Episode 2. "A Close Look At Sanfilippo” is a regular 10-minute podcast covering five topics regarding Sanfilippo Syndrome, a rapidly degenerative disease in children currently with no FDA-approved treatment.
In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, remembers and honors Reagan McGee; talks about how a new tool to test drugs that can lessen the buildup of heparan sulfate; gives a sneak peek into the face of the Foundation’s next video campaign, coming out later this year; shares how the Foundation is walking the walk to ensure information accessibility; and details the Foundation’s latest grant round of more than $1 million in funding for five new research projects to help children with Sanfilippo.
Information about the new testing assay: https://www.CureSFF.org/article2
Questions: [email protected]
Follow Cure Sanfilippo Foundation:
Facebook: https://www.facebook.com/CureSanfilip...
Twitter: https://twitter.com/CureSanfilippoF
Instagram: https://www.instagram.com/curesanfili...
TikTok: https://www.tiktok.com/@curesanfilippo
#CureSanfilippo #RareDisease #ACureCantWait #ACloseLook #Podcast
Music credit: Springish by Gillicuddy (https://www.freemusicarchive.org/musi...)
© 2021 Copyright reserved Cure Sanfilippo Foundation