Spotlight Lipedema focuses on bringing together people, mostly but not exclusively women, living with lipedema and lipo-lymphedema. We will share stories, what has helped and what has aggravated our lipedema. Spotlight Lipedema will also feature some lipedema and lymphedema experts from the community to help us learn more about current management techniques and what is happening with lipedema research.
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Manual Lymphatic Drainage Podcasts
Rehabilitation Oncology is an indexed resource for the dissemination of peer-reviewed research-based evidence related to oncologic physical therapy and cancer rehabilitation. The journal provides a forum for scientific and professional exchange among researchers and practitioners throughout the world. The journal serves as the official journal for the Academy of Oncologic Physical Therapy. High standards of quality are maintained through a rigorous, double-blinded peer-review process and adh ...
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Ask the Authors: Efficacy of Manual Lymphatic Drainage: An Estimation of the Truth Culled From the Literature
55:29
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55:29On this special Ask the Authors episode, Drs. David Doubblestein and Linda Koehler join us to discuss the non-manual lymphatic drainage narrative, why it’s never been about the volume, and the evidence supporting MLD as a critical component of complete decongestive therapy for lymphedema. Don’t throw MLD out with the volume!…
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Agreement of Breast Cancer-Related Lymphedema Diagnosis Across Commonly Utilized Diagnostic Criteria: A Cross-Sectional Observational Cohort Study
34:08
34:08
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34:08On this episode, physical therapist Cheryl Brunelle joins us to discuss her study, partially supported by the Foundation for Physical Therapy Research, in which she and her team analyzed agreement between commonly used breast cancer-related lymphedema diagnostic thresholds.By Rehabilitation Oncology Journal
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Acute Effects of Videoconference-Delivered Exercise Sessions on Energy and Fatigue in Individuals Surviving Cancer
23:04
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23:04On this episode, Emma Gomes, a PhD student in the Physical Activity for Treatment and Prevention Lab at Colorado State University, joins us to discuss her team’s investigation of the immediate effects of videoconference exercise sessions on fatigue and energy among survivors of cancer.By Rehabilitation Oncology Journal
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Ask the Authors: Using the Rehabilitation Treatment Specification System to Describe Experimental and Control Arms of a Clinical Trial for Breast Cancer Survivors
55:08
55:08
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55:08On this special Ask the Authors episode, Dr. Kathy Lyons and Dr. Jarrad Van Stan join us to discuss the Rehabilitation Treatment Specification System and their article from the October issue of Rehab Onc. We’ll discuss how intentional and transparent reporting of cancer rehabilitation interventions can help advance our field with implications for b…
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Factors Related to Rehabilitation Adherence in Pediatric Cancer: A Systematic Review
31:51
31:51
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31:51On this episode, Dr. Lynn Tanner joins us to discuss her team’s systematic review investigating factors related to rehabilitation adherence in pediatric cancer. Dr. Tanner discusses why adherence is a critical measure for rehabilitation research and clinical practice for both pediatric and adult populations, including challenges and opportunities t…
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Melanoma and People of Color: The Role of Physical Therapists
40:34
40:34
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40:34On this episode, Dr. Michael Robinson joins us to discuss his recent perspective piece detailing a striking healthcare disparity that exists regarding melanoma detection among people of color. Although non-Hispanic White individuals are diagnosed with melanoma at 30x the rate of Black individuals, Black individuals die from melanoma at nearly 9x th…
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Breast Cancer-Related Lymphedema Education: A Clinical Framework Across Survivorship
32:43
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32:43On this episode, Dr. Marisa Perdomo joins us to discuss the framework her team developed for breast cancer-related lymphedema education across the survivorship continuum. Dr. Perdomo discusses key components of BCRL education including what needs to be taught, who should be teaching it, and considerations for when in the continuum may be the best t…
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Assessment of Rehabilitation Practices During Hematopoietic Stem Cell Transplantation in the United States: A Survey
30:08
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30:08On this episode, Dr. Victor Leite of Sao Paolo, Brazil, joins us to discuss the results of his team’s survey assessing rehabilitation practices during hematopoietic stem cell transplantation at major cancer centers in the United States. Dr. Leite discusses results including how patients are referred to rehabilitation services, how outcomes are obje…
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Ask the Authors Special Issue: Exercise in Oncology Rehabilitation
