Best Frontotemporal Podcasts (2025)

1
From caring for her mom with frontotemporal dementia, to creating a film and advocating to normalize the caregiving experience, with Katie Prentiss (Episode 121) 42:28

Play Pause

27d ago42:28

42:28

After being thrust into the world of caregiving and caring for her mom with frontotemporal dementia (FTD), Katie Prentiss saw the need to share the caregiver experience with others, both those who could relate or those who did not understand and could learn. With her upcoming feature film, Wake up Maggie, Katie has made it her mission to bring care…

1
Strain and conflict we can experience in a romantic relationship while also caregiving for a parent, child, sibling or other family member, with Barry Jacobs and Julie Mayer (Episode 124) 42:08

6d ago42:08

42:08

Caring for someone can add complexity and conflict in a romantic relationship. Whether your partner disagrees with your decisions and beliefs regarding caregiving or whether they feel you are not present for them the way you once were, this is for any caregiver experiencing changes in a romantic relationship. Barry Jacobs and his wife Julie Mayer a…

1
Amit Bar-Or on fenebrutinib for relapsing multiple sclerosis 8:10

7d ago8:10

8:10

In this episode, host Laura Hart chats with Professor Amit Bar-Or (University of Pennsylvania) about the potential of the BTK inhibitor fenebrutinib in treating relapsing multiple sclerosis, highlighting future challenges in MS research. Read the full article: https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(25)00174-7/fulltext?dgcid…

1
Talking all about ANGER and resentment in caregiving (Episode 123) 10:39

13d ago10:39

10:39

What leads to anger and resentment in caregiving and is there anything you can do to help prevent or mitigate these very intense, and sometimes overpowering, emotions? Today Stephanie talks about what can commonly trigger feelings of anger and resentment in caregiving and provides some realistic strategies to help you through these emotions while c…

1
Activities for People with Low Vision 3:01

13d ago3:01

3:01

These are activities that Rachael Wonderlin, founder and CEO of Dementia By Day, recommends for anyone living with dementia, but they are particularly well-suited to people with low vision. Rachael encourages you to get creative engaging your other senses and offers a couple of concrete ideas to get you started in this niche of activities.…

1
Guilt for not being able to do ‘it all’ while caring for multiple people and balancing other responsibilities (Episode 122) 7:46

20d ago7:46

7:46

Do you care for multiple family members or friends? Do you feel like you are not doing all you ultimately ‘should be’ doing given the limitations of caring for multiple people (plus potentially working and other responsibilities)? In today’s episode, Stephanie discusses this element of guilt and what happens & what you can do about being pulled in …

1
Dementia Caregiving Cost/Benefits Analysis 3:30

27d ago3:30

3:30

This is what you’re going to do when you’re deciding to make— or not make— a change to your loved one’s care. Should you make this change, especially if it's drastic? The answer is ultimately, “It depends.” It depends on the person and how much their quality of life would improve (benefit) for the inconvenience, or even trauma, it would cause (cost…

1
Guilt about moving someone to a facility when you promised them you would always keep them at ‘home’, with Susanne White (Episode 120) 32:56

1M ago32:56

32:56

In today’s episode, Stephanie speaks to Susanne White (Caregiver Warrior) about the one thing that brought her tremendous guilt for many years after the passing of her parents: transferring them to a facility after promising she would keep them at home. Susanne discusses the situation that led to this change in her caregiving path, and how she now …

1
Marte-Helene Bjørk on reproductive risks in people with epilepsy 20:40

1M ago20:40

20:40

Sarah Passey is joined by Dr Marte-Helene Bjørk (Haukeland University Hospital, Norway) to discuss the latest evidence and practical guidance on managing reproductive risks in people with epilepsy, including medication safety, pregnancy planning, and global challenges in care. Read the full article: https://www.thelancet.com/journals/laneur/article…

1
Being questioned about your involvement as a caregiver (Episode 119) 11:34

1M ago11:34

11:34

Have you ever had your caregiving or involvement as a caregiver questioned? This can STING. You have spent so much time and energy providing care and suddenly someone is questioning what you have done or how you have done it. Or maybe you have finally implemented boundaries in your caregiving and people are pushing back and commenting on you and yo…

