Best Alexandra Orfanides Podcasts (2025)

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81 - My Hypermobility: New Children's Book on Hypermobility by Leah Pinnington 36:05

8M ago36:05

36:05

In this episode, Leah Pinnington discusses My Hypermobility, the children's book she wrote about her daughter's experience with hypermobility. Leah advocates for better awareness about hypermobility in schools and her book has been successful internationally.Links: Instagram: https://www.instagram.com/leahpinnington_author/My Hypermobility on Amazo…

1
80 - Help! I'm Hypermobile Podcast Host and Hypermobility Specialist Osteopath Alexandra Orfanides 58:06

9M ago58:06

58:06

This episode features a discussion with Alex Orfanides, Masters in Osteopathy and Bachelor of Arts (honors), a hypermobility specialist osteopath and content creator who hosts the fantastic podcast Help! I’m Hypermobile. Alex has a unique blend of expertise gained through her prior degree in English literature and her clinical work with elite athle…

1
79 - Too Flexible to Feel Good Co-Author Celest Pereira on Hypermobility, Chronic Pain & More 54:31

10M ago54:31

54:31

This episode features Celest Pereira who is a trained dancer, martial artist, co-author and physiotherapist. She earned her Bachelor of Science degree in Physiotherapy in 2009. Celest loves learning about and discussing anatomy, neuroscience and biomechanics and runs regular education-based workshops where she breaks down scientific research studie…

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78 - Allysa Seely: USA Paralympian Gold Medalist on Medical Gaslighting and Advocacy Work 52:19

10M ago52:19

52:19

Today our guest is paralympic Gold Medalist Allysa Seely. Allysa is a paratriathlon athlete with Ehlers-Danlos Syndrome and related conditions like Chiari II. Beyond her gold medal award, Allysa is also a three-time world paratriathlon champion and a 17-time ITU World Paratriathlon Event medalist with 12 golds, 3 silvers, and 2 bronzes. In 2016 at …

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77 - Movement Approaches, Nervous System Regulation & More (with Andy Hsieh, CPT-ACE) 53:30

10M ago53:30

53:30

On this episode, our guest is Andy Hsieh of Movement Reborn located in San Diego, CA. Andy is a certified personal trainer through the American Council of Exercise, as well as a specialist in neurokinetic training. Andy runs Movement Reborn, an in-person personal training practice that also has some helpful YouTube videos for those who are not in t…

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76 - Nervous System Regulation, Pelvic Health & More (Dr. Rita White DPT) 49:24

11M ago49:24

49:24

On this episode, we are joined by Dr. Rita White, Doctor of Physical Therapy. Rita is a pelvic health physical therapist with over 10 years of experience helping people reconnect to their body so they can overcome pain. Her areas of expertise include pelvic health and pain conditions, especially hypermobile Ehlers-Danlos Syndrome (hEDS)/ Hypermobil…

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75 - Whealth - Hypermobile Couple Katie Goss and Andrew Dettelbach 1:00:23

11M ago1:00:23

1:00:23

On this episode, hypermobile couple Katie Goss and Andrew Dettelbach discuss their experiences living with hypermobility as well as their insights from working with hypermobile people through their practice and the organization they founded: Whealth.Links:https://spreadwhealth.com/overcome-painhttps://www.instagram.com/whealthhttps://www.facebook.c…

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74 - Dr. Brian Cunningham, DPT (The Swim Doc) on Swimming & Hypermobility 1:17:17

11M ago1:17:17

1:17:17

In this episode, Dr. Brian Cunningham (The Swim Doc) talks about coaching and working with swimmers of all ages, strengths, and abilities (including hypermobile swimmers). Dr. Cunningham is an experienced physical therapist and swimmer who teaches swimmers about the specific muscles they need to engage as well as the habits and strategies of elite …

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Ep 14 Hypermobility and Posture: Why What You Think You Know About Posture is Probably Wrong 46:32

1y ago46:32

46:32

We're back and we're talking about POSTURE! Misconceptions are EVERYWHERE when it comes to posture, and most of what you think you know about posture is probably wrong. Listen to today's episode to find out. . . why there's no such thing as an inherently bad (or good!) posture why we as a society have this weird obsession with "good" posture (and w…

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Ep 13 Hypermobility and Fitness: 6 Essential Rules I Wish I Knew Sooner 39:03

