Living with ME/CFS and Long Covid and other Chronic Illness or Disability. Follow me while I explore the challenges, the suffering, the darkness and the light while living with a chronic illness or disability. Along the way I will share insights into how I survive, how I struggle, and how I STAY ALIVE. ❤️
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The Podcast
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The Podcast by and for Long Covid sufferers. Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer. Although there is currently no "cure" for Long Covid, and the millions of people still ill have been searching for answers for a long time, in this podcast I hope to explo ...
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The Millennial Scoop is the ongoing assimilation of Indigenous children and youth through the Canadian government’s child welfare systems. Natasha is a Millennial Scoop survivor from Manitoba’s Child Welfare System. This is her story.
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Providing the latest information from the world of ME/CFS
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Emotional Wealth is an American video, podcast, and Blog hosted by Wealth Advisor, Lon W. Broske, CFS®, CFP®. Using the current most relevant financial climate and topics, Lon is able to give his opinion on what is really going on with your finances. Topics include stock market performance, retirement savings, current events and how they impact the financial climate, general financial education and tips, and much more! Investing involves risk. Loss, including loss of principal, may occur. No ...
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Dan Neuffer author of CFS Unravelled and creator of the ANS REWIRE recovery program shares his knowledge on healing and recovery from ME, CFS, Fibromyalgia, POTS & MCS. Episodes include discussions as well as interviews with recovered patients and expert practitioners. **MEDICAL DISCLAIMER**: Dan Neuffer, CFS Unravelled or ANS REWIRE do not provide medical advice, and the information available in this video does not offer a diagnosis or medical advice of any kind. The content are opinions an ...
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Chocolate, no joke, makes me feel better than all of my huge box of supplements combined. That is, in the short term. In other words, the meds and supplements I’m taking are I’m *sure* helping me more than chocolate in a more long term sense, but chocolate… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research…
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172 - Jo Thomas - Overcoming the Curse of "Recovery Perfection"
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50:06Recovery doesn't have to be perfect to be effective, and sometimes the very quest for perfect recovery can keep us stuck in our healing journey. Jo Thomas shares her personal experience with overcoming POTS and chronic fatigue, highlighting how shifting mindsets and letting go of perfectionism accelerated her healing process. • Jo's recovery journe…
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171 - Light Switch Recovery: Aaron's Story of When Reinfection Leads to Healing
50:53
50:53
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50:53Aaron West shares his remarkable two-and-a-half-year journey with Long COVID and his unexpected path to recovery. From being a highly athletic cyclist who once rode across South Carolina in a single day to becoming bedbound with debilitating symptoms, his story demonstrates that recovery is possible—sometimes in the most unexpected ways. • Previous…
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170 - Amy Mooney - "Flipping the Iceberg" - What if everything you thought about recovery is underwater?
51:05
51:05
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51:05Amy Mooney shares her unique perspective as both an occupational therapist and caregiver to her daughter with ME-CFS, revealing essential insights about rest, recovery, and meaningful approaches to chronic illness management. • 25 years of occupational therapy experience transformed by caring for her daughter with ME-CFS for the past decade • Learn…
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I often say this to healthy muggles: Close your eyes and picture all of the things you do in your life…Now imagine removing 99.7% of those things… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print StoreBy Whitney Dafoe
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169 - The Roots Below: Five Essential Themes for Long Covid Recovery
24:14
24:14
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24:14Jackie explores recovery themes in today's episode, as she identifies five key themes that emerge across different healing journeys: consistency in daily practices, mindset that fosters healing, understanding what's happening in your body, building personal strategies, and creating a healing environment. • Consistency means showing up daily for pra…
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168 - The Rebound Method - Rachael shares how to safely start to move your body!
