The Parkinson’s Experience is a podcast hosted by a Person with Parkinson’s (PWP) and based on her daily experiences. Listen in on her journey living with the disease and how she lives her best life with humor, generosity, empathy and knowledge. Her conversations with experts and patients like you are fascinating and authentic. They cover relevant topics from DBS (Deep Brain Stimulation) to exercise to diet to medications to much more difficult subjects like personal relationships. Of the fe ...
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Parkinsonsdisease Podcasts
Living and aging in the perfect place often means renovating. Karen, an Aging in Place and Accessibility Strategist, knows that the renovations will involve not only the physical space where we live but also the way we think about how we live. Success is in the details!
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Katherine Autin, a 43-year visionary entrepreneur, Parkinson's expert, Patient Advocate Consultant, Caregiver Coach, Author, Educator, Speaker, and Facilitator shares her 21-year journey as a 24/7 spouse caregiver for her husband who was diagnosed with Parkinson's disease in 2004. Her passion is empowering caregivers who care for people living with chronic and life-altering conditions through advocacy, education, and an inspirational, supportive community, encouraging joy and confidence in t ...
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Did you know there is a connection between loss of smell and Parkinson’s disease? In fact, it may turn out to be a predictor of the disease up to 10 years before a clinic diagnosis of PD. Here are some interesting stats: · 100% of major brain disorders are associated with smell loss · 96% of newly diagnosed people with Parkinson’s have lost some ab…
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115 Make Your Voices Heard: Ban Chemicals that Cause Diseases
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32:09This is a very important topic and one in which you can make a difference. Our environment is sickening the population. Parkinson’s disease is one example of a condition that likely was caused by pesticides and other toxic chemicals in our water, food, air and soil. All of us can contribute to preventing future generations from getting Parkinson’s …
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Most people who are charged with making decisions about the spaces we live and work in don't truly understand the 'why' behind accessibility. Today's podcast digs into that a bit.By Karen L Brown
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114 World's Toughest Row - a story of endurance, strength and friendship
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46:27$41M, 41 days, 2800 miles. Those are the stats for Team Human Potential who competed in the World’s Toughest Row. The boat race happens annually and showcases teams of four, rowing across the Pacific Ocean from California to Hawaii. Patrick Morrisey with Team Human Potential became the first person with Parkinson’s to finish the race. They raised o…
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Following up on our last podcast about making decisions, today's podcast is all about questions you should ask yourself about your health, how you live and how much you engage with the world.By Karen L Brown
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Episode 8 Meet Dawn Bouillion Passionate Trauma Therapist & Coach--Let's Talk About Recognizing Caregiving Trauma in Women Session 1
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31:26Send us a text Katherine introduces you to Dawn Bouillion, founder of Embrace Your Brave, a trauma therapist and coach from Lafayette, Louisiana, who helps women caregivers to dive deep into exploring the hidden trauma they experience and discover that healing is possible, even in the midst of difficult caregiving journeys. Dawn shares her true, em…
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Episode 7 Meet Patti Mamalis and Her Inspirational Power Word Burnout Prevention Program Session 2
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18:28Send us a text Katherine Autin introduces you again to Patti Mamalis from Tempe, Arizona, owner of Power Word Postcards. She is an amazing, creative entrepreneur and caregiver, who is offering the world her new initiative, the Power Word Burnout Prevention program. In this session with Patti, she explains her program more fully how she inspires you…
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Are decisions about your future a problem for today or are you putting them off to tomorrow? If you make decisions tomorrow's problem, someone else may be making decisions for you.By Karen L Brown
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Some of my favorite episodes are when we hear personal stories from people on the same journey as us. Every story is different but all of them can help us find our way, learn from each other and get motivated to live your best life. On today’s episode, I have a conversation with Lisa Volenec. She was diagnosed as young onset PD which is defined as …
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Designing for one disability can cause problems for a different disability. Dr. Mark Iantkow has spent many years of his career building on previous work that never quite captured these nuances of design. Today he joins me and Ron Wickman to explain the Dimensions of Access Design.By Karen L Brown
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111 The New Medication Delivery Pumps Explained