59:34
59:34
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59:34This special episode accompanies the January 2024 issue of Rehabilitation Oncology; a special issue focusing on exercise in oncology rehabilitation. On this episode, special issue guest editor, Dr. Steve Morris, joins us to discuss the current state of exercise oncology and the far-reaching implications of the articles within this impactful issue.…
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Improvements in Objective and Patient-Reported Measures of Physical Function Following an 8-week Exercise Oncology Program
28:09
28:09
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28:09This episode accompanies the January 2024 issue of Rehabilitation Oncology; a special issue focusing on physical activity in the context of oncology rehabilitation. On this episode, Alexander Brooks, a PhD Candidate from the Exercise Oncology Laboratory in the Arnold School of Public Health at the University of South Carolina discusses his study wh…
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Ask the Authors: The Psychological and Biological Benefits of Mind-Body Therapy Interventions for Informal Caregivers of Individuals With Cancer: A Systematic Review
41:15
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41:15On this special Ask the Authors episode of the Rehabilitation Oncology Podcast, Drs. Gabriele Moriello and Kristina Kuil discuss their systematic review of randomized controlled trials assessing mind-body therapy interventions for informal caregivers of individuals with cancer.By Rehabilitation Oncology Journal
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Peer Support Physical Activity Interventions for Survivors of Cancer: A Scoping Review
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24:45
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24:45On this episode of the Rehabilitation Oncology Podcast, Dr. Jenna Smitch-Turchyn discusses social support and its role in physical activity for individuals living beyond a cancer diagnosis. We take a deeper dive into Dr. Smith-Turchyn's scoping review which examined the literature regarding the use, parameters, matching characteristics, and effecti…
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Ask the Authors: Facilitators and Barriers to the Use of Outcome Measures by Certified Lymphedema Therapists
54:23
54:23
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54:23On this special Ask the Authors episode of the Rehabilitation Oncology Podcast, Drs. David Doubblestein and Bryan Spinelli discuss the use of outcome measures among certified lymphedema therapists and the importance of selecting outcome measures to comprehensively assess all domains of an individual’s function.…
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Improving evidence-based methods of characterizing shoulder-related quality of life for breast cancer survivors
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23:20On this episode of the Rehabilitation Oncology Podcast, Drs. Clark Dickerson and Jacquelyn Maciukiewicz discuss how they examined specific factors that differentiate groups of breast cancer survivors and how those factors may influence shoulder function after treatment for breast cancer.By Rehabilitation Oncology Journal
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Ask the Authors: Disparities in Cancer Survivorship: From Global Impact to Individual Responsibility
53:28
53:28
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53:28In this special episode of the Rehabilitation Oncology Podcast, we present our first ever ‘Ask the Authors’ panel discussion. Authors Mallory Mark, Janae Finley, and Jill Binkley discuss the motivation behind their timely article and lead a discussion on the current landscape of disparities in cancer survivorship care as well as the individual resp…
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Weekly Telephone Call Impacts Outcomes of an Individualized Home Exercise Program in People Recovering From Cancer
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32:55
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32:55In this episode of the Rehabilitation Oncology Podcast, Drs. Jill Mayer and Kayleigh Plumeau discuss the impact of weekly phone calls, made by a physical therapist, on outcomes (e.g., physical function, quality of life, fatigue) and home exercise program adherence for survivors of cancer early in their recovery.…
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Clinical Characteristics and Implications of Indocyanine Green Lymphography-Identified Contralateral Inguinal Pathway of Lower-Limb Lymphedema
29:03
29:03
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29:03Host Dr. Steve Morris speaks with study lead investigator Helen Mackie about her important findings related to compensatory lymphatic drainage in lower extremity lymphedema, particularly among those with a history of cancer. The findings of this study suggest support for manual lymph drainage to move lymph to the contralateral inguinal drainage reg…
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Screening and Assessment of Cancer-Related Fatigue: An Executive Summary and Road Map for Clinical Implementation
25:48
25:48
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25:48Joy Cohn, PT, provides insights into the newest APTA Oncology clinical practice guideline for screening and assessing cancer-related fatigue. Valuable information on which tools are best to use and how to implement the clinical practice guideline are discussed with podcast host, Dr. Stephen Morris.By Rehabilitation Oncology Journal