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51:57
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51:57Rachael's inspiring journey through long COVID showcases the resilience of the human spirit in the face of ongoing symptoms and challenges. The episode delves into her unique recovery strategies, including her tailored exercise protocols designed specifically for individuals battling long COVID, emphasising the importance of consistency, adaptabili…
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167 - Reclaiming Health and Hope with Dr. Teitelbaum
49:03
49:03
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49:03We explore the complexities of long COVID and the energy crisis it creates in the body, with Dr Jacob Teitelbaum sharing insights from his own struggles and professional experience. Listeners will find practical advice on mindset, nutrition, and treatment options essential for recovery. • Discussion on the energy crisis and its impact on health • O…
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I want to announce my new Print Store! I have been working on putting this store together for 2 years now…The images were all taken before I became severe with ME/CFS in 2013…So it is a sort of parallel dimension time capsule of what could have been with my life. I want to share these images and possibly prints of these images with all of you! ❤️ ✏…
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166 - "I'm Not Broken": Finding a New Perspective on Illness with Rebecca Tolin
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50:31Rebecca Tolin shares her transformative journey from chronic illness to recovery and self-discovery. Her insights into the mind-body connection, the impact of trauma on health, and the importance of self-compassion offer listeners a path toward healing. • Introduction to Rebecca's journey with ME/CFS • The effect trauma has on physical health • Sea…
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Memories tearing like tissue paper, Of all the dreams, I thought might be made real, Tearing into pieces so small, They float away, Into the forever night of ME/CFS… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print StoreBy Whitney Dafoe
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165 - Overcoming Long COVID: Lizzie's Journey to Recovery and Resilience
53:50
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53:50Lizzie shares her heartfelt journey through Long COVID, detailing the challenges she faced as well as the strategies that eventually led her to recovery. By embracing the importance of rest, celebrating small victories, and gaining knowledge about her condition, she transformed her approach to health and wellness. • Lizzie's active life before cont…
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I Started Eating Food Again in 2024...What Will 2025 Bring?
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10:04I started eating real food again in 2024!...I have now stopped the Peptamen food formula completely, and get all my calories from real food!...It has come time that I feel stable enough with this new change that I feel comfortable telling you all. And I want to tell you because I want you to hear this story! ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My …
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Will you take the 2025 ME/CFS Valentine’s Day Challenge and reach out to 2 people you love and tell them you love them and why? …You will make their day. And if we all do this, it will have a ripple effect and reach through the ME/CFS community and none of us will feel alone or unloved today. ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS R…
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Letter to my Fingernails from my Nervous System
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1:38
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1:38Psssst! Hey fingernails! Didn’t you get the memo? What are you doing growing so fast like that, not to mention those perfect cuticles! We are in total body shut down mode here, you’re not supposed to be doing anything right. [Trigger Warning: This post is a joke] ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Re…
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164 - The Art of Listening & Validating in Healthcare with Clayton Powers
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1:01:31Discover the transformative journey of Clayton Powers, a dedicated doctor of physical therapy who transitioned from orthopedic and musculoskeletal issues to specializing in complex conditions like ME/CFS, PoTS, and Long Covid. Clayton's PoTS rehabilitation showcases continuous learning and collaboration with experts. Telehealth is vital for Long Co…
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E26: Snippet - Goal Setting When Chronically Ill: Get Real or Get Going?
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25:31How can you set realistic and motivating goals when dealing with chronic illnesses such as ME CFS, fibromyalgia, POTS, MCS, post-viral fatigue syndrome, and long COVID? I explain why it’s so important to re-engage with making goals and how to deal with the difficulties around goal setting whilst chronically ill. We explores the challenges and multi…
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163 - Immune Boosting Strategies for Chronic Illness with Carrie Bailey part 2
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49:20
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49:20Long Covid recovery can be significantly influenced by personalised nutrition and the right supplement regimen. Carrie Bailey shares essential insights into the importance of B vitamins, Vitamin C, zinc, and herbs in supporting the immune system and overall health recovery, emphasising bio-individuality and the need for tailored approaches. • Carri…
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162 - The Interconnected Body: Functional Nutrition & Healing with Carrie Bailey - part 1
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47:50
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47:50Exploring the connections between gut health and long COVID, we discuss how nutrition can significantly impact recovery. With insights from Carrie Bailey, a functional nutritionist, we cover topics such as mental health, pathogen influence, optimal diets, and the importance of digestion in healing. • Discussion on Carrie's health journey and challe…
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E25: Snippet - 7 Strategies to Stay Persistent and Achieve Your Goals with Chronic Illness
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13:27
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13:27This video discusses seven essential strategies to help you with chronic illnesses like ME/CFS, Fibromyalgia, PVFS (Long-Covid), POTS, MCS or related illness stay persistent in your recovery efforts and improve your overall quality of life. Dan Neuffer, author of 'CFS Unravelled' and creator of the ANS REWIRE recovery program, shares practical tips…
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My bloodwork never matches how I feel. Treatments don't work or make me worse. I am constantly dumping energy into seeking new treatments that likely won't work. This system has failed us... ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print Store…
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161 - Dr. Raymond Perrin on Pathways to Recovery - part 2
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18:39Long COVID presents a multi-faceted challenge that requires a comprehensive approach for effective treatment. Dr Raymond Perrin explores how lymphatic drainage through his unique technique can help alleviate symptoms and support long-term recovery. This is part 2 of this conversation - hear part 1 HERE • Understanding the significance of the lympha…
