how Cloud Foundry is the enterprise's Agentic AI platform of choice! We will continue to explore the Model-Context Protocol (MCP), Spring AI, and GenAI on Tanzu Platform. Last but not least, we will provide some commentary on what can be achieved on CPUs vs. GPUs within the platform and what resources you may need to …
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Exploring Open WebUI MCP support & Debugging LLMs : Cloud Foundry Weekly: Ep 52
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1:01:27Let's take a test drive of the latest Open WebUI release (0.6.0), which introduces MCP support! We will dive deep into this and how to debug LLMs running on the Tanzu Platform. Don't miss the episode to as we will be showing tips and tricks for getting LLM function support, MCP, and one of the best GenAI frontends working on Cloud Foundry!…
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Milestones, Medicine, and the CF Community with Siri Vaeth
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53:36CFRI’s Executive Director, Siri Vaeth is sunshine to me. She’s a dear friend. We met after Siri took on her role with the Cystic Fibrosis Research Institute. I consider Siri a dear friend, and a mentor. Siri is truly among the smartest people I know. She is an advocate for her daughter Tess, who has CF, and is an incredible advocate for the CF comm…
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The Impacts of CF on Sinonasal Health & Olfactory Function — Jessa E. Miller, MD (Video)
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35:08In this podcast, Dr. Jessa E. Miller—Rhinology & Skull Base Surgery Fellow at UCLA—provides background on the anatomy and function of paranasal sinuses, and the impact that ineffective CFTR protein development has on a person with cystic fibrosis’s (CF) ability to properly rid the body’s respiratory system of mucus and trapped debris. Dr. Miller to…
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The Impacts of CF on Sinonasal Health & Olfactory Function — Jessa E. Miller, MD (audio)
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35:08In this podcast, Dr. Jessa E. Miller—Rhinology & Skull Base Surgery Fellow at UCLA—provides background on the anatomy and function of paranasal sinuses, and the impact that ineffective CFTR protein development has on a person with cystic fibrosis’s (CF) ability to properly rid the body’s respiratory system of mucus and trapped debris. Dr. Miller to…
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I ain't afraid of no CVEs! : Cloud Foundry Weekly: Episode 51
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58:36DMZ, Nishad, and Rajan will join the show this week to discuss how Team Tanzu proactively handles the ever-changing security landscape by implementing proactive practices to respond to and mitigate the CVE threat landscape. We will also ask the team for their thoughts on wrapping security around the Model Context Protocol(MCP) as it continues to pi…
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Continuous Platform Engineering with cf-kaizen : Cloud Foundry Weekly : Ep 50
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1:02:18We welcome special guests Chris Phillipson and Brian Kirkland to the show to discuss implementing continuous platform engineering with cf-kaizen and the rest of the cf-tool suite. Don't miss this episode to see how you can harness the power of agents to improve your overall platform operations and engineering.…
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I love that I was able to bump into Aaron Trumm via an email. He reached out to check in about our scholarship program for college. We only award grants to undergrad students, but I was intrigued by all I learned about him. Aaron has CF, he is post-transplant, he started a recording label, he plays the piano and wraps, And he worked with the man kn…
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In this podcast, Dr. Chelsea Lau, a Fellow Physician in Hematology and Oncology at Northwestern Memorial Hospital, explores the link between cystic fibrosis (CF) and various types of cancer. Dr. Lau provides insights into how cancer develops in the general population and highlights the unique cancer risks for people with CF as well as CF carriers. …
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In this podcast, Dr. Chelsea Lau, a Fellow Physician in Hematology and Oncology at Northwestern Memorial Hospital, explores the link between cystic fibrosis (CF) and various types of cancer. Dr. Lau provides insights into how cancer develops in the general population and highlights the unique cancer risks for people with CF as well as CF carriers. …
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ConcourseGPT - Taming the Beasts of CI/CD - Cloud Foundry Weekly : Episode 49
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1:16:23We will have special guest Joey McDonald on the show to discuss his latest project, ConcourseGPT! ConcourseGPT aims to tame the Beasts of CI/CD Infrastructure with AI-generated documentation! It solves the challenge of undocumented, complex Concourse pipelines with an AI-powered tool that generates comprehensive documentation for configurations tha…
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Bob Coughlin, CF Dad: from Congress to Science
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45:50CF Dad Bob Coughlin see's a cure in the future for his son, and all of our kids. His high energy in this podcast is contagious. In this conversation, Laura Bonnell and Bob Coughlin discuss the journey of Bob's son, Bobby, who has cystic fibrosis. They explore the advancements in treatment, the importance of advocacy, and the intersection of policy …
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Zero to Hero with Spring AI: Part Two - Cloud Foundry Weekly : Episode 48
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1:05:37We welcome Adib Saikali back to the show to continue covering his Zero to Hero class on Spring AI! We will also continue to show how easy it is to expand and empower Java developers on the platform using Spring AI to jumpstart intelligent app development using Cloud Foundry and our GenAI tile. Grab the code: https://github.com/asaikali/spring-ai-ze…
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"Turning a Hardened Heart to Gold" :: Carlos Cedeño
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46:04A hard heart is difficult to surrender to God. The Scriptures call us to soften our hearts and make them available to be molded and shaped by God, much like a potter shapes clay. Though the process can be difficult, in the end we will come out refined and looking the way God created us to be. This teaching is part of our March 2025 series, “The Ref…
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Installing Open-WebUI Part 2: Advanced Use Cases: Cloud Foundry Weekly: Episode 47
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1:05:02We continue our coverage on running Open-WebUI on Cloud Foundry! We will dig into what services we can tie in from the Cloud Foundry marketplace to expand our exploration of running GenAI apps and LLMs within your foundations. Last but not least, we will give a sneak peek at Nick's latest addition to his homelab.…
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Michael Armstrong is a 25-year-old pre-law student. He loves to read, paint, play card games and video games. He was diagnosed with CF as an infant. We’re going to talk about his CF journey and how life took a turn when he was being evaluated for a lung transplant in 2023 and 2024. Michael was featured in the 2025 Portraits of cystic fibrosis calen…
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