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Michael J Fox Foundation For Parkinsons Research Podcasts

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The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation for Parkinson’s Research

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Subscribe for coverage and analysis of current neurology/brain research, patient and caregiver profiles, drug development strategy, pioneering nonprofit management and other topics of interest in a wide-ranging series of conversations that include the voices of those affected by Parkinson's as well as clinicians.
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The Parkinson’s Research Podcast: New Discoveries in Neuroscience

The Michael J. Fox Foundation for Parkinson’s Research

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In this podcast, The Michael J. Fox Foundation for Parkinson’s Research brings you right to the cutting edge of neuroscience to discuss the latest discoveries in the field of neuroscience, with a focus on Parkinson’s disease (PD). We are working at the forefront of PD research to accelerate scientific breakthroughs by providing funding opportunities, tools and resources to develop new treatments, find cures and improve quality of life for people living with Parkinson’s disease. If you’re a s ...
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As peer-to-peer fundraising professionals, we are inherently passionate people. Passionate about our missions, our fundraisers, our events, and our campaigns. We barely shy away from sharing our opinions. Whether it's the debate between back-to-basics, or searching for the next big idea, the battle of retention versus recruitment, or even our very strong feelings about T-shirts and registration fees. Welcome to The P2P box, a brand new podcast that amplifies the voices of our peer-to-peer fu ...
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This podcast is dedicated to the millions of family caregivers who want wellness tips and self-care solutions, who seek expert advice, and who want news about healthy aging on how to fuel our bodies and brains, and how to bring wellness design into our forever homes.
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In P2P fundraising, there can often be a disconnect between the excitement marketing generates and the direct recruitment strategies implemented by local field teams. The result? Frustrated participants, overwhelmed staff and missed opportunities to achieve participation goals and build lasting relationships with supporters. But what if marketing a…
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Life with Parkinson’s disease (PD) is shaped by myriad factors, including sexual orientation and gender identity that shape access to care, lifestyle decisions and more. In this episode of The Michael J. Fox Foundation’s Parkinson’s Podcast, our expert panel shares their personal stories and discusses the ongoing research into the health concerns a…
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Marketers love to throw around terms like “share of voice” and “share of wallet” - ways to track how much attention or spending a brand commands. But in peer-to-peer fundraising, there’s a different kind of share that matters more. Growing your “share of community” is about going deeper with the people closest to your cause - the ones who feel seen…
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The beliefs and perceptions that friends, family, employers and even strangers hold about Parkinson’s disease (PD) shape the experience of living with the disease. Facing misperceptions and stigma can cause isolation and worsen symptoms. Tune into audio from this Third Thursdays Webinar to listen to our panel of experts have a candid and compassion…
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Celebrity gossip magazines love to remind us: "Stars — they’re just like us!" And while the world of digital creators and streamers can feel like a distant universe, the truth is that these online personalities aren’t so different from the rest of us. As P2P fundraising increasingly intersects with the creator community, it’s easy to view streamers…
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There are so many ways to get involved with Parkinson’s disease, from community building to advocacy, research participation to fundraising. Taking that first step toward involvement can be daunting, but many people say it’s a critical part of living well with the disease. In this episode of The Michael J. Fox Foundation Parkinson’s Podcast, member…
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May is a BIG month and we have two great guests for this episode: Harry Margolis, Elder Law Attorney and Linda Kafka, Founder/Principal of Neuro Design Academy. Since May is both National Elder Law Month and Home Modification Month, these two experts are perfect for this episode to share valuable information caregivers do not want to miss! In our C…
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In the early days of peer-to-peer fundraising events, one of the fastest ways to grow a program was to launch events in new markets. But many organizations scaled back over time, whether due to strategic shifts or limited resources. So what happens when it’s time to grow again? How do you evaluate new opportunities and ensure long-term success? Exp…