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Ron Davis's message of hope for 2025 and plea for help
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3:13I think of you all every day as I work to untangle the complex molecular basis of this horrific disease…I am very optimistic that soon the major mechanisms that initiate the disease will be found. This will allow a concerted effort to reverse the process and find a cure… Link to Fundraiser ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Reso…
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160 - Dr. Raymond Perrin Breakthroughs in the Lymphatic System - part 1
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40:16This enlightening episode features Dr. Raymond Perrin as he discusses the intricate connections between the sympathetic nervous system and chronic conditions like Long Covid and ME-CFS. With his unique Perrin Technique, he highlights the importance of understanding the body's drainage systems to promote healing and recovery. • Introduction of Dr. R…
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Whatever you’re celebrating this holiday season, so many of us will be lonely…It’s important when we have lost something to not just focus on what we have lost, but also remember what we still have. This is the way we can survive anything. ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print Store…
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If we head into the Holidays with no plan and expect to "feel our way" through it safely, we will likely be in for a deathly surprise crash that could be devastating…So we need to make a plan ahead of time for how we will use our energy during the holidays…and stick to it… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to…
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159 - Jackie's 2024 Reflections - Journey to self-worth & inner peace
11:28
11:28
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11:28Have you ever found that life’s greatest lessons often come when we least expect them? Join me on a journey of introspection and creativity as I uncover the hidden gifts of spontaneity and presence, especially in the face of challenges like long COVID. The delicate balance between meticulous planning and letting life unfold naturally, insights into…
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A great example of how our health care system fails chronically sick people: My Jtube clogged... A Jtube breaking or clogging is an emergency - it means a person cannot eat or take meds. You would not even leave a dog stuck in a house with no food or water. ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research…
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158 - Creativity 2024: Transformative Stories of Resilience and Connection Through Art
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41:23Discover the power of art through stories of creative expression while navigating Long COVID & ME/CFS. Anna finds clarity through free-flow writing & Emma's journey with poetry & digital painting offers hope amid adversity, highlighting how art can foster resilience & personal growth Olga's online "hibernation sessions" forge community bonds even i…
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157 - Ellen Alden's Recovery: Navigating Long Covid and Finding Resilience
40:22
40:22
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40:22What happens when your lively world comes to a sudden standstill? Ellen Alden takes us on an emotional & enlightening journey through her experience with Long Covid. Once filled with exercise, creative writing, and community involvement, Ellen's active lifestyle faced a challenging pause after a family gathering left her with lingering symptoms. Sh…
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156 - Nadyne McKie - Empowering Caregivers and Children Through Compassion and Play
53:57
53:57
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53:57When Nadyne McKie, a psychotherapist and yoga therapist, first faced the challenges of Long COVID with her own child, it was a journey that reshaped her understanding of care. Join us as she shares not only her professional insights but also her personal story, offering a unique perspective on the emotional burdens carried by families navigating th…
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There are a million things I will never do again. They just keep adding up as the years go by. And as the people around me age, the opportunities for life experiences I have lost add up too…Someday I will be a part of it again. For now, I hibernate with the rest of you… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME…
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155 - Nadyne McKie - Embracing Kindness on the Healing Journey
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48:27
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48:27Have you ever felt the weight of an unexpected life challenge shift your entire perspective? Join me & Nadyne McKie, who combines her unique blend of psychotherapy, yoga therapy, and breathing coaching to guide those navigating the turbulent waters of Long Covid. Nadyne opens up about her personal journey; how her own experiences & those of her chi…
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154 - Sean Moran's Healing Journey from Chronic Fatigue
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44:17
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44:17Join us as we hear from Sean Moran, who opens up about his relentless battle with chronic fatigue syndrome since 2012. Dive deep into Sean's world of endless trials ranging from vitamin C intravenous therapy to unconventional methods like acupuncture and homeopathy. His story is one of unwavering hope and resilience, steering him through years of h…
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153 - Dr Amir Hadanny - Hyperbaric Solutions to Long Covid Challenges
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51:45
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51:45What if you could harness the power of oxygen to heal the brain? Uncover the potential of hyperbaric oxygen therapy (HBOT) with Dr. Amir Haddany, a leading neurosurgeon and hyperbaric medicine expert. Dr. Haddany takes us through his research since 2008, sharing how HBOT is transforming treatment for neurological conditions like traumatic brain inj…
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152 - Jenny Adams - Embracing Self-Compassion: Navigating ADHD, Perfectionism, and Chronic Illness
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54:34
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54:34Ever wondered how the traits of ADHD intersect with perfectionism & chronic illness? Jenny Adams returns to offer insights into the intricate dance between trauma, perfectionism, & health challenges. We unravel how ADHD manifests uniquely in women & discuss the crucial need to recognize these traits to better support those managing chronic illnesse…
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I need to speak to a disgusting and ignorant post by someone on X/Twitter...No one with ME/CFS or Long Covid should EVER feel embarrassed by how they look or how they have to live their life, and no one with ME/CFS or Long Covid should EVER feel like they need to hide what they look like or what their life is like from the public. Fundraiser Link: …
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My 41st Birthday Fundraiser for Ronald W. Davis PhD's ME/CFS Research!
