Best Leukodystrophy Podcasts (2025)

1
What I Learned From My Counselor - You're not stuck! 17:43

1d ago17:43

17:43

Have you ever felt like you’re just spinning your wheels—emotionally, mentally, or even spiritually? Like no matter how hard you try, nothing changes? In this episode, we’re talking about the powerful reminder that you are not stuck. Even when life feels confusing or progress feels invisible, God is still moving in your life. We’ll share honest con…

1
What I Learned From My Counselor - You won't always feel this way 21:45

8d ago21:45

21:45

I learned from my counselor that although my feelings in this moment are real and valid, I won’t always feel this way. If you’ve ever felt stuck in a season of sadness, fear, doubt, anxiety, exhaustion, or heartbreak—this episode is for you. We’re talking about the powerful truth that emotions are real, but they are not permanent. We share personal…

1
Baby Bean Update with Parker Bean! 32:03

15d ago32:03

32:03

In this special episode, we’re bringing you a fun and much anticipated Baby Bean update—with none other than dad-to-be Parker Bean joining Erin behind the mic! We’re sharing all the latest about this incredible season of expectancy: how Erin’s been feeling, what God is teaching them in the waiting, and how they’re preparing their hearts and home fo…

1
For the moms... 41:16

22d ago41:16

41:16

For the moms… The soon-to-be moms… The moms learning to let go… The moms wiping tears… The moms tying shoes and packing lunches… The moms anxiously praying and waiting on God… And to the courageous moms whose children now live in heaven... This is for you. In honor of Mother’s Day, we’re sharing 20 words of wisdom to uplift your heart, encourage yo…

1
The Overcoming Season - Overcoming Loss, Heartbreak, and Despair 35:12

29d ago35:12

35:12

Loss. Heartbreak. Despair. They can leave us feeling like the pieces will never come back together again. But what if those broken pieces are exactly what God uses to rebuild something stronger, deeper, and more beautiful? In this episode, we dive into what it means to walk through heartbreak and loss without losing hope. We talk honestly about the…

1
The Overcoming Season - Overcoming the Need to Control 30:11

1M ago30:11

30:11

Have you ever clung tightly to plans or outcomes, afraid of what might happen if you let go? Control can feel like safety, but often it reveals a struggle to trust God’s sovereignty. In today’s episode, we’re diving into one of faith’s hardest lessons—surrendering control. If you’ve ever felt the pressure to hold everything together, this conversat…

1
The Overcoming Season - Overcoming Feeling Overwhelmed & Exhausted 32:00

1M ago32:00

32:00

Feeling like you're running on empty? Are you at the end of your rope? In this episode, we dive deep into the very real experience of feeling overwhelmed and exhausted—mentally, emotionally, and physically. Whether you're juggling too many responsibilities, stuck in a cycle of burnout, or just struggling to find your footing, this episode is for yo…

1
The Overcoming Season - Overcoming Your Past 29:44

2M ago29:44

29:44

In this episode, we dive deep into the powerful journey of overcoming your past and stepping into the freedom and life God has for you. Whether you're carrying the weight of mistakes, shame, or painful memories, know this: your past does not define you—God does. We'll explore how faith can be the key to healing, how Scripture reminds us that we are…

1
The Overcoming Season - Overcoming Perfectionism & People Pleasing 26:25

2M ago26:25

26:25

Are you constantly striving for perfection, afraid of letting others down, or feeling exhausted from trying to meet everyone’s expectations? In this episode, we dive deep into the struggles of perfectionism and people-pleasing—how they hold us back, drain our joy, and keep us from walking in the freedom God intends for us. Through faith-filled enco…

1
The Overcoming Season - Overcoming Negativity & Complaining 28:10

2M ago28:10

28:10

Negativity and complaining can easily become habits that drain our joy and keep us stuck in a cycle of disappointment, discouragement and frustration. But what if we could break free? What if we could shift from complaining to encouragement and from negativity to joy and gratitude? In this episode, we talk about how a relationship with God can help…