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In the P2P fundraising world, we often look to the spark of organic, supporter-led moments like the Ice Bucket Challenge as examples of what’s possible when passion meets purpose. But when lightning strikes, are you ready to catch it? This episode dives into one such moment: when four friends, Pat Morissey, Brendan Cusick, Peter Durso, and Scott Fo…
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Life with Parkinson’s comes with a vast range of emotions, wherever you are in your disease journey. Shock, grief, optimism, fear, denial, hope, humor and more can all be a part of the emotional landscape for people living with the disease and their loved ones. Tune into audio from this special edition Third Thursdays Webinar to listen to our panel…
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In the early days of the P2P industry, most nonprofits concentrated on one tentpole P2P event—typically a walk or cycling program—which allowed them to align staffing, branding, and resources around a single, large-scale initiative, focusing on broad market appeal. However, as the industry has evolved, so too has the need to diversify offerings—bot…
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We are kicking off April with what is top of mind for everyone – how AI (artificial intelligence) is affecting and changing aging and caregiving. We have two experts in this area: Lawrence Kosick, Co-Founder of Get Set Up and Dor Skuler, Founder and CEO of Intuition Robotics, makers of ElliQ. They talk about how they are using AI to help both older…
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Smell loss can be among the earliest signs of Parkinson’s disease (PD) and other neurodegenerative diseases, signaling changes in the brain years before other symptoms are noticeable. Because of the link between smell and brain health, researchers are very interested in understanding more about how people with smell loss go on to either develop a d…
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Our second March episode shines a spotlight on a national treasure – the Elizabeth Dole Foundation and its comprehensive work to support the family caregivers of veterans. I talked with three of the executives with the EFD about their programs, including the Hidden Heroes program and the Dole Caregiver Fellows, as well as talked with a Dole Caregiv…
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Our first March episode kicks off with a great interview with Dan Gartenberg – Founder and CEO of SleepSpace in ceiebration of March National Sleep Awareness Month. As a national authority on sleep science, Dan shares his expertise in sleep science research to discover what helps us get better sleep but he also talks about the upside and downside o…
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You could take any two humans on earth and their genetic code will be roughly 99 percent the same — it’s the small differences in code that lead to different experiences and outcomes, including the risk of developing diseases like Parkinson’s. Scientists are learning more about which genetic changes are linked to Parkinson’s disease, revealing impo…
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With three new Parkinson’s treatments approved in the last year, there are more options than ever before for people living with the disease. Tune into audio from this Third Thursdays Webinar to hear movement disorder specialists, research experts and a person living with Parkinson’s answer community questions about the new treatments available, exp…
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Our February episode kicks off with a great interview with Barbara Sullivan – Executive Director of the Village to Village Network (VtV Network). You will learn about this movement in aging in place to help keep older loved ones living in their homes longer as we celebrate National Village Day February 15. We are also focusing on National Caregiver…
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Movement disorder specialist, lifestyle medicine physician and MJFF Principal Medical Advisor Rachel Dolhun, MD, DipABLM, shares tips on medication management for people at every stage of the disease journey. Like our podcasts? Please consider leaving a rating or review and sharing the series with your community. https://apple.co/3p02Jw0 The Founda…
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For the first episode of Season 5 we kick off the New Year with a great interview with Debbie Dotson, TV host of “Tech Talk with Debbie” about the latest products and trends in age-tech from the recent Consumer Electronics Show (CES) in Las Vegas. Sherri will also share financial self-care tips for January’s Financial Wellness Month that also help …
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If depression, anxiety or apathy occur as part of a Parkinson’s journey, it can be easy to feel alone, isolated or unsure of what might bring relief. But there are ways to manage these symptoms. Tune into audio from this Third Thursdays Webinar to hear people living with Parkinson’s share their stories of coping with mood changes as well as a movem…
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Movement disorder specialist, lifestyle medicine physician and MJFF Principal Medical Advisor Rachel Dolhun, MD, DipABLM, answers community questions on Parkinson’s and exercise with physical therapist and rehab scientist Cristina Colón-Semenza, PhD. Listen to the audio or watch the video. Like our podcasts? Please consider leaving a rating or revi…