1
Mini Podcast: You're Still the Caregiver 3:12

1M ago3:12

3:12

Even if you move your loved one to a dementia care community, you are still their caregiver, the person who is responsible for them. Though the responsibilities may shift, the "buck stops with you," as the expression goes. Let's talk about it.By Rachael Wonderlin

1
WE ARE BACK FOR SEASON 5! 7:10

2M ago7:10

7:10

Welcome back to Caregiver’s Compass! We cannot believe we are already on season 5 and we have some incredible guests coming your way. In this episode Stephanie introduces this season and briefly discusses her mom’s recent passing after many years of caregiving. Visit us on our website to see all that we offer for caregiver support: www.compassionin…

1
Mini Podcast: Should You Get a Sitter for Your Loved One with Dementia? 3:35

2M ago3:35

3:35

What is a "sitter" and does your loved one living with dementia need one? Let's talk about it. In this episode, Rachael breaks down considerations you should make when weighing whether or not to hire a sitter for your loved one living with dementia. She discusses options that are worth trying first before resorting to hiring a sitter, and cases in …

1
Geoff Manley on a new classification system for traumatic brain injury 25:34

2M ago25:34

25:34

Assistant Editor Sam Griffiths is joined by Professor Geoff Manley (UCSF, CA, USA) to discuss his new NIH-NINDS classification of acute TBI, the limitations of traditional classifications, how the new framework was developed, and what it means for the future of TBI research and patient care. Read the full article: https://www.thelancet.com/journals…

1
Interview with Janice Goldberg from Matter of Mind film 31:05

2M ago31:05

31:05

After 45 happy years together, Janice noticed that her life partner Sue had begun to repeat herself. "What do you want for dinner?" she'd ask. Then, a few minutes later, she'd say again, "What do you want for dinner?" As it turns out, Sue has Alzheimer's. Janice and Sue were recently featured in Matter of Mind, a PBS documentary that follows three …

1
Mini Podcast: Bring a Task 3:09

3M ago3:09

3:09

Whether you live with your loved one with dementia or you visit them in a care community, your time together will probably be most enjoyable if you bring an activity with you for the two of you to do together. This is a great way for you to connect with your loved one! I suggest simple, everyday activities like folding, sorting, or games like finis…

1
Mini Podcast: The "Out-of-Towners" 3:06

3M ago3:06

3:06

"They seem fine!" This is the refrain of the folks we at Dementia By Day refer to as the "out-of-towners." The out-of-towners think they know best and they are very vocal about the care they believe your loved one should receive, but in reality, they are out of touch with what it's like caring for someone living with dementia. If you have out-of-to…

1
Wayne Feng on stroke rehabilitation using brain stimulation and constraint-induced movement therapy 19:52

3M ago19:52

19:52

Increasing numbers of people are surviving stroke but with motor impairments that can contribute substantially to long-term disability. Transcranial direct current stimulation has shown promise in reducing motor impairment when combined with rehabilitation therapy. Sarah Passey talks to Wayne Feng (Duke University School of Medicine, Durham, NC, US…

1
Mini Podcast: The 3-Prong Approach to Moving Someone to Dementia Care 3:10

4M ago3:10

3:10

People often ask me how to break the news to their loved one living with dementia that they will be moving to a dementia care community. We NEVER want to say something like, "Mom, we are moving you to dementia care because there is something wrong with your brain," and we especially don't want to add, "remember?!" when they ask about what's going o…

1
Mini Podcast: Dementia and Hospice 3:25

4M ago3:25

3:25

My #1 piece of advice when it comes to hospice: Look into it before you think it's time. Don't wait too long, because it's an invaluable resource for people living with dementia and their families. Listen to learn how someone living with dementia might qualify for hospice.By Rachael Wonderlin

1
Marialuisa Gandolfi on the management of chronic pain in Parkinson's disease 12:43

4M ago12:43

12:43

In this podcast, linked to the April 2025 issue of The Lancet Neurology, Laura Hart (Deputy Editor) chats to Marialuisa Gandolfi (University of Verona in Italy) about advances in the classification and management of pain in Parkinson’s disease. Continue this conversation on social! Follow us today at... https://thelancet.bsky.social/ https://instag…