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Increased Fatigability in Women with Persistent Cancer-Related Fatigue After Breast Cancer Treatment: A Pilot Study
33:19
33:19
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33:19Dr. Lisa Wood Magee and Dr. Stephen Wechsler present exciting findings about how cancer-related fatigue can result in physical impairments among those treated for cancer, and the need to address this through exercise aimed at large muscle groups of the lower extremity.By Rehabilitation Oncology Journal
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Episode 15 - CurvyGirlBeth - Pt. 2 with Beth Rylaarsdam
1:00:47
1:00:47
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1:00:47It's finally out! Episode 15 of the Spotlight Lipedema is out - featuringPart 2 of my interview with Beth Rylaarsdam. This was a great conversation about how CurvyGirlBeth made her debut. We talk about how lipedema ladies tend to hide from picture or hide themselves and their legs in pictures and why Beth thinks that needs to change. How do we shar…
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High-Intensity Interval Training for Reducing Cancer-Related Fatigue in Survivors of Cancer: Challenges and Solutions for Translation and Implementation in Cancer Rehabilitation
30:01
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30:01Dr. Mary Hidde discusses the role of high intensity interval training for reducing cancer-related fatigue with an emphasis on moving evidence into clinical practice.By Rehabilitation Oncology Journal
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Professional Roles of Oncologic Specialty Physical Therapists in the United States
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36:13In this Rehabilitation Oncology Podcast episode, Dr. Steve Morris interviews author and researcher Dr. Nicole Stout about oncology physical therapy specialty practice. Dr. Stout outlines the expectations for future clinical specialists and presents a call to action to the rehabilitation team to utilize oncology clinical specialists beyond clinical …
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Episode 14 - Talking Lipedema with Beth Rylaarsdam (CurvyGirlBeth)- Part 1
40:38
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40:38It's finally out! Episode 14 of the Spotlight Lipedema is out - featuring Beth Rylersdaam - Curvy Girl Beth. It was a great conversation - so good that we just kept chatting. So here's Part 1 of our conversation all about Beth's Lipedema discovery and what she's done to manage it. Stay tuned for Pt. 2 where Beth talks about how she became Curvy Gir…
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Depression Moderates Physical Functioning Over Time in Survivors of Cancer
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25:55
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25:55Podcast Editor Dr. Stephen Morris leads a discussion with Dr. Patricia Bamonti about her work investigating the role depression plays in moderating physical functional levels among individuals diagnosed with cancer. The discrepancy between self-reported physical function and objective physical performance measures is also discussed. The authors con…
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The Lipedema Foundation - Focusing on Lipedema Research with Dr. Guy Eakin - Episode 13
57:14
57:14
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57:14This episode is a bit different than what we've done before. I had the chance to speak with Dr. Guy Eakin, the Chief Science Officer of The Lipedema Foundation. Dr. Eakin provides some background on the Foundation and the work they are doing to provide funding for lipedema research. In our conversation, we learn a bit about the main areas of resear…
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Peace and Self-Care - A Chat with Nita Clewis - Episode 12
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54:12
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54:12It's June and that means it's Lipedema Awareness Month. I hope that you will be taking advantage of all the events that will be occurring online to educate us and the general public about lipedema. There's too much for me to list here, but you can use these links for information on these events: From Lipedema Simplified: Lipedema Awareness Month We…
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Association of Outpatient Cancer Rehabilitation With Patient-Reported Outcomes and Performance-Based Measures of Function
26:04
26:04
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26:04Dr. Mackenzi Pergolotti answers questions posed by Podcast Editor Dr. Stephen Morris about her work examining the effect of community-based rehabilitation on patient-reported outcomes and physical functioning. This work highlights the importance of cancer rehabilitation for those treated for cancer, and how rehabilitation improves function and over…
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The Spotlight Lipedema Podcast is back for a quick episode to catch up with what's been going on and to let you know that we're still here - Getting ready for Lipedema Awareness Month in June. Intro Music "Walk in the Park," Closing Music "In the Field," courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php…
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Translating Evidence into Practice through Knowledge Implementation