1y ago39:03

39:03

Exercising if you're hypermobile isn't easy. Join me on today’s episode as I reflect on my personal fitness journey and share with you 6 insights I wish I had known about hypermobility and exercise decades ago. I still use these rules both for myself and with my patients, and I hope that you find them helpful on your journey too! TODAY YOU'LL LEARN…

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Ep 12: Hypermobility and Pregnancy 48:03

1+ y ago48:03

48:03

Hypermobility affects EVERYTHING (because connective tissue is EVERYWHERE!), and pregnancy is no exception! Trigger Warning: adverse pregnancy events, pregnancy complications The biggest source of confusion when it comes to hypermobility and pregnancy is how some hypermobile people can have relatively uneventful pregnancies (in fact, some hypermobi…

1
Ep 11 Hypermobility and Intimacy 27:33

1+ y ago27:33

27:33

Hypermobility and adult intimacy issues are common, but rarely talked about. In this episode you'll learn👇 2 of the most common intimacy-related injuries Alex hears about from this community (and what you can do about them) Why we need to reframe how we think about intimacy 3 conditions that affect intimacy that many people don't realise might be r…

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Ep 10 Period Problems and Hypermobility: How Charting Your Cycle Can Help 21:29

1+ y ago21:29

21:29

Hypermobility and period issues often go hand-in-hand😫🩸 In this episode you'll learn: Why not all bleeds are periods! (and what this might mean for your health) Why learning to chart your cycle using the Symptothermal Method can give you valuable insight into what's going on INSIDE your body How to chart 2 key biomarkers and finally, why the corpus…

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73 - Occupational Therapist Jo Southall on Pacing, Patient Advocacy, Dark Age Medicine & More 49:43

1+ y ago49:43

49:43

On this episode, our guest is Jo Southall, Occupational Therapist and Patient Advocate. Jo is an Independent Occupational Therapist and an expert patient with many years of experience self-managing complex health conditions. Jo began working life in the sport and Outdoor Adventure industries. After being diagnosed with Hypermobile Ehlers Danlos Syn…

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72 - Remembering Stephanie Aston - with Punteha van Terheyden 38:13

1+ y ago38:13

38:13

On this episode, British-Iranian journalist Punteha van Terheyden discusses the recent tragic death of Stephanie Aston in New Zealand and the article Punteha wrote about Steph and Punteha’s own experiences with hypermobility and other medical conditions.Punteha van Terheyden - https://www.vtfeatures.co.uk/'Stephanie Aston died after doctors said sh…

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Ep 09: Coping with Hypermobility at Work: Navigating Hypermobility in the Workplace 25:55

1+ y ago25:55

25:55

Workplaces are HARD to navigate as a hypermobile person!! Support is often lacking (to say the least) and hypermobile workers suffer as a result. This episode focuses on practical, actionable steps you can take to try to make your workday at least a tiny bit easier. Check out today’s episode and hear all about. . . The history of ergonomics (it's a…

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Hypermobility and Your Gut: How Connective Tissue Influences Digestive Health 41:12

1+ y ago41:12

41:12

Gut issues suck. Not only are they confusing, often painful, frequently disabling, they can even be life-threatening in some situations. I HATE GUT ISSUES (as do many of my hypermobile patients). And the general lack of support, appropriate diagnostic investigation, and treatment by the broader medical and healthcare communities doesn't help either…

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Ep 007 Feeling Things Differently: Hypermobility and Feelings (and Small Fibre Neuropathy) 23:04

1+ y ago23:04

23:04

Feeling things can be complicated when you're hypermobile! That's why in today's episode of Help! I'm Hypermobile Alex is talking all about FEELINGS! Here is what you will learn: what hypermobility feels like (based on her personal experience, what her patients say, as well as what she has learned from this community) why asking a hypemobile person…

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Ep 06 Hypermobility + Fashion: How To Dress To Support Your Hypermobile Body 22:28

2y ago22:28

22:28

Today we're talking all about hypermobility + FASHION! From head-to-toe, we'll be talking all about how your clothing choices might be helping (or hurting!) your hypermobile body. We'll be covering. . . bras + your brachial plexus compression socks, leggings, and blood pooling sunglasses + sensitivity to light and why "minimal bracing" is something…

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Behind the Beighton Scale 21:13