1
Mini Podcast: Types of Care 3:40

4M ago3:40

3:40

For family caregivers of people living with dementia, the offerings of the senior living landscape can be super confusing. In this mini episode of the Dementia By Day Podcast, Rachael Wonderlin introduces some of the most common types of care offered in senior living, and explains how these designations can vary widely not only from country to coun…

1
Mini Podcast: Misinformation on Social Media 4:14

5M ago4:14

4:14

Back when Rachael first started posting content about caring for people with dementia, there were very few people inhabiting this same niche on the internet. Now, there are more and more cropping up every day. In this mini podcast episode, Rachael talks about the importance of double-checking the information you come across on the internet when it …

1
Michael Tymianski on neuroprotection in stroke 25:17

5M ago25:17

25:17

Sarah Passey (The Lancet Neurology) is joined by Michael Tymianski (University Health Network, Toronto, Canada) to discuss an Article in the March issue reporting a meta-analysis looking at neuroprotection in stroke and what can be learnt for future research. Read the full article: https://www.thelancet.com/journals/laneur/article/PiiS1474-4422(24)…

1
Mini Podcast: "Therapeutic Lying" 3:35

5M ago3:35

3:35

Nomenclature is so important. Listen to why I hate the phrases "therapeutic lying," "fiblets," and "white lies." Embracing Their Reality™️ is about doing what's true for the person living with dementia, NOT lying.By Rachael Wonderlin

1
Mini Podcast: Validation Theory 4:24

6M ago4:24

4:24

In this mini episode, Dementia By Day CEO Rachael Wonderlin talks about Naomi Feil's Validation Theory for communicating with people living with dementia. Validation Theory contrasts directly with Embracing Their Reality™️ because it teaches to "never lie" to someone living with dementia, and often suggests avoiding certain lines of questioning ins…

1
Elizabeth Finger on oxytocin for apathy in frontotemporal dementia 18:43

6M ago18:43

18:43

In this podcast, linked to the February 2025 issue of The Lancet Neurology, Elena Becker-Barroso (Editor-in-Chief) chats to Elizabeth Finger (Western University, London, ON, Canada) about the FOXY trial of oxytocin for apathy in people with frontotemporal dementia. Read the full article: https://www.thelancet.com/journals/laneur/article/PIIS1474-44…

1
Mini Podcast: What is Timeline Confusion™️? 3:16

6M ago3:16

3:16

Listen to this mini podcast episode to learn the fundamentals of Timeline Confusion™️. A common misconception about people living with dementia is that they "don't recognize" their loved ones. In reality, people living with dementia aren't living on a linear timeline. This means that if they believe they themselves are 40, they may not understand w…

1
Mini Podcast: Dementia isn't all that preventable 4:41

7M ago4:41

4:41

Welcome to our Mini Podcast season! These are unedited, super short episodes we created for our Patreon audience last year. Now they're available for you to enjoy! When we spot people posting things like this, they're really taking facts out of context...and typically new to the industry or running out of good content to post! Here's why this doesn…

1
The Lancet Neurology Editors on advances in neurology in 2024 18:01

7M ago18:01

18:01

The Lancet Neurology Editors take a look back at advances in neurology in 2024, as highlighted by experts in a series of Round-ups published in the January issue. Continue this conversation on social! Follow us today at... https://thelancet.bsky.social/ https://instagram.com/thelancetgroup https://facebook.com/thelancetmedicaljournal https://linked…

1
Florian Krismer and Elizabeth Coon on multiple system atrophy 17:44

8M ago17:44

17:44

Florian Krismer (Innsbruck Medical University) and Elizabeth Coon (Mayo Clinic) join Sarah Passey (The Lancet Neurology) to discuss their Review paper on multiple system atrophy, which is published in the December issue of The Lancet Neurology. Continue this conversation on social! Follow us today at... https://thelancet.bsky.social/ https://instag…