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24:14This episode features a discussion between the authors and Rehabilitation Oncology highlighting the importance of moving evidence into clinical practice through implementation science frameworks. The Knowledge-to-Action (KTA) and Consolidated Framework for Implementation Research (CFIR) provide guidance on how clinicians can make changes in practic…
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Lipedema, Lymphatics and Eating Keto with Dr. Leslyn Keith - Episode 10
1:01:32
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1:01:32Well, this was a jam-packed episode! I had the chance to talk (and kind of geek out) about some of the science behind lipedema and the lymphatic system with Leslyn Keith. One of the things you realize when you have lipedema is that there is a lot to learn about adipose tissue, the lymphatic system, and how to manage lipedema and lipo-lymphedema. I …
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F*Lipedema! A Chat with Lipedema Blogger Carol Nogueira - Episode 9
44:53
44:53
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44:53In the lipedema world, Carol Nogueira is lucky to be one of the ones to discover her lipedema when she was still at stage one. That doesn't mean that discovery was without its challenges. We also talk about how it can be overwhelming to get this diagnosis and how it becomes part of our identity. Carol also talks about how she figured out that she h…
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Global Lipoedema Awareness - Talking About Surgery with Maria Kokkinou Boege -Episode 8
47:35
47:35
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47:35Today we talk about surgery. Are you thinking about liposuction for your lipedema / lipoedema? Does the thought make you nervous that you don't know everything you need to know. My conversation with Maria Kokkinou Boege may give you some peace. We start off talking about Maria's lipoedema journey, then move on to the fabulous Facebook group she has…
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A Lipedema Conversation with Selena Chronister - Episode 7
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36:57
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36:57Well, this episode took some time coming. Technical issues and a injury to my arm made getting it together a bit of a challenge, but hey, we finally got it done. In this episode, we talk briefly about June being Lipedema Awareness Month, then move on to my conversation with Selena Chronister. She may be familiar to you if you have visited her YouTu…
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Lipedema, Grief and Coronavirus Days - Episode 6
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41:50Well, this episode was long in coming out. Sorry for the delay. I have to admit, I've been pretty focused on the news about the coronavirus, and that slowed down the process a bit, but I'm back on track now. This project may sound a little be choppier than normal because it is the first one I've done mostly by myself, with some assistance from my w…
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Inflammation - The Scourge of Lipedema - Episode 5
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21:50This Episode was long in coming. It took me a bit of time to figure out exactly how to address the topic of inflammation. I was inspired by a particularly bad bout with inflammation and thought that I really needed to be more mindful of what triggers it for me - and STOP DOING THAT! I'm sure I'm not alone. Of course there were other things that wou…
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Lipedema Fitness - A Chat with Pattie Cornute - Episode 4
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44:28
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44:28Shownotes: I am really excited about this episode of the Spotlight Lipedema Podcast. This month I'm sharing my conversation with Pattie Cornute, the founder of the Lipedema Fitness Facebook Group and the website/blog Lipedema Fitness. You are going to want to listen to this inspirational story of how Pattie went from struggling with the challenges …
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Lori Chats with Lipedema Sister Mariam Aladdin - Episode 3
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37:41Happy New Year! I am really excited start of 2020 by sharing this episode with you. In Episode 3 of the Spotlight Lipedema Podcast, I got the chance to chat with fellow Lipedema Sister Mariam Aladdin. Miriam shared her lipedema story and provided some great insights for people that have just gotten diagnosed. Miriam also shares what she does to hel…
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It's Not Obesity, It's Lipedema - Episode 2
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23:52Well, we finally got episode two completed. This one brought some technical issues to slow its release a bit, but we finally got something together to release. It's not perfect, but we learn as we go. Not to mention a mouth that didn't want to get all the words out the way I wanted, but hey, it happens. So, on the second episode, we look at what th…
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An Interprofessional End-of-Life Simulation to Improve Knowledge and Attitudes of End-of-Life Care Among Nursing and Physical Therapy Students
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12:04This episode discusses a quasi-experimental repeated pre-post design to evaluate attitudes, awareness and behaviors of nursing and physical therapy students during a simulated end of Life experience.By Rehabilitation Oncology Journal
