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Questions/Comments: Email [email protected] and/or support Cure Sanfilippo FoundationWebsite: www.CureSanfilippoFoundation.orgFacebook: https://www.facebook.com/CureSanfilippoFoundationTwitter: https://twitter.com/CureSanfilippoFInstagram: https://www.instagram.com/curesanfilippofnd/TikTok: https://www.tiktok.com/@curesanfilippo
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New Sanfilippo drug repurposing clinical trial; updates on other research + more
8:19
8:19
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8:19
Episode 12: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about things happening in Sanfilippo today, …
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WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more
8:53
8:53
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8:53
Episode 11: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, shares highlights from the 2022 WOLRD Symposium co…
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Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more
9:38
9:38
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9:38
Episode 10: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about how the Foundation finished 2021 in fu…
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Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more
10:36
10:36
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10:36
EPISODE 9: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Dr. Cara O’Neill, Chief and co-founder of Cure Sanfilippo Foundation, gives a year-end update on some important projects i…
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BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more
12:48
12:48
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12:48
EPISODE 8: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, praises the Sanfilippo Syndrome community as famili…
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Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & more
13:09
13:09
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13:09
Episode 7. “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, President and Co-Founder of Cure Sanfilippo Foundation, shares footage from his presentation during an Ever…
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Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more
11:06
11:06
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11:06
Episode 6. “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about the inspiration and “why” behind creati…
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Patient Needs & Culture of the Laboratory; Kickoff 2021 StepUp fundraiser; families milestone & more
10:56
10:56
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10:56
Episode 5: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about a recent presentation by Foundation Chi…
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Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more
11:38
11:38
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11:38
Episode 4: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about a free worksheet perfect for helping yo…
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Free Educator Guide; Dopamine & Reducing Autism Behaviors + more
12:01
12:01
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12:01
Episode 3. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about publication of a guide for educators and therapists about the important role they play in supporting neurocognitive function and quality of life in children with neurodegenerative diseases and how they can best serve these children in the e…
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Chan Zuckerberg, Sanfilippo biomarkers & FDA; Anakinra trial update; + more
10:49
10:49
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10:49
Episode 1. “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about the Foundation's application for the Ch…
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In Memory of Reagan; New testing created; $1M granted for 5 new projects + more
9:59
9:59
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9:59
Episode 2. "A Close Look At Sanfilippo” is a regular 10-minute podcast covering five topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, remembers and honors Reagan McGee; talks about how a ne…
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