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29:11Have you heard about the new medication delivery systems or pumps recently approved by the FDA? It has generated a lot of buzz at support groups, clinics and social media. What do these pumps do that makes them different and a new tool for our Movement Disorder Specialist to use to help People with Parkinson's live well with Parkinson’s? What can y…
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Episode 6 Meet Brooke Haynes, She "Fell" into Her Caregiving Journey & She's a Multi-passionate Entrepreneur Session 1
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1:00:20Send us a text So honored to introduce Brooke Haynes, a multi-passionate and multi-talented entrepreneur who tells us about her 16-year inspirational journeys as a caregiver for friends with chronic conditions which shaped her deep commitment to support, empower, and bring holistic success to caregivers globally Even though Brooke did not have any …
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Have you ever considered a career in construction - whether as a contractor, architect, or plumber - but felt drawn to making homes more accessible? If so, this episode is for you!By Karen L Brown
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As the earth continues to get warmer and we see record high temperatures across the globe, scientists tell us that this pattern is going to continue and be more common. Higher temperatures, more frequently has led to more heat strokes and other conditions when people aren’t prepared for this situation. Additionally, people with neurodegenerative di…
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The Canadian Helen Keller Centre (CHKC) is a leader in the deaf-blind community, providing affordable housing and training since opening its first residential building in 1992. In this podcast we talk with Jennifer Robbins, CEO of CHKC about their current project, building a 56-unit residential building with a 6,500 sq. ft. training centre. If your…
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Episode 5 Meet Ian Robertson Living with Parkinson's Positively Inspiring Others
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35:31Send us a text Katherine Autin introduces you to Ian Robertson from Broderick, Saskatchewan, a person living with Parkinson's disease since his 2012 diagnosis, who intentionally has a positive attitude having fun with music and exercise to guide him in his mantra of power affirmations. Everyone who listens to Ian's gleeful attitude can't help but l…
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Episode 3 Katherine Autin's Book Chapter 1 About My Husband David's Shock -- Parkinson's Disease Diagnosis
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18:53Send us a text This short excerpt from Chapter 1, "In the Middle" of Katherine's book My Unexpected Caregiving Detour: Becoming a Parkinson's Expert & Patient Advocate the Hard Way shares the frightening process of getting her Husband David's Parkinson's disease diagnosis. As she talks about the unfamiliar details of what they were discovering abou…
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108 Parkinson's Research Update - The Future Is Bright
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56:11We are well into 2025 so saying Happy New Year is not appropriate anymore. I think now people are asking others how they are doing with their resolutions. I have just one goal this year and that is to learn something new. I’ll let you know how I do. Send me your resolutions in the comment section. I am excited for you to listen to my conversation w…
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Episode 4 Meet Jose Julio Delgado Inspirational & Dedicated Parkinson's Disease Global Connector
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26:46Send us a text Katherine Autin introduces you to Jose Julio Delgado from Woodland, California, an inspirational person living with Parkinson's disease and CEO and Founder of Living with Parkinson Daily.Live, a private online Parkinson's support group where he offers the Parkinson's world connection and education about how to live well with it. When…
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Episode 2 Meet Patti Mamalis and Her Inspirational Power Word Burnout Prevention Program
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23:30Send us a text Katherine Autin introduces you to Patti Mamalis from Tempe, Arizona, owner of Power Word Postcards. She is an amazing, creative entrepreneur and caregiver, who is offering the world her new initiative, the Power Word Burnout Prevention program. Katherine is a visionary 43-year entrepreneur and 24/7 caregiver for her husband who was d…
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We've acquired a lot of new listeners and readers over the past year. I want you to understand why I do this work so welcome and I hope you enjoy this episode.By Karen L Brown
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When the time comes to think about downsizing, many of us immediately think of condo living. While that may be a suitable option for some, it isn't necessarily the best option for aging in place or for people with disabilities. Remember that as we age, issues start to crop up like reduced range of motion, hip or knee replacements, progression in a …
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Episode 1 Katherine's Prequel to Caregiving Story
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18:53Send us a text This episode is about how unbelievably scary the complicated symptoms were that led up to Katherine Autin's husband John David's (we call him David) Parkinson's disease diagnosis in 2004. Hear from Katherine the years it took to get a diagnosis and how it completely changed their lives. Check for upcoming episodes that will take exce…
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107 Is Your Hearing Loss Related to Parkinson's?