1
Beyond the Battlefield: Addressing Unique Health Needs of America’s Veterans 42:21

8M ago42:21

42:21

Dr. Randy Moore, DNP, RN is a dedicated health care leader specializing in Veteran health and well-being. A Veteran himself, he is an Assistant Professor at the UAB School of Nursing and in collaboration with the U.S. Department of Veterans Affairs, he focuses on bridging gaps in health care knowledge related to the unique needs of America’s Vetera…

1
TOP episodes of season 4! 6:18

9M ago6:18

6:18

We are back and covering the most listened-to episode of season 4! Here is a recap: 5) Episode 105: What exactly is ‘Caregiver Burnout’? 4) Episode 95: Yes, eating disorders can very much be related to caregiving- with Kyla Fox 3) Episode 93: ‘My parent has poor health habits but refuses any of my support or suggestions for change’ 2) Episode 94: S…

1
Heart to Heart: Innovations and Impact of Nurse-Led Heart Failure Clinics 37:26

9M ago37:26

37:26

Dr. Carla Turner graduated from Birmingham-Southern College in 1988 with a Bachelor of Science in Nursing, and also received a Masters in Nursing and a Doctorate of Nursing Practice both for the University of Alabama at Birmingham (UAB). She is a Nurse Practitioner and Supervisor in the Heart Failure Transitional Care Services for Adults (HRTSA) Cl…

1
Debunking the common misconceptions behind ‘palliative care’ and advocating for awareness about palliative care and MAID, with Dr. Samantha Winemaker (Episode 117) 56:46

9M ago56:46

56:46

Palliative care: a term we often hear in our communities and in the healthcare system. But do we actually know what the term palliative care means for us and the people we care for? In today’s enlightening episode, palliative care physician, Dr. Samantha Winemaker, talks to Stephanie about this very important topic in addition to concepts surroundi…

1
Behind the Scenes: Embracing Their Reality Short Film ep3 24:03

9M ago24:03

24:03

Episode 3 of our Behind the Scenes on Embracing Their Reality, our short film! If you haven't watched it yet, go to embracingtheireality.com or even our YouTube link https://www.youtube.com/watch?v=WovKSfdo5u8 In the interview: Rachael Wonderlin, Natalie De Paz, Jessica Wasserlauf, Emily NaplesBy Rachael Wonderlin

1
Dementia prevention, women’s brain health and the power to improve your health NOW and for the future, with Lynn Posluns (Episode 116) 44:19

9M ago44:19

44:19

Lynn Posluns dedicates her life to women’s brain health, education and research for prevention and improvement that you can make in your life right now. In today’s episode, Lynn provides insightful and valuable information on brain health and talks about her ‘why’ for founding the WBHI. She additionally goes into detail about the many ways WBHI is …

1
Suvankar Pal on the motor neuron disease trial MND-SMART 18:20

9M ago18:20

18:20

Professor Suvankar Pal (University of Edinburgh) joins Sarah Passey (Senior Editor at The Lancet Neurology) to discuss the first findings from the MND-SMART trial of treatments for motor neuron disease. The Article is published in the November issue of The Lancet Neurology. Continue this conversation on social! Follow us today at... https://thelanc…

1
Navigating Dementia: Prevention, Care Strategies, and the Hidden Challenges of Frontotemporal Dementia 33:01

9M ago33:01

33:01

Dr. Rita Jablonski blends clinical research with clinical practice, offering persons with dementia and their caregivers the best of both worlds. She is a tenured Professor at the University of Alabama at Birmingham School of Nursing, a Scientist in UAB's Alzheimer's Disease Center, a Scientist in UAB's Comprehensive Center for Healthy Aging, and ha…

1
Behind the Scenes: Embracing Their Reality Short Film ep2 22:40

9M ago22:40

22:40

Episode 2 of our Behind the Scenes on Embracing Their Reality, our short film! If you haven't watched it yet, go to embracingtheireality.com or even our YouTube link https://www.youtube.com/watch?v=WovKSfdo5u8 In the interview: Rachael Wonderlin, Natalie De Paz, Jessica Wasserlauf, Emily NaplesBy Rachael Wonderlin