2y ago21:13

21:13

Today we're talking all about the famous Beighton Scale!🤩 Unfortunately like many things involving hypermobility, the Beighton Scale ends up resulting in a lot of confusion and frustration for hypermobile people❤️‍🩹 In this episode we talk about👇 WHAT the Beighton Scale is (and what it isn't!) the HISTORY of the Beighton Scale (including a love sto…

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71 - Hormones, Pelvic Floor and Hypermobility: Dr. Brit Harmon (PT) 42:41

2y ago42:41

42:41

On this episode, our guest is Dr. Brit Harmon, a Doctor of Physical Therapy who specializes in hypermobility and women’s health. Dr. Brit works to help women to feel more empowered in their ability to create sustainable and obtainable shifts in their bodies and minds. Her background in Hypermobility, the female cycle, holistic health, and the pelvi…

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Hypermobility and Exercise? It's Complicated 37:14

2y ago37:14

37:14

Today we're talking all about EXERCISE! Topics include: why exercise can (when done safely + appropriately) literally help hypermobile people to literally rebuild their bodies a bit about Alex's personal journey with exercise, and some lessons she learned along the way 8 must-know things before starting your next exercise programme a cheat-sheet fo…

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70 - Highly Sensitive People, Neurodivergency, ADHD & Advocacy: Donna Irene 1:00:07

2y ago1:00:07

1:00:07

On this episode, Donna Irene talks about her experience with hypermobile Ehlers-Danlos Syndrome and related conditions. Donna is a travel photographer with hEDS from Miami, FL and soon to be in Chattanooga, Tennessee. She picked up a camera at the age of 13 and since then her camera has taken her to 5 continents and 40 countries. Since her diagnosi…

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Why Are Hypermobile People in Pain? 23:25

2y ago23:25

23:25

Join Alex in today's episode as she explains why people with hypermobility experience pain in simple, easy-to-understand terms. By understanding the problem (which Alex believes centres around scar tissue and dysregulated inflammation), we can start to find effective treatment strategies. Because every good treatment plan begins with a "Why?" The s…

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Incurable Does Not Mean Untreatable! 22:13

2y ago22:13

22:13

In the first-ever Help! I'm Hypermobile episode, Alex discusses her journey from being a young person struggling with symptoms relating to hypermobile connective tissue to becoming a highly sought-after specialist in the field. She also goes over everything she wishes hypermobile people knew (in less than 10mins!) and shares some exciting new annou…

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Speaking with Doctors is Hard (So Here are My Strategies) 16:02

2y ago16:02

16:02

Speaking with medical doctors and other healthcare professionals is hard for a lot of patients, but it's especially challenging for hypermobile patients due to poor awareness and understanding of symptoms relating to hypermobile connective tissue. Join Alex as she delves into some of the challenges hypermobile patients face in today's medical syste…

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Help! I'm Hypermobile Trailer 0:37

2y ago0:37

0:37

Forget the misconceptions—being hypermobile doesn't mean you're stuck without options. Join hypermobility expert Alex as she reveals exciting breakthroughs and practical tips for managing hypermobility, HSD, and hEDS, as well as sharing insight from her own personal journey. Get ready for engaging discussions, relatable anecdotes, and maybe even a …

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69 - Donna Sullivan (TCAPP) - Supporting Children and Families Impacted by EDS, Hypermobility & More 1:10:29

2y ago1:10:29

1:10:29

Content advisory: This episode contains discussion of highly sensitive topics including suicide and allegations of child abuse. Please exercise listener discretion.On this episode, Kerry interviews Donna Sullivan, a patient advocate with the organization TCAPP, The Coalition Against Pediatric Pain. She is a graduate of Providence College and has wo…

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68 - Mitch Martow Update on Advocacy & More 48:26

2y ago48:26

48:26

Mitch Martow returns to the Hypermobility Happy Hour to talk about his documentary and advocacy efforts.LinksBend or Break documentary https://youtu.be/5toRNvFug3YInstagram (@mitchmartow)https://instagram.com/mitchmartow?igshid=MTIyMzRjYmRlZg==Bend or Break Instagram (@_bend_or_break_)https://instagram.com/_bend_or_break_?igshid=MTIyMzRjYmRlZg==htt…

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67 - Kalin Johnson (Part 2) Advocacy, Neurodivergency & More 38:27

2y ago38:27

38:27

On this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best thr…

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66 - Kalin Johnson on Advocacy, Neurodivergency & More 41:42

2y ago41:42

41:42

On this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best thr…

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65 - Taylor Goldberg on Hypermobility 1:06:46