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Being a care partner to someone with Parkinson’s disease (PD) can be a shifting and complex role, as symptoms and life circumstances change. And sometimes, this can lead to stress and even burnout for the care partner. Tune into audio from this Third Thursdays Webinar to hear expert panelists discuss how to navigate care partnership, including ever…
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In this short episode, host Dr. Marie McNeely shares updates about the podcast and provides listeners with more information on how they can stay connected with MJFF for future podcast episodes as The Parkinson’s Research Podcast merges with The Michael J. Fox Foundation Parkinson’s Podcast. Visit https://www.michaeljfox.org/podcasts for more great …
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It is widely known that a healthy diet can provide essential nutrients and lead to a multitude of benefits, but growing evidence has highlighted important links between diet, nutrition, and brain health, particularly related to neurodegenerative disease. In this episode, Dr. Puja Agarwal discusses her research investigating the role that diet and n…
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It is widely known that a healthy diet can provide essential nutrients and lead to a multitude of benefits, but growing evidence has highlighted important links between diet, nutrition, and brain health, particularly related to neurodegenerative disease. In this episode, Dr. Puja Agarwal discusses her research investigating the role that diet and n…
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Peer-to-peer fundraising inherently involves a degree of vulnerability—sharing your personal story and hoping others will respond with support and donations. But what happens when the story is difficult to tell? When the cause itself is stigmatized? Or when you’re unsure how your loved ones will react? This week on the P2P Soapbox, Shannon Greene, …
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Parkinson's disease significantly impacts various aspects of communication, and this can make it challenging for people with the disease to communicate effectively, be understood by others, and engage in social situations. Dr. Gemma Moya-Galé joins this episode to talk about her work on voice and communication in people with Parkinson’s disease. In…
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Parkinson's disease significantly impacts various aspects of communication, and this can make it challenging for people with the disease to communicate effectively, be understood by others, and engage in social situations. Dr. Gemma Moya-Galé joins this episode to talk about her work on voice and communication in people with Parkinson’s disease. In…
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For our Holiday episode in December we have a lot of “goodies” for you including a wonderful interview on how to help adults with terminal illness live out their dreams, how to improve our health as we age and how to optimize our sleep health which is always in short supply during the busy holidays, but especially for caregivers and how respite car…
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Understanding the biology of Parkinson’s disease (PD) and turning that knowledge into better treatments is a complex undertaking. In this episode of the award-winning Parkinson’s Science POV series, scientists at The Michael J. Fox Foundation (MJFF) discuss how they are tackling this problem from every angle. Whether it’s using cutting-edge imaging…
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The seasoned event fundraising professional knows that in-person events often bring unexpected challenges—whether it’s extreme weather, political unrest or medical emergencies. While these worst-case scenarios can take many forms, the key to navigating them successfully lies in two essential elements: a strong external communication plan and an int…
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Certain populations are disproportionately affected by neurological diseases, including Parkinson's and other neurodegenerative diseases. A lot of work remains to be done to improve brain health outcomes and promote healthy brain aging across the lifespan, particularly for minoritized, underrepresented populations. Including participants from diver…
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Certain populations are disproportionately affected by neurological diseases, including Parkinson's and other neurodegenerative diseases. A lot of work remains to be done to improve brain health outcomes and promote healthy brain aging across the lifespan, particularly for minoritized, underrepresented populations. Including participants from diver…
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With two new drugs approved by the FDA, a National Plan signed into law and many advances in our understanding of Parkinson’s disease, 2024 has been a transformative year in Parkinson’s research. Tune into audio from this month’s Third Thursdays Webinar to hear research experts from industry and academia talk with MJFF staff about the latest resear…
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On our second November episode of “Caregiving Club On Air” we are highlighting November’s National Family Caregiver Month (#NFCMonth), National Hospice & Palliative Care Month and National Alzheimer’s Awareness Month. We have two fabulous guest expert interviews for this episode: (13:30) Kate DeBartolo – Sr. Director of The Conversation Project – t…