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Lori's Story and What is Lipedema - Episode 1
21:38
21:38
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21:38Welcome to the debut episode of the Spotlight Lipedema Podcast. I can't describe how excited I am to get this podcast finally started. It has been long in the making. I've been rolling ideas around in my head for well over a year, but finally got things together, and with the help of my wonderful producer Chris Duckett, was able to get this episode…
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Welcome to the debut episode of the Spotlight Lipedema Podcast. I can't describe how excited I am to get this podcast finally started. It has been long in the making. I've been rolling ideas around in my head for well over a year, but finally got things together, and with the help of my wonderful producer Chris Duckett, was able to get this podcast…
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An Executive Summary of Reports from an International Multidisciplinary Roundtable on Exercise and Cancer: Evidence, Guidelines, and Implementation
19:47
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19:47This episode discusses an Executive Summary of Reports from an International Multidisciplinary Roundtable on Exercise and Cancer: Evidence, Guidelines, and Implementation.By Rehabilitation Oncology Journal
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The Influence of Cognitive Function on Balance, Mobility, and Falls in Older Cancer Survivor
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6:40This episode discusses a prospective observational study of community dwelling people 50 years of age or greater in the United States with a history of cancer using data from the Health and Retirement Study. The purpose of this study was to examine associations between cognitive function, gait speed, balance, and falls in older cancer survivors. Re…
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Chronic Pain Mitigation and Opioid Weaning at a Multidisciplinary AIDS Clinic: A Case Report
7:27
7:27
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7:27This case report examined the effect of a 24-session PT intervention aimed at decreasing chronic pain and opioid weaning for a 64-year-old patient at a multidisciplinary AIDS clinic in Atlanta, Georgia. The PT intervention focused on pain mitigation, utilizing using pain-relief techniques such as a home TENS unit, home stretching regimen, diaphragm…
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Who Is the Best Exercise Professional to Provide an Exercise Training Programs in an Oncology Rehabilitation Setting—It Depends!
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8:35No description availableBy Rehabilitation Oncology Journal
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Behavioral Change Strategies to Improve Physical Activity After Cancer Treatment
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5:23Behavioral Change Strategies to Improve Physical Activity After Cancer TreatmentBy Rehabilitation Oncology Journal
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“Physical Therapy based interventions improve balance, function, symptoms and quality of life in patients with chemotherapy induced peripheral neuropathy: a systematic review”
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10:51This systematic review reports latest evidence related to physical therapy based interventions in patients with cancer diagnoses who experience chemotherapy induced peripheral neuropathy. Treatment approaches included closed chain lower extremity strengthening, interactive, sensor based balance training, and strength and endurance training. There w…
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Self-care in female cancer survivors with secondary lymphedema-characteristics to perform self-care
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11:04This episode presents predictors for performing self-care in females with secondary lymphedema.Factors as low well-being, body-image, near relations, quality of sleep, difficulty to accept having lymphedema and other ethnicities than national seems to be important. Many of the women perform self-care but still many of them does not think that it he…
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Understanding the development and use of clinical practice guidelines
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14:05This episode discusses the development of a clinical practice guideline as an introduction to the CPG on diagnosing secondary upper quadrant lymphedema due to cancer that has been developed for the Oncology section of the APTA. The important psychometric properties of diagnostic tests are reviewed and the quality ratings of the evidence are discuss…
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Diagnosis of Upper Quadrant Lymphedema Secondary to Cancer: Clinical Practice Guideline from the Oncology Section of the American Physical Therapy Association
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13:47This episode discusses the recommendations from the Clinical Practice Guideline (CPG) on diagnosing secondary upper quadrant lymphedema due to cancer. Based on the evidence in the CPG there is no one diagnostic tool that can be used definitively to diagnose SUQL, but using these recommendations can facilitate early identification and should lead to…
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