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41:04I had a random request from a listener a few months ago. She was struggling with her hearing and wondered if it could be another symptom of Parkinson’s. My first thought was no, I hadn’t heard of that before. But, I told her I would look into it. To my surprise, hearing loss and Auditory Processing Disorder (APD) is another gift PD can give. So, le…
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As we wind down the year with a final couple of episodes, this may be the most important topic. November is caregivers’ awareness month. The Caregiver Action Network (CAN) mission is to promote resourcefulness and respect for tens of millions of family caregivers across the country. This not-for-profit organization is responsible for caregivers’ aw…
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105 Hacks - Strategies for Life's Challenges
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41:42This episode is one of the reasons I started this podcast called the Parkinson’s Experience. We have four people with Parkinson’s including myself sharing their lived experiences with all of you. The subject is the hacks we use to compensate for challenges we face while living our best life with Parkinson’s. So, what is the definition of “hacks’? I…
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Thinking about who you might want making decisions for you if you can't or who gets what when you pass on is a difficult process. Even more difficult is the burden left to others if you don't make proper preparations. In this podcast we talk with William A G Simpson, a personal injury lawyer who sees the results of lack of preparation daily. Bill w…
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After the series on Art Therapy, I was reflecting on all the great stories of how each guest truly benefited from their experiences with their mode of creative expression. It isn’t just people with Parkinson’s benefiting. Everyone can benefit from attempting a new art activity or going back to what you used to enjoy. Then I started thinking what ha…
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Carrie Anton, Paralympic Gold Medalist, joins Ron Wickman and Karen Brown to discuss everything from Goalball to setting standards for the built environment to TWISIs.By Karen L Brown
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103 Art Therapy Part 4 The Joy and Benefits of Music
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35:55I’ve had a wonderful time this summer speaking with people with Parkinson’s who have found joy, meaning and symptom relief using one or more forms of artistic expression - let’s call it art therapy. If you haven’t listened to the first three, please do. I found inspiration and information in each one. I hope you will as well. This is the fourth epi…
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102 Art Therapy Part 3 Writing Keeps Your Brain Active and Learning
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23:22Welcome to Part 3 of our series on the influence the Arts have on people with Parkinson’s and frankly most other conditions. It’s amazing what scientists are discovering about how much music, dance, painting, etc can be beneficial for brain health. I’ve been humbled by our guests. The more I listen to these amazing, brave people, the more I’m impre…
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101 Art Therapy Part 2 - Dancing the Symptoms Away
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26:01Welcome to part two of our four-part series on the arts and Parkinson’s disease. If you haven’t listened to part one, you can definitely listen to this one but I encourage you to listen to part 1 on photography and hearing from our guest, Torrance York, who spoke passionately about photography and how it helps her gain perspective on her journey wi…
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100 Reverse Mic in Recognition of 100 Episodes
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25:55So, I hope you enjoyed the first episode in our four-part series on the Arts and their potential for a better quality of life for people with Parkinson’s. We are going to take a quick brake in the series since this is the 100th episode of the Parkinson’s Experience. To celebrate and acknowledge he 100th episode, the interviewer became the interview…
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This episode kicks off our 4-part series featuring people with Parkinson’s who found one form of the arts to be helpful with managing symptoms and gaining perspective. We will explore four different art disciplines – photography, dance, writing and music. We wanted to hear directly from the person with Parkinson’s rather than an expert on the resea…
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