1
Caregiving while balancing a career at the same time (Episode 115) 10:09

10M ago10:09

10:09

Are you caregiving and working at the same time? This very real and very common situation is also very hidden and not talked about enough… But when you take the stress of home and everything you have to balance with the person you care for ON TOP of a career and working, the stress and overwhelm can be above and beyond what you may feel is manageab…

1
Behind The Scenes: Embracing Their Reality Short Film Ep1 23:44

10M ago23:44

23:44

Episode 1 of our Behind the Scenes on Embracing Their Reality, our short film! If you haven't watched it yet, go to embracingtheireality.com or even our YouTube link https://www.youtube.com/watch?v=WovKSfdo5u8 In the interview: Rachael Wonderlin, Natalie De Paz, Jessica Wasserlauf, Emily NaplesBy Rachael Wonderlin

1
Let’s talk about the nursing home transition… (Episode 114) 12:13

10M ago12:13

12:13

The nursing home transition can be very very hard, not only for the person who is moving to the residence, but for the caregiver too (in a big way). In today’s episode, Stephanie talks about this transition, the emotions behind nursing home transitions for caregivers and some helpful strategies that can help along the way. We want your feedback. Le…

1
Bridging Gaps: Community Outreach at the O’Neal Comprehensive Cancer Center 28:29

10M ago28:29

28:29

Dr. Timiya S. Nolan is the Associate Director for Community Outreach & Engagement at the O’Neal Comprehensive Cancer Center. In this role, she will be responsible for overseeing the Office of Community Outreach & Engagement, which fosters transdisciplinary cancer research along with bi-directional communication and collaboration with communities st…

1
Who is the CEO behind the Ontario Caregiver Organization and how is the OCO working with caregivers to provide the diverse support they need when they need it? With Amy Coupal (Episode 113) 39:05

10M ago39:05

39:05

There are over 4 million caregivers in Ontario, yet the Ontario Caregiver Organization (OCO), a government funded organization aimed to support this wide variety of caregivers, is still relatively new. In today’s episode, OCO CEO, Amy Coupal joins Stephanie on the podcast to talk about who she is behind her vocation, her caregiving experiences and …

1
Caregiving and navigating the healthcare system with both a neurotypical child and a child with autism and a rare genetic disease AND recognizing the true need for self-care along the way after extreme ... 43:36

10M ago43:36

43:36

Nicole Dauz imagined an idyllic future for her family of 4 after giving birth to her baby daughter. She soon realized that her vision of what would be looked very different in reality. In today’s episode, Nicole takes us through her journey caregiving for her kids, learning about navigating the system and care for a child with autism and a rare gen…

1
Jorge Correale and Lilyana Amezcua on differential diagnosis of multiple sclerosis 19:30

10M ago19:30

19:30

Prof Jorge Correale and Dr Lilyana Amezcua talk to The Lancet Neurology about their Personal View papers, published in the October 2024 issue, on the differential diagnosis of multiple sclerosis in regions outside North America and Western Europe and in people from minority ethnic or racial backgrounds in North America, northern Europe, and Austral…

1
The AI Clinic: Where Tech Meets Care 40:05

10M ago40:05

40:05

Chris Hickman has over 18 years of data and analytics experience. For the past 18 years, he has worked as a data analytics consultant, for multiple companies across various Industries, including oil, and gas Finance, Insurance, and health care. Most recently, he's taking on the role of founding member of his own company, Blueline Insights, which fu…

1
Holidays and events are so hard since the loss of/ changes have transpired in my loved one (Episode 111) 10:00

10M ago10:00

10:00

The first, second, third…. times we experience a holiday or an event since changes or the loss of someone we love can be so hard. These moments and the anticipation of them can be so full of loss and grief and memories of what once was. In today’s episode, Stephanie talks about these moments, what they can feel like and what we can start to do to p…

1
I really wish I had a sibling to help me in my caregiving (Episode 110) 8:08

11M ago8:08

8:08

As an only child, for many years Stephanie thought that having a sibling by her side would really help in the caregiving process. But after working with caregivers for many years, she soon realized that this is not always the case. In today’s episode, Stephanie walks listeners through some scenarios when sibling conflict was more prevalent than sup…