1
The Overcoming Season - Overcoming Fear & Worry 36:55

2M ago36:55

36:55

THE OVERCOMING SEASON! EPISODE 1 - OVERCOMING FEAR & WORRY Are you dealing with fear? Do you feel like you're constantly worried about something or everything? Are you anxious that another struggle is around the corner? We all deal with fear and worry. Sometimes it comes and goes based on what's going on in life. Other times, unfortunately for some…

1
A Baby Bean update & some laughs with Auntie Cam! 52:24

3M ago52:24

52:24

We're back with a Baby Bean update!!! So much has happened since we announced that Erin is pregnant - including finding out the GENDER! For this special update episode we decided that we wanted to bring back a guest you all know and love - Cam Kelly! Also, known now as Auntie Cam! We talk about all things Baby Bean and then finish the episode out w…

1
What Happens When You Die? A Conversation with John Burke 1:02:27

3M ago1:02:27

1:02:27

What really happens when we take our last breath? In this thought-provoking episode, we sit down with New York Times Bestselling author John Burke, who has spent over 30 years researching and interviewing people from all over the world who have had near-death experiences (NDEs). John shares remarkable firsthand accounts and explores what these expe…

1
Conversations with Erin & Jill - How do you help someone going through cancer? 22:38

3M ago22:38

22:38

Cancer impacts all of us in some way. In this episode, we dive into the journey of walking alongside someone battling cancer. Whether it’s a family member, friend, or loved one, the road can often times feel overwhelming—but you don’t have to walk it alone. We’ll talk about practical ways to offer support, the power of simply being present, and how…

1
Conversations with Erin & Jill - How do you deal with feeling overwhelmed? 35:54

3M ago35:54

35:54

Do you feel overwhelmed? Maybe you're exhausted and life just feels too heavy to handle right now. We've been there. In fact, I've found myself feeling very overwhelmed lately (pregnancy might have a bit to do with that!). In this episode, we explore the overwhelming moments we all face and how, from a biblical perspective, we can find peace and st…

1
Love is... Immeasurably More than you think it is! 33:27

4M ago33:27

33:27

It's almost Valentine's Day which means we're talking about LOVE!! But what is love? And how can you know what true love really is? Join us this week as we talk about the Greatest Love and how love really is immeasurably more than you think it is. Song: Lofi Chill Hip Hop Beat - SpringVibes (youngfrenchy808) We would like to pray for you. Please cl…

1
A BABY IS ON THE WAY...ERIN IS PREGNANT! 27:37

4M ago27:37

27:37

A BABY IS ON THE WAY...ERIN IS PREGNANT!!! Our host, Erin, and her husband, Parker Bean, announce that they are expecting their first child! This weeks episode is filled with all the amazing details! Erin and Parker share the incredible moment they found out that Erin is pregnant with Baby Bean. Jill and Jim (Erin's parents), and Camryn (Erin's you…

1
Kelly Family Buffalo Bills Season Recap! 30:33

4M ago30:33

30:33

If you've been listening to our podcast long enough you know we're huge Buffalo Bills fans! Our season unfortunately ended a few days ago with a heartbreaking loss against the Kansas City Chiefs. Join us (our entire family - Erin, her husband Parker, Jim and Jill Kelly, and Camryn Kelly) as we share our takeaways from the game, the season, the team…

1
Conversations with Erin & Jill - What do you do while you wait on God? 32:28

4M ago32:28

32:28

Waiting on God is hard... Especially when you're faced with what seems like an impossible situation. When life doesn't make sense. When you're hurting. When a loved one is sick. When you're faced with loss and grief. When you want to give up. In this week's episode we talk about what to do while you wait on God. Waiting is hard. But you can trust G…

1
Conversations with Erin & Jill - I keep trying and trying and nothing changes in my life... Please help! 16:04

4M ago16:04

16:04

We're back with our Q&A Series! Are you tired of trying? Are you tired of the circumstances in your life not changing despite all that you do to try and make things better or different? Are you tired of trying to hold it all together? What if instead of trying you started TRUSTING? Song: Lofi Chill Hip Hop Beat - SpringVibes (youngfrenchy808) We wo…