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Alpha-synuclein plays a key role in the pathophysiology of Parkinson's disease, and researchers have been investigating this protein as a therapeutic target and also as a potential biomarker for the disease. The alpha-synuclein seed amplification assay, developed by Dr. Claudio Soto and colleagues, leverages the self-replicating nature of the misfo…
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Alpha-synuclein plays a key role in the pathophysiology of Parkinson's disease, and researchers have been investigating this protein as a therapeutic target and also as a potential biomarker for the disease. The alpha-synuclein seed amplification assay, developed by Dr. Claudio Soto and colleagues, leverages the self-replicating nature of the misfo…
  continue reading
 
Each person living with Parkinson’s disease (PD) will have a unique journey with their treatments, including the decision to have deep brain stimulation (DBS), which is a surgical procedure to treat Parkinson’s motor symptoms. While DBS isn’t suitable for everyone, it can be helpful in the right person, and it’s a complex, lifelong choice. And alth…
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Our first November episode of “Caregiving Club On Air” kicks off with November’s National Family Caregiver Month (#NFCMonth) and two great interviews: (17:22) Sandy Markwood – CEO, USAging – tells us about free resource and guidance family caregivers can use through the network of local Area Agencies on Aging, the Elder Care Locator and other resou…
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As many P2P programs strive to expand, organizations often grapple with a core question: should they focus resources on deepening engagement with current supporters or invest in acquiring new ones? The answer isn’t always one strategy over the other—it’s important to consider your mission’s scope. For causes that directly impact millions, investing…
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To help meet the growing global need for more movement disorders specialists, The Michael J. Fox Foundation created the Edmond J. Safra Fellowship in Movement Disorders in collaboration with longtime partner the Edmond J. Safra Foundation. This program supports the training of movement disorders specialists who will provide expert care and drive ad…
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To help meet the growing global need for more movement disorders specialists, The Michael J. Fox Foundation created the Edmond J. Safra Fellowship in Movement Disorders in collaboration with longtime partner the Edmond J. Safra Foundation. This program supports the training of movement disorders specialists who will provide expert care and drive ad…
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Troubles with gait – slow walking, shuffling steps and foot dragging and more – can be symptoms of Parkinson’s. In audio from this Third Thursdays Webinar, our experts explore the robust research efforts underway to understand and treat gait issues, from physical rehab interventions to deep brain stimulation modifications to wearable robots designe…
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Have you ever stopped to question if your fundraising messaging is ethical? Despite our best intentions as professional fundraisers, it is crucial for us to recognize that certain traditional fundraising methods no longer hold up under scrutiny in 2023. In our efforts to showcase the serious need for donations with often sad, evocative imagery, we …
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This October episode of “Caregiving Club On Air” we start with a wonderful interview with one of the “sharks” from TV’s “Shark Tank” – Barbara Corcoran. But she is not here to talk about business investment, rather she talks to Sherri about her personal caregiving journey with her mom who had Alzheimer’s which led to her mission to help educate peo…
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Stem cell models derived from patients with Parkinson’s disease are valuable tools that are helping researchers around the world to better understand the underlying causes of neurodegeneration and to develop biomarkers and new therapies. To maximize the potential impacts of these tools, it is critical that they are developed and shared according to…
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Stem cell models derived from patients with Parkinson’s disease are valuable tools that are helping researchers around the world to better understand the underlying causes of neurodegeneration and to develop biomarkers and new therapies. To maximize the potential impacts of these tools, it is critical that they are developed and shared according to…
  continue reading
 
In this podcast, four people from different backgrounds have a candid conversation on race, stigma and Parkinson’s. They share their experiences trying to find culturally competent medical professionals, overcoming the barriers to research participation, and communicating with their communities about their diagnosis. And they offer tips and advice …
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New qualitative and quantitative tools are being developed to measure and track changes in proteins relevant for neurodegenerative disease, and these tools have the potential to accelerate drug discovery and clinical trials. In this episode, Dr. Judith Steen discusses her work creating novel qualitative and quantitative tools and workflows at the i…
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