Introducing Spondycast, the newest and most exciting source of information and inspiration for people with spondyloarthritis. Every week, we bring you in-depth conversations with the leading experts in the field, who will share their knowledge and experience on topics related to the diagnosis, treatment, and management of this complex condition. Whether you are a patient, a caregiver, or just someone who wants to learn more about spondyloarthritis, Spondycast is the perfect place for you. Sp ...
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Negotiating Life: Turning Advocacy and Adversity into Empowerment, Resilience, and Inner Peace
44:45
44:45
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44:45Lousin Mehrabi, a globally recognized negotiation expert, shares how the principles of negotiation, emotional intelligence, and inner peace can empower people, especially those with chronic illness, to advocate for their needs, build resilience, and navigate life’s challenges confidently.
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Part 2: MotherToBaby: A Deep Dive into Pregnancy Studies, Patient Participation and The Impact of Spondyloarthritis Research with Dr. Christina Chambers
53:49
53:49
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53:49Dr. Christina Chambers, a leading expert in prenatal and lactation research, discusses how MotherToBaby studies help evaluate the safety of medications and treatments - like those used for spondyloarthritis - during pregnancy, and how patients can get involved in this vital research.
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From Host to Guest: Celebrating 100 Spondycast Episodes with Jill Miller
59:14
59:14
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59:14In this special 100th episode, Spondycast host Jill Miller becomes the guest, sharing her personal journey with spondyloarthritis, favorite moments from the show, and her vision for an empowered patient community.
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Navigating the Patient-Nurse Relationship: Insights from the Rheumatology Nurses Society
41:53
41:53
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41:53Gwen Robinson, RNS Historian Supervisor & Infusion Nurse Specialist, shares valuable insights on how nurses support SpA patients, improve communication, and strengthen the patient-care team relationship.
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Part 1: MotherToBaby: Supporting Pregnant Patients with Evidence-Based Answers
48:23
48:23
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48:23Robert Felix, a senior information specialist at MotherToBaby California, discusses MTB's evidence-based information about medications and other exposures during pregnancy and breastfeeding.
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Navigating Spondyloarthritis in the Workplace: Balancing Work, Health, and Wellness
47:28
47:28
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47:28Patricia Ewa Grabarek, PhD, and Katina Brynn Sawyer, PhD, co-founders of Workr Beeing and authors of the book “Leading for Wellness”, discuss strategies for navigating the workplace while managing a chronic illness.
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Navigating Menopause with Spondyloarthritis: Managing Symptoms and Maintaining Health
1:02:44
1:02:44
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1:02:44Dr. Camile Moreno, an expert in midlife women’s health, discusses how perimenopause and menopause impact women’s health, including those women who manage a chronic inflammatory rheumatic disease.
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Power of Emotional Freedom Techniques (EFT): Stress Management in Spondyloarthritis
52:46
52:46
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52:46Brad and Pamela Thompson, certified EFT practitioners, discuss how emotional freedom techniques, also known as tapping, can help reduce symptoms of stress.
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Holistic Healing and Community Support: Navigating Spondyloarthritis with Limitless Ladies Network
45:56
45:56
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45:56Tammy Dungan, Founder of Limitless Ladies Network and Women's Wellness Coach, shares her personal journey with spondyloarthritis and Lyme disease, highlighting the power of holistic healing and community support.
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Take a Pain Check: Empowering Youth with Arthritis Through Advocacy and Action
44:29
44:29
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44:29Natasha Trehan, Founder and Executive Director of Take a Pain Check, and Maggie Douglas, the organization's Global Development Coordinator, share their personal stories and discuss their mission to empower youth and young adults living with a rheumatic disease.
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Exploring the Role of Regenerative Medicine in Musculoskeletal Health
55:17
55:17
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55:17Dr. Naimish Baxi, an expert in sports medicine, spine care, pain management, and musculoskeletal medicine, discusses the role of regenerative medicine in musculoskeletal health.
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Sonoran Odyssey: Helgi Olafson’s Mission of Movement as Medicine
1:00:52
1:00:52
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1:00:52Helgi Olafson, endurance athlete and ultra runner, discusses his latest project including the Arizona Monster 300 Endurance Run and a film documenting his 7-day journey while increasing awareness about ankylosing spondylitis.
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Personalized Medicine in Spondyloarthritis: The Role of Biomarkers
33:18
33:18
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33:18Dr. Walter Maksymowych, Rheumatologist and Researcher, discusses the role of biomarkers in revolutionizing diagnosis, treatment, and personalized care for people living with SpA.
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The Role of Imaging in Diagnosing and Managing Spondyloarthritis
39:51
39:51
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39:51Dr. Walter Maksymowych, Rheumatologist and Researcher, discusses the role of imaging in the diagnosis, treatment monitoring, and long-term management of spondyloarthritis.