1
Goodbye 2024, Hello 2025! 30:44

5M ago30:44

30:44

2024 was an incredible year! We are so thankful for all that God did through the podcast...it really was IMMEASURABLY MORE! In this episode we share our top 24 takeaways from 2024. We hope and pray you are encouraged. More to come in 2025! We love you! Song: Lofi Chill Hip Hop Beat - SpringVibes (youngfrenchy808) We would like to pray for you. Plea…

1
We all need a good laugh so we invited Cam back! 38:39

5M ago38:39

38:39

We all need a good laugh sometimes! So we decided to end 2024 with a funny, light-hearted episode where we talk about some of our favorite social media memes and some random fun behind the scenes stuff about us that we don’t usually share. And who better to invite on the podcast for this episode than Camryn Kelly. If you've listened to any episodes…

1
Conversations with Erin & Jill - How can I trust God when I don't? 22:26

6M ago22:26

22:26

Do you have trust issues? Do you struggle to trust God? If your answer is yes... you're not alone! There are seasons when it's hard to trust God, especially when life is hard and suffering is a part of your story. In this week's episode we talk about the reasons to trust God and ways to trust Him when you don't! God is always good, even when your c…

1
Conversations with Erin & Jill - What do you do when you doubt God & don't understand why He allows things to happen? 24:30

6M ago24:30

24:30

At some point in our lives we all experience doubt. We doubt God. We doubt His goodness. We doubt why He allows certain things to happen in our lives. We doubt if He really is who He says He is. But doubt isn't necessarily a bad thing. Doubt may actually be the very thing that strengthens your faith. In today's episode, we talk about practical thin…

1
Practicing Gratitude Every Day... Not Just on Thanksgiving 24:21

6M ago24:21

24:21

Happy Thanksgiving 2024! We all have so much to be thankful for. Every breath and every moment are a gift from God! In this week's episode we focus on gratitude. We talk about how to live with a heart of gratitude and give thanks to God in all circumstances. And how when you choose to live that way, God will change you even if your circumstances do…

1
Conversations with Erin & Jill - Why do we pray if God already has a plan? 25:15

6M ago25:15

25:15

What's the point of prayer? If God already knows, if He already has a plan, if He is all powerful and in control, then why do we pray? Does praying really make a difference in our lives? In today's episode we talk about the purpose of prayer. We share our own experience with asking the above questions and the great value we have found in the gift o…

1
Conversations with Erin & Jill - How do you cope with anxiety? 25:02

7M ago25:02

25:02

Q&A is back with Conversations with Erin & Jill! We love hearing what's on your heart. Your questions matter to us. Many of the questions we've received are about anxiety. There is so much going on in the world, in our communities, and in our homes. Some things we're able to control, but most of what we go through is beyond our control. Anxiety is …

1
2 Year Anniversary of the Podcast!!! 38:20

7M ago38:20

38:20

2 YEARS!!! In today's episode we're celebrating our 2 year anniversary of the podcast. God has done and continues to do immeasurably more than we could ever imagine through this podcast. We've talked about so many amazing topics and had incredible guests share their stories. Today, we're sharing some of our favorite quotes and episodes from the las…

1
A Story of Forgiveness & Redemption After Unfaithfulness & Betrayal 58:10

7M ago58:10

58:10

Have you ever been betrayed by the one person you thought you could trust most? Did your spouse break the marriage commitment you thought would last a lifetime? Are you filled with anger, hatred and resentment because the person you loved most selfishly broke your heart? Our good friend, Kristin, has walked through all of the above and she has chos…

1
Forgiveness, Faithfulness, and Friendships that Endure 57:49

7M ago57:49

57:49

God intentionally hand-picks people to be in our lives. Oftentimes it’s those we would least expect, but in moments when we need them most. On today’s episode, Jill’s long time friends and mentor, Annie, joins the podcast to talk about forgiveness, faithful friendships, prayer, her book Practicing Hospitality, and so much more. Annie talks about pr…

