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HBO and The Ringer's Bill Simmons hosts the most downloaded sports podcast of all time, with a rotating crew of celebrities, athletes, and media staples, as well as mainstays like Cousin Sal, Joe House, and a slew of other friends and family members who always happen to be suspiciously available.
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In the heartfelt finale of our five-part series, Kevin and Allison share their journey of advocating for their son with multiple disabilities, navigating the legal guardianship process, and thriving as a team. Kevin, a philosophy professor, reflects on his writings about disability and advocacy, revealing the personal motivations behind his work. They discuss the emotional complexities of becoming their son’s legal guardian as he approaches 18, addressing the critical challenges and potential risks their son could face without a legal guardian.
The couple opens up about the practical strategies—routines, chore charts, flexibility, and shared responsibilities—that help them manage the unique challenges of caregiving. They also share how parenting their son has transformed their perspectives, their marriage, and their sense of purpose, emphasizing the importance of celebrating the value of individuals with disabilities in a world that often overlooks them.
This episode is a powerful call to advocate, connect, and honor the profound impact of caregiving.
KEY MOMENTS IN THIS EPISODE:
[00:00:47] Exploring Advocacy Through Writing: Kevin shares the origins of his advocacy journey and highlights his key publications on disability.
[00:05:33] A Video That Inspires: Allison points listeners to Kevin’s impactful video on disability and heaven, encouraging deeper reflection.
[00:07:07] Unexpected Advocacy Challenges: The couple discusses surprising obstacles they faced while advocating for their son.
[00:14:53] Navigating Legal Guardianship: Kevin and Allison open up about the emotional and practical steps of becoming their son’s legal guardian at 18.
[00:20:35] Teamwork in Caregiving: They reveal how routines, flexibility, and shared responsibilities keep their family strong.
[00:26:57] Impact on Their Marriage: The couple reflects on how caregiving has shaped their relationship, for better and for worse.
[00:29:04] Unexpected Gifts of Caregiving: Kevin and Allison share positive outcomes that emerged from their caregiving journey.
[00:38:06] Advice for New Caregivers: They offer heartfelt wisdom for parents beginning the journey of caring for a child with disabilities.
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