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Notes of Hope: Fighting AS One Song at a Time with Jess Robbins
33:19
33:19
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33:19Musician Jess Robbins shares her journey with spondylitis and how she channeled her pain, uncertainty, and resilience into her new album.
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Managing Medication-Nutrient Depletion in Spondyloarthritis
1:04:46
1:04:46
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1:04:46Dr. Lara Zakaria, PharmD, MS, CDN, CNS, IFMCP, a pharmacist and nutritionist, discusses how medications can cause nutrient depletion, the signs and symptoms to watch for, and ways to address these deficiencies.
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Your Stories: Raising the Bar with Derek Sherlock
35:58
35:58
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35:58Powerlifter Derek Sherlock talks about his journey with spondylitis and how he became a world-champion level with a powerlifter.
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Your Stories: Author Lisa See’s Journey with AS
47:07
47:07
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47:07Lisa See, New York Times bestselling author, discusses her journey with spondylitis.
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An Introduction to Zero Balancing and Benefits for Chronic Conditions
49:01
49:01
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49:01Dr. Michelle Doucette, Board Chair of the Zero Balancing Health Association, explains zero balancing and how it can benefit people with spondylitis.
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Incorporating Pranayama (Yogic Breathing) to Promote Well-Being and Management of Spondyloarthritis
54:02
54:02
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54:02Dr. Balasubramanian, integrative health researcher, discusses how breathing practices, such as yogic breathing, can promote well-being in health and chronic illness.
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Part 2 - Transitioning to Adult Rheumatology Care: For Young Adults with Spondyloarthritis
33:08
33:08
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33:08In Part 2 of this 2-part episode, Drs. Sadun and Cintron continue their discussion about how young people can successfully transition to adult rheumatology care, including how family can assist with this transition.
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Part 1 - Transitioning to Adult Rheumatology Care: For Young Adults with Spondyloarthritis
38:06
38:06
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38:06In Part 1 of this 2-part episode, Drs. Sadun and Cintron discuss the differences between pediatric and adult rheumatology care to help young adults transition successfully to adult rheumatology care.
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Grounding Your Health: The Benefits of Earthing
1:00:02
1:00:02
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1:00:02Dr. Gaetan Chevalier, PhD, Director of the Earthing Institute, introduces listeners to earthing, also known as grounding, and how this technique has benefits for health and well-being.
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The Role of Occupational Therapy to Maximize Functionality with SpA and Improve Quality of Life
41:58
41:58
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41:58Jeanne Drennan, OT/L, CNMT, an occupational therapist living with spondylitis, discusses how occupational therapy can help improve outcomes and quality of life for people living with spondyloarthritis.
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Part 2 of Medicare and Medi-Cal: What You Need to Know
49:19
49:19
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49:19In Part 2 of this episode, Stephanie Fajuri, Program Director for the Center for Health Care Rights, discusses Medicare, supplemental insurance, and Medi-Cal benefits.
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Part 1 of Medicare and Medi-Cal: What You Need to Know
28:45
28:45
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28:45In Part 1 of this episode, Stepanie Fajuri, Program Director for the Center for Health Care Rights, explains Medicare and Medi-Cal benefits.
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Optimizing Mobility and Functionality: Physical Therapy Strategies for Spondyloarthritis
33:31
33:31
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33:31Physical therapist Nicole Mozafari, PT, DPT, OCS, CMT, discusses how physical therapy can improve mobility and function.
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Overcoming Obstacles: American Ninja Warrior Lisa Hair’s Journey with Ankylosing Spondylitis
45:58
45:58
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45:58Lisa Hair, a physician assistant, and American Ninja Warrior competitor discusses her journey with spondylitis and how she has overcome the challenges.
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The Negative Impacts of Alcohol on the Gut-Brain-Immune Systems
46:01
46:01
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46:01Dr. Melissa Mondala discusses the impact alcohol consumption can have on your body and mind.
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Teeing Up for Spondylitis: Curt and Grant Rocca’s Journey to Raise Awareness
52:01
52:01
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52:01Curt and Grant Rocca, father and son, discuss their journey to Grant’s diagnosis and their mission to raise awareness about spondylitis through their annual charity golf tournament.
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Daily Routines and Rituals for Mental Endurance in Managing Spondyloarthritis
1:00:08
1:00:08
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1:00:08Michael Leach, author, motivational speaker, and coach, discusses his personal experience with AS and how daily routines can improve mental health.
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What to Do If Your Treatment Is Denied: A Guide to Self-Advocacy
35:59
35:59
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35:59Victoria Killian, a member of SAA’s Advocacy Committee, discusses steps to take if your treatment is denied.