1
No Matter What... There's Always GOOD NEWS! 30:31

8M ago30:31

30:31

Do you feel like there's a lot of bad news right now? The state of our country and the world we live in. The recent hurricanes that have caused so much devastation. The wars in other countries. Or maybe your bad news looks different... A diagnosis. The loss of a loved one. The loss of a job. The future you imagined seems out of reach. A traumatic a…

1
World Mental Health Day 2024 39:44

8M ago39:44

39:44

Tomorrow, October 10, is World Mental Health Day so we wanted to re-share one of our favorite mental health episodes. At the end of May, we talked about highlights and takeaways from our Mental Health Awareness Month episodes. There's so much encouragement that we wanted to share it again. From climbing out of the pit and how to help someone strugg…

1
The Hunter's Hope Mom's Session (PART 2) 46:45

8M ago46:45

46:45

At this year's Hunter's Hope Family Symposium we had the opportunity to have 2 conversations with some of the incredible moms of children with Leukodystrophies. Last week we introduced you to 5 of our moms and this week we are talking to 6 more! We talk about the challenges of living with grief and loss, forgiveness, what we would ask God for if we…

1
The Hunter's Hope Mom's Session (PART 1) 32:33

8M ago32:33

32:33

At this year's Hunter's Hope Family Symposium we had the opportunity to have amazing conversations with some of our families. This week we are talking to a group of 5 incredible moms who have walked through (and are walking through) the darkness of sickness and disease. These women share so much encouragement... Hope in the midst of heartbreak. Fai…

1
The Hunter's Hope Sibling Session (PART 2) 20:46

8M ago20:46

20:46

During this year's Hunter's Hope Family Symposium we had two amazing conversations with some of the siblings of children affected by Krabbe Disease and other Leukodystrophies. Last week we introduced you to 6 of our siblings and this week we are introducing you to 6 more! Two (Michael and Elijah) of which have Krabbe disease and received life savin…

1
The Hunter's Hope Sibling Session (PART 1) 35:23

9M ago35:23

35:23

During this year's Hunter's Hope Family Symposium we had an amazing conversation with some of the siblings of children affected by Krabbe Disease and other Leukodystrophies. This conversation we had felt like a family reunion... Friends, brothers and sisters talking about life... The joy and the pain. The fear and faith. Life and grief. And so much…

1
Faith & Football with Steve Tasker! 55:34

9M ago55:34

55:34

WELCOME BACK TO THE NFL FOOTBALL SEASON!!! If you know us, we share a lot about faith on this podcast, but we love football…especially the Buffalo Bills! To kick off the 2024 Buffalo Bills Season we wanted to bring in someone who was not only an amazing player on the field, but an even more incredible man off the field… STEVE TASKER! We had so much…

1
Walking Through Heartbreak & Loss... Again. 55:19

9M ago55:19

55:19

This is by far one of the hardest episodes we’ve ever recorded. A little over a month ago, my amazing father-in-law, Greg Bean, suddenly took his last breath here on earth and his first in heaven. I asked my husband, Parker, if he would be willing to share how he is processing the devastating loss of his dad. Although this is a very difficult episo…

1
A Conversation with Cam - Identity, Social Media, and So Much More! 41:29

10M ago41:29

41:29

Cam is back by popular demand! We love having her on the podcast! In today's special conversation with Cam we went back to the archives and pulled out our “Hot Chocolate with God” book series. If you're not familiar with HCWG, the three of us wrote a series of five books when Cam and I were very young. These books and devotionals are filled with fu…

1
Hunter - The Boy Whose Unspoken Love Changed Everything 41:15

10M ago41:15

41:15

Hunter James Kelly- The boy who never spoke a word, but changed everything… Monday, August 5, 2024 marked 19 years since Hunter went to heaven. It seems like so long ago, and yet there are moments when it feels like it was just yesterday that he was here. In this week’s episode, Hunter’s younger sister, Camryn, joins Erin and Jill to talk about Hun…