2y ago1:06:46

1:06:46

In this episode, Taylor Goldberg, DC, discusses her practice as a hypermobility coach and her perspectives on various aspects of hypermobility spectrum conditions. Taylor is a chiropractor who works with hypermobile individuals and has a unique perspective through her education and her own experiences with hypermobility. www.hypermobilechiro.comIns…

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64 - Savita Sandhu on Diet and Hypermobility (Part 2) POTS & Diet 51:12

2y ago51:12

51:12

On this episode, returning guest Savita Sandhu from Savvy Dietetics located in Brisbane, Australia discusses diet, POTS, and hypermobility. Savita received her Bachelor Degree in Nutrition and Dietetics with Honours at the Queensland University of Technology and underwent postgraduate training with the Australasian College of Nutritional and Enviro…

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63 - Dr. Alysse Cruz on Diagnosing and Treating Hypermobility from Ages 5-80 52:06

2+ y ago52:06

52:06

On this episode, Dr. Alysse Cruz, who goes by @zebracornmd on Instagram, discusses the diagnostic process for Hypermobility and more. Dr. Cruz is a multiracial, first generation, board-certified family medicine doctor with myopathic Ehlers-Danlos Syndrome (EDS) and POTS and a passion for teaching. She obtained her degree from The Ohio State Univers…

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62 - Camille Schrier on Advocacy, Awareness & More 1:05:49

2+ y ago1:05:49

1:05:49

On this episode, Camille Schrier returns to talk about her life as a pharmacy student and her continuing advocacy efforts regarding Ehlers-Danlos Syndrome. Camille graduated with honors from Virginia Tech in 2018 with dual Bachelor of Science degrees in Biochemistry and Systems Biology. She is currently pursuing a Doctor of Pharmacy degree at Virgi…

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61 - Dr. Melissa Koehl (PT) on Treating the Full Spectrum of Hypermobility 1:12:29

2+ y ago1:12:29

1:12:29

On this episode, Kerry interviews Dr. Melissa Koehl, a physical therapist diagnosed with hypermobile Ehlers-Danlos Syndrome. Dr. Melissa was a competitive level 10 gymnast in her earlier years and ended up incurring a number of injuries including a career-ending stress fracture to her lower back. Dr. Melissa created her own ChimeraFit method that c…

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60 - Zinc & Hypermobility: Fiona Sullivan & Danielle Humphreys 1:33:35

2+ y ago1:33:35

1:33:35

Content notice: This episode contains discussion of premature death and descriptions of physical symptoms and medical procedures/conditionsThis podcast is for informational and educational purposes only. Please consult with appropriate medical professionals before making any changes to your own health regimen.On this episode, researchers Fiona Sull…

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59 - Doug Kremer on Learning about and Treating Hypermobility Later in Life and hEDS in Men 49:40

2+ y ago49:40

49:40

On this episode, Kerry interviews Doug Kremer, a mechanical engineer diagnosed with hEDS in late 2021. He’s the father of two girls, one who is 17 and has mild features of hypermobility and another daughter who is 19 and was diagnosed with hEDS in mid-2021. Doug reached out after finding success with one of the treatments we discussed on this show …

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58 - Hyp-ACCESS: L Tuthall and Audre Wirtanen on Reimagining Hypermobility 1:03:16

2+ y ago1:03:16

1:03:16

Content Warning: This episode contains mentions of suicidality, ableism, abuse, exploitation, medical trauma, white supremacy, eugenics. Please exercise listener discretion.On this episode, Kerry interviews L Tuthall (they, them) and Audre Wirtanen (she, her)--two disabled community organizers, care access advocates, artists, and researchers who co…

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57 - Victoria Daylor: From Dancer to Pre-Med with hEDS 54:44

2+ y ago54:44

54:44

Victoria was a professional dancer and Gyrotonic Instructor who has performed throughout the US and worldwide including in Israel, Greece, and a tour in Austria. After being diagnosed with hypermobile Ehlers-Danlos Syndrome, Victoria switched gears and is now a Postbac student at Columbia University in New York City where she is pre-med and prepari…

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56 - Savita Sandhu (Savvy Dietetics) on Diet and Hypermobility (Part 1) Mast Cells & Diet 58:20