2:34
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2:34Hi everyone, I’m doing another fundraiser for Ronald W. Davis PhD.’s ME/CFS research for my 41st birthday! http://spot.fund/FindACureForMEcfs …Since 2020 we have raised $184,000 for Ron’s research solely from my birthday fundraisers! This is incredible and only possible because of all of you…Let’s all come together and get Ron the supplies he needs…
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151 - Dr. Lydia Knutson's Chiropractic Approach to Long Covid
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57:59
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57:59What if a gentle touch could ignite your body's natural healing abilities? Join us as we sit down with Dr. Lydia Knutson, a pioneer in chiropractic care, to uncover the secrets of her Axial Stability Method (ASM) which marries low-force chiropractic techniques with Eastern energy medicine, offering new hope to those suffering from long COVID and ot…
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Could recognizing stress, perfectionism, and a relentless work ethic have unknowingly contributed to my journey with Long Covid? This episode, inspired by a listener's question, takes you through my personal exploration of self-blame and recovery, emphasizing the importance of acknowledging lifestyle factors that play into our health. We'll uncover…
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149 - Resilience and Recovery: Dr. Eleanor Stein on Navigating Chronic Illness and Long Covid
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1:00:34
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1:00:34Dr. Eleanor Stein's journey is one of resilience and transformation and her story is both personal and powerful. Dr. Stein shares how her experiences have shaped her approach to patient care and education. Her insights into societal myths around illness & recovery offer a refreshing perspective, especially for those navigating the complexities of l…
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It says a lot about the unique and widely misunderstood challenges that ME/CFS and Long Covid patients face that there could not be an ME/CFS Olympics. Because if we tried to compete and push the physical limits of our bodies like that, all the winners would simply be dead… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate t…
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148 - Dan Neuffer - Balance, Resilience & how we can prioritise recovery
45:34
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45:34Episode 148 of the Long Covid Podcast is the second in this two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously. In this episode we dive into What does recov…
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147 - Dan Neuffer - How can we build & ensure resilience in our recoveries?
48:47
48:47
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48:47Episode 147 of the Long Covid Podcast is the first of a two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously. In this episode we dive into How is recovery pos…
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E24: Snippet - Beyond Knowledge: Unlocking Recovery Progress for ME/CFS, Fibromyalgia, POTS, MCS, PVFS or long-covid
13:31
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13:31In over a decade of helping people recover, I have found that whilst knowledge can be key, often other factors are more important. In this video, we delve into why knowledge alone isn't enough for recovery from chronic illness like ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid). We uncover potential missing pieces in your journey. Discover w…
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No one ever sees the world of color that lives inside of me because the black void doesn’t let it out. I feel it, smell it, taste it. I exist there in every moment of my life. But the only thing anyone ever sees are the bits of dust of a broken down machine…When the world of color and light shines, this second world coughs and flounders and lays do…
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146 - Dr Becca Kennedy - Chronic Pain & Fatigue Doctor
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52:07In episode 146 I speak to the fabulous Dr. Becca Kennedy, a family medicine physician, who discusses her approach to treating chronic pain and fatigue using evidence-based neuroscience. She emphasizes the mind-body connection, explaining that many medically unexplained symptoms are due to brain signaling rather than structural damage. Kennedy highl…
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Getting through bad days with ME/CFS, Long Covid, chronic illness, or disability. ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS Research 🖼️ My Print StoreBy Whitney Dafoe
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Join us in this transformative episode as Lynne, an experienced nurse, bravely shares her journey to recovery from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). As a medical professional, she had been skeptical about the validity of ME/CFS diagnoses. However, Lynne's perspective shifted dramatically after facing years of debilitating…
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Episode 145 of the Long Covid Podcast is a chat with Jenny Adams who is here to share her recovery story! We chat through her illness, the things that helped her and the lessons she has learned. We also discuss the work Jenny is doing now, and the links to work with her are below. Free workshop sign up: https://jenny-adams-f409.mykajabi.com/moreene…
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