1
My Story of Perseverance - Jim Kelly (PART 2) 24:34

10M ago24:34

24:34

“We couldn’t fit all of my story into one episode so this week we are sharing PART 2! I talk about the day my son, Hunter, went to heaven, how God rescued and restored my marriage, and my 4 cancer battles. My story has been hard, but God is good. He has brought me and my family through so much. My story isn’t over and neither is yours. I hope you a…

1
My Story of Perseverance - Jim Kelly (PART 1) 57:54

10M ago57:54

57:54

"I travel the country sharing my story of perseverance...But never quite like this. I talk about my life growing up in the small town of East Brady, Pennsylvania, my college years playing football at the University of Miami, being drafted by the Buffalo Bills, and yes...the 4 Super Bowl losses. I also talk about my wife, Jill, and my three children…

1
My Story... Unfiltered - Erin Kelly Bean 1:08:53

11M ago1:08:53

1:08:53

"I used to be afraid to tell my story. I thought I couldn’t share what I’ve walked through until I was on the other side. Until the pain ended. Until the depression lifted. Until I no longer had panic attacks. Until I stopped doubting God. Until I was completely healed. But… I’ve found strength in sharing my story in the midst of it…in the midst of…

1
My story in a way I've never shared before - Jill Kelly 1:01:59

11M ago1:01:59

1:01:59

What do you do when everything you put your hope in fails... "I spent years of my life putting my hope in the things of this world, until nothing this world had to offer could save my son, Hunter. But it was in that moment of desperation, when I lost all hope, that God intervened and changed everything. He made a way where there seemed to be no way…

1
Introducing The Immeasurably More Podcast! 22:47

11M ago22:47

22:47

THE IMMEASURABLY MORE PODCAST! We’re so excited to announce the rebrand of The Light Your Heart With Hope Podcast! In this week’s episode we share why we decided to change the name, what this means moving forward, and so much more…immeasurably more! Thank you for listening and being a part of our podcast family. We love you! “Now to him who is able…

1
Keep Going (Part 2) 36:49

11M ago36:49

36:49

There was SO much to talk about last week that we needed a PART 2! So this week we are continuing the conversation - How do you keep going when you want to give up? One of the main takeaways of part 1 was that in order to Keep Going you have to rest in and trust in the PRESENCE of God, the POWER of God, the PROVISION of God, and the PROMISES of God…

1
Keep Going (Part 1) 27:22

12M ago27:22

27:22

No matter what your circumstances are, no matter how much you want to give up because that seems like the easier choice, keep going. Nothing is impossible with God! This week we're talking about what we've learned in the midst of our darkest moments and deepest heartbreak. We will be sharing what has helped us to persevere, no matter what. You will…

1
Highlights & Takeaways from Mental Health Awareness Month! 38:35

12M ago38:35

38:35

We covered a lot of ground during Mental Health Awareness Month. From climbing out of the pit and how to help someone struggling with anxiety and depression, to overcoming the fear of falling back into the darkness. We talked about so much, and although we hope you take time to listen to all of the episodes, we realize that you might not have the t…

1
Your story isn't over... (MHAM - Episode 5) 32:16

1y ago32:16

32:16

We've come to the end of Mental Health Awareness Month 2024! And what a month it has been! We've talked about so many amazing topics. Topics that are hard to talk about but vital to healing and restoration. Topics that we hope to continue talking about in the future. We hope you have been encouraged and inspired to make your metal health a priority…

1
How to overcome the fear of falling back into depression & anxiety (MHAM - Episode 4) 40:11

1y ago40:11

40:11

When you've come out of a dark season of depression and anxiety you can't bear the thought of falling back into the darkness again. It's terrifying to even think about. Maybe you've experienced breakthrough but you're worried you'll be broken again. Maybe light has finally burst through but you're afraid darkness is around the corner. So how do we …

Podcasts Worth a Listen

Leukodystrophy Podcasts

Podcasts Worth a Listen