2+ y ago58:20

58:20

On today’s episode, Savita Sandhu from Savvy Dietetics located in Brisbane, Australia discusses the relationship between hypermobility and our diets. Savita received her Bachelor Degree in Nutrition and Dietetics with Honours at the Queensland University of Technology and underwent postgraduate training with the Australasian College of Nutritional …

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55 - Dr. Pradeep Chopra: On Headaches in EDS and their Various Causes (Part 3) 29:00

2+ y ago29:00

29:00

This episode is Part 3 in a series of interviews with Dr. Pradeep Chopra. This episode focuses on the types of headaches experienced by people with EDS and hypermobility and how those headaches can be diagnosed and treated.Dr. Chopra completed an anesthesia residency at Harvard Medical School and went on to complete a fellowship in Pain Management,…

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53 - Dr. Angelina Vera on Hips, Hypermobile Genetics, and More 56:37

2+ y ago56:37

56:37

On this episode, Kerry interviews Dr. Angelina Vera, a fellowship trained orthopedic surgeon who specializes in sports medicine, arthroscopy, and the treatment of injuries to the shoulder, hip, knee, and ankle. Her practice is located in the Las Vegas, Summerlin, and Henderson areas of Nevada. She has a particular interest in hip pathology, anatomi…

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52- John Ferman of EDS Awareness: EDS is Not All in the Head 33:12

2+ y ago33:12

33:12

On this episode, John Ferman returns to talk about his recent work with his organization EDS Awareness/Chronic Pain Partners. EDS Awareness/Chronic Pain Partners has tons of great content including free online webinars that are posted to YouTube (one of which has an astounding 50,000 views) so definitely check them out if you haven’t already and ar…

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51 - Christie Cox - Her Advocacy Practice & New Book Holding it All Together When You're Hypermobile 1:18:49

2+ y ago1:18:49

1:18:49

Christie Cox is a patient advocate who was diagnosed with hypermobile Ehlers-Danlos Syndrome after a 17 year quest to find answers. Christie just published a fascinating book called Holding it All Together When You’re Hypermobile: Achieving a Better Life Experience with EDS, POTS, & Joint Instability and she has a patient advocacy practice that off…

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50 - Dr. Pradeep Chopra (Part 2) POTS, MCAS and More 1:35:00

3y ago1:35:00

1:35:00

Part 2 in our series of interviews with Dr. Pradeep Chopra, renowned specialist in treating pain and the various co-morbidities and symptoms that occur in people with Ehlers-Danlos Syndrome and other conditions involving chronic pain. This episode centers on mast cell activation syndrome (MCAS) and postural orthostatic tachycardia syndrome (POTS).w…

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49 - Hannah Ensor (UK) on the HMSA, Stickman Communications, and More 1:45:31

3y ago1:45:31

1:45:31

On this episode, Kerry interviews Hannah Ensor regarding her work with the Hypermobility Syndromes Association (the HMSA) and Stickman Communications. Hannah is based in the United Kingdom and she worked in the field of Environmental Health for five years before being medically retired at age 28 due to a hypermobility spectrum disorder and postural…

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48 - Mitch Martow: Bend or Break Documentary and Life with EDS 1:07:19

3y ago1:07:19

1:07:19

Trigger Warning: This episode contains discussion of suicidal thoughts and suicide. Please exercise listener discretion and if this episode isn't for you for any reason or if you are listening with children, please skip it, we've got some great new episodes coming out soon. If you are struggling with suicidal thoughts, please seek assistance. You a…

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47 - Dr. Jeffrey Boris on Two Decades of Treating POTS and Related Conditions 1:36:54

3y ago1:36:54

1:36:54

On this episode, Dr. Jeffrey Boris, a board-certified pediatric cardiologist and general pediatrician talks about his experience caring for patients with POTS since 2002. He has worked with patients who have multiple other diagnoses alongside their POTS, including joint hypermobility with or without Ehlers-Danlos syndrome, concussions, mast cell ac…

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46 - Dr. Pradeep Chopra: Overview on EDS and Pain (Part 1) 57:32

3y ago57:32

57:32

On this episode (part 1 in a series), Kerry interviews Dr. Pradeep Chopra who gives an overview regarding treatment of Ehlers-Danlos Syndromes and pain. Dr. Chopra completed an anesthesia residency at Harvard Medical School and went on to complete a fellowship in Pain Management, also from Harvard. Dr. Chopra is double board certified in Pain Manag…

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Alexandra Orfanides Podcasts

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