Best The Edwards Syndrome Association Podcasts (2025)

1
🎙️Breathing Easier: Understanding Tracheostomy and Airway Malacia with Dr. Iverson 48:04

Play Pause

7d ago48:04

48:04

In this episode of Breaking Barriers, we welcome back Dr. Iverson, pediatric ENT specialist at the University of Kentucky Children’s Hospital, for an in-depth conversation on tracheostomy and airway malacia. Dr. Iverson explains what these conditions mean, how they’re diagnosed, and what families can expect when navigating trach care. Whether your …

1
Feeding with Purpose: Navigating Tubes, Blends & Growth with Betsy Hjelmgren 1:15:39

21d ago1:15:39

1:15:39

In this empowering episode, we sit down with pediatric nutritionist Betsy Hjelmgren to talk all things feeding, nutrition, and growth in children with Edwards Syndrome and complex medical needs. From NG and G-tube support to weaning strategies and blending real food for tube feeds, Betsy brings compassionate, evidence-based guidance for families na…

1
Breaking Barriers: Dad Edition 1:15:36

28d ago1:15:36

1:15:36

Breaking Barriers: Dad Edition- Hosted by Robert Polacek In this special Father’s Day episode, host Robert Polacek—proud dad of Mia—leads an honest and powerful conversation with two fellow fathers of children with Edwards Syndrome (Trisomy 18). Together, these three dads share their unique journeys, the highs and lows of navigating rare parenthood…

1
Through A Mothers Eyes- Surviving Childhood Cancer 1:06:53

1M ago1:06:53

1:06:53

In this powerful and heartfelt episode, we sit down with Brandi, a courageous mother sharing her journey through one of the most challenging battles a parent can face—her daughter Faith’s diagnosis with Wilms Tumor. Born with Edwards Syndrome, Faith’s early life came with immense challenges, but nothing prepared their family for the fight against c…

1
Inside the Mind with Dr. Raskin 1:00:27

2M ago1:00:27

1:00:27

In this thoughtful and informative episode, we sit down with Dr. Raskin, a Pediatric Neurosurgeon, to talk about some of the conditions that affect children and families the most. Dr. Raskin helps us understand epilepsy and when surgery can be a life-changing option, movement disorders-especially in the context of rare conditions like Edwards Syndr…

1
Mother's Day Episode-Voices of Hope and Honor! 1:35:38

2M ago1:35:38

1:35:38

In this special Mother's Day episode, we honor the incredible strength, love and resilience of mothers raising- or who have raised-children with Edwards Syndrome (Trisomy 18). Join us as we sit down with a group of brave and compassionate moms who share their deeply personal journeys: the challenges, the beauty in the small moments, the advocacy, a…

1
Breathing Through the Night: Understanding Sleep Apnea with Dr. Iverson 54:17

3M ago54:17

54:17

In this episode of The Breaking Barriers Podcast, we're joined by ENT specialist Dr. Iverson to dive into a condition that affects millions but is often misunderstood- sleep apena. From the warning signs to the latest treatment options, Dr. Iverson breaks down the science in a way that's both informative and empowering. Tune in as we break down the…

1
Hearing Loss Episode 2 with Dr. Iverson about Trisomy 18 and Cochlear Implants with Crystal Simpson sharing Gunnars Journey 44:11

3M ago44:11

44:11

Trisomy 18 and Cochlear Implants with Crystal Simpson sharing Gunnars JourneyBy The Edwards Syndrome Association

1
Epilepsy Awareness with Jeanna Polacek 1:27:35

4M ago1:27:35

1:27:35

Epilepsy impacts roughly 1/3rd of people with Edwards Syndrome. Some have controlled seizures and others do not. We are excited to share with you the epilepsy journey of one of The ESA founding kiddos Mia through our Breaking Barriers PodcastBy The Edwards Syndrome Association

1
Hearing Loss Series-Episode (Mom Talk) 35:04

4M ago35:04

35:04

Our Second episode of our Hearing Loss series. In this episode us three moms within the ESA Board will be discussing our very own hearing loss journey with our children.By The Edwards Syndrome Association

1
Hearing Loss Series, Episode 1 39:12

4M ago39:12

39:12

Our first episode of our Hearing Loss Series with a T18 Advocate Doctor, Dr Kenneth Iverson, ENT at University of Kentucky Children's.By The Edwards Syndrome Association

1
All About ESA 32:36

5M ago32:36

32:36

Learn all about The Edwards Syndrome Association and the vision for The Breaking Barriers Podcast!By The Edwards Syndrome Association