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Navigating the Path to SSDI Benefits for Spondylitis Patients
42:17
42:17
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42:17TJ Geist, an SSDI benefits advocate, discusses the process to apply for Social Security Disability Insurance (SSDI) benefits.
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Pilates for Spondyloarthritis: Flexibility and Strengthening Through Movement
40:48
40:48
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40:48Shane Keith Rhoads, MS, CSCS,a professional trainer, discusses how pilates can improve flexibility and strength for people managing SpA.
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Juvenile Spondyloarthritis: Research and Advocacy Efforts with Dr. Pam Weiss and Parent Advocate Emily Neu
35:50
35:50
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35:50Pediatric rheumatologist Pam Weiss, MD, and Parent Advocate Emily Neu discuss juvenile spondyloarthritis and its treatment, and the Back Off JSpA research study.
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Navigating the Health Care System, Access to Treatment and Insurance Companies: The Patient’s Role
51:51
51:51
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51:51Robin Dore, MD, rheumatologist and member of SAA’s Advocacy Committee, discusses how patients can advocate for themselves while working with their physicians and health insurance to get needed healthcare.
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Loribeth Cohen, PT, CAP, IMT-C, NET Practitioner, provides an overview of the Ayurvedic guidelines for nutrition and food.
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Podiatric Care: Enhancing Foot Health for Spondyloarthritis Patients
41:13
41:13
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41:13Dr. Lindsey Cherry, Specialist Podiatrist in Rheumatology, discusses how spondyloarthritis can impact your feet and how a podiatrist can help.
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Your Stories: A Conversation with Dancer Alicia Graf Mack
42:10
42:10
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42:10Alicia Graf Mack, Dean and Director of Juilliard Dance, discusses her journey with spondyloarthritis and her career as a professional dancer.
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Spondyloarthritis and Aging: Navigating Changes in Later Years
37:20
37:20
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37:20Rheumatologist Raymond Yung, MD, specializing in geriatric medicine and rheumatology, discusses how spondyloarthritis impacts people as they age.
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The Spondyloarthritis Athlete: Overcoming Obstacles and Leading Advocacy Efforts
48:35
48:35
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48:35Ultramarathon runners and endurance athletes Helgi Olafson and Brandon Robert Hozack discuss their journey with spondyloarthritis, their advocacy and awareness efforts, and how they overcome their challenges with AS.
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An Introduction to Ayurveda with Loribeth Cohen
59:15
59:15
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59:15Loribeth Cohen, PT, CAP, IMT-C, NET Practitioner, provides an introduction to Ayurveda and how this practice strives to move people from a state of “dis-ease” or imbalance to more wholeness.
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Stephen Shedletzky, author of Speak Up Culture, discusses how people living with spondyloarthritis can find their voice to advocate for their needs.
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From World Traveler to Warrior Advocate: A Conversation with Carrie Kellenberger
44:56
44:56
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44:56Carrie Kellenberger, SpA advocate and award-winning blogger of myseveralworlds.com discusses her journey with spondyloarthritis while being a Canadian living in Taiwan.
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Walking Stronger Together: A Conversation with Jennifer Visscher about Walk Your AS Off with Jennifer
41:06
41:06
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41:06Jennifer Visscher, Founder of the annual Walk Your AS Off event discusses her journey with spondyloarthritis, her advocacy and awareness efforts, and transitioning the Walk Your AS Off event to SAA’s stewardship. www.walkyourasoff.com
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Animal-assisted Interventions for Physical and Mental Health Wellness with Dr. Chastain
25:35
25:35
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25:35Dr. Taylor Chastain Griffin, National Director of AAI Advancement for Pet Partners, discusses the connection between animal-assisted interventions and mental and physical health benefits for people living with SpA. www.petpartners.org www.aaaiponline.org
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Your Stories: Sarah Louden’s Journey with Sarah
42:18
42:18
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42:18Sarah Louden discusses her journey with spondyloarthritis and how she strives to live her best life as an entrepreneur, mother, and wife while living with axSpA.
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Targeted Therapies and Earlier Diagnosis: Exploring Potential SpA Breakthroughs with Dr. Paley
33:51
33:51
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33:51Ocular rheumatologist Dr. Michael Paley M.D. Ph.D., SAA’s 2023 Early Career Investigator Award Winner, discusses his research. https://spondylitis.org/early-career-investigators-award/
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Simon Korte, PhD, neuroscientist, and SpA Warrior, discusses fatigue, brain fog, and its relation to spondyloarthritis.
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Your Stories: Conversations with a Physical Trainer Living with SpA
39:48
39:48
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39:48John Frazier, physical trainer and author of the book Through the Pain, discusses his journey with AS and how it has impacted his own physical fitness and his work with others. Link to book: Through the Pain by John Frazier https://a.co/d/2T9YetV
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