Best Pkd Podcasts (2025)

On this episode of Just Listen: Voices of PK Deficiency, host Dr. Rachel Grace interviews Dr. Andreas Glenthøj, a hematologist from Copenhagen University Hospital, about his journey into genetic red blood cell disorders and the latest international guidelines for managing PK deficiency. They discuss various complications like iron overload, bone de…

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When Good Food Goes Bad: How to Protect Yourself from Food Poisoning 35:00

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12d ago35:00

35:00

Most people know not to eat the potato salad that’s been sitting on the picnic table for 8 hours. But what about leftover takeout, raw cookie dough, or produce and meat recalls? Is your gurgling stomach a herald of doom? On this episode of Health Matters, we talk with Dr. Christine Ragay-Cathers about what happens when food goes bad, common culprit…

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Vital Outdoor First-Aid Lessons Before the Big Hike: Medical Best Practices That Could Save Your Life 37:04

26d ago37:04

37:04

The sun on your face, the wind in your hair, the earth crunching under your boots… what’s not to love? Well, maybe blisters. Or spider bites. Or a sprained ankle. Actually, a lot of things can go wrong in nature. But with preparation, you can make good decisions and take in all the benefits fresh air has to offer. This episode, we’re joined by Dr. …

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The Mental Health Conversation Your Primary Team Wishes You Would Have 37:14

1M ago37:14

37:14

You probably know that modern mental health care doesn’t mean lying down on a couch and looking at ink blots. But you might not realize that for many folks, mental health care starts in primary care. Your primary care physician could be your first—and maybe only—stop on your way to mental wellness. On this episode of Health Matters, we talk with Dr…

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BONUS EPISODE: Face in the Mirror 33:08

2M ago33:08

33:08

We're excited to share an audio preview of our new book, Face in the Mirror: A Surgeon, a Patient, and the Remarkable Story of the First Face Transplant at Mayo Clinic. You can order your print copy of the book from Mayo Clinic Press, or keep listening to the audiobook on Audible, Libro.fm, Audiobooks.com, or wherever you get your audiobooks. Adver…

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A Surgeon, a Patient, and the Remarkable Story of the First Face Transplant at Mayo Clinic 33:45

2M ago33:45

33:45

The first face transplant was performed in 2005. Since then, only about 50 face transplants have been done in the entire world. It’s a complex surgery that requires all the expertise a surgeon can bring to the table. It can also be life-changing for patients. On this episode of Health Matters, we’ve got two amazing guests: Dr. Samir Mardini, a faci…

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PKD and Emotions: Real Talk for Young Warriors 46:30

2M ago46:30

46:30

This episode speaks directly to young people living with PKD, addressing the profound emotional challenges that come with the territory. From dealing with a new diagnosis to navigating feelings of loss and uncertainty, we tackle the mental health aspects of PKD head-on. Join us for honest conversations about grief, resilience, and the mental hurdle…

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Understanding the PKD Life Stage Model 25:47

2M ago25:47

25:47

On this episode, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, discusses the Life Stage Model initiative with patient advocacy leaders, Tamara Scriver and Alejandra Watson. They delve into the work of the PKD Advocacy Advisory Council (AAC) and how it addresses the unmet needs of the community. The conversation high…

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Interview #35 - Anthony Peake - A Life of Philip K. Dick 1:51:53

2M ago1:51:53

1:51:53

Hello, PKD & Anthony Peake fans. D. Harlan Wilson conducted this interview with the acclaimed author a while back, and finally, here it is now. Get ready to get metaphysical as they discuss everything from aliens to the true meaning of Deja Vu to mind-opening drugs—All within the framework of Philip K. Dick's life and beliefs.Our Patreon ►► http://…

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The Skincare Secrets Doctors DO Want You to Know: Reclaim Skin Health, Rejuvenation and Vibrance 40:39

2M ago40:39

40:39

In today's world, skincare is largely focused on aesthetics, but what about its impact on our physical well-being? In this episode of Health Matters, Dr. Saranya Wyles joins us to discuss the vital functions of our skin, tips for maintaining its health, and the latest advancements in skin healing and rejuvenation. Sign up to receive Mayo Clinic Pre…

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Navigating the Patient's Journey featuring Brenda Snow 57:59

2M ago57:59

57:59

Patient Worthy is humbled to speak to Brenda Snow, CEO and Founder of Snow Companies and now the bestselling author of 'Diagnosed: The Essential Guide to Navigating the Patient's Journey'. We discuss Brenda's own journey with Multiple Sclerosis and how she has turned it into a career and guidebook for others facing chronic diagnoses. You can find B…

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Episode #52 - Radio Free Albemuth - with Lisa Morton 2:38:44

3M ago2:38:44

2:38:44

The acclaimed horror novelist and Radio Free Albemuth playwright Lisa Morton joins the DickHeads for the final published science fiction novel we have to cover. Radio Free Albemuth is part autobiography, part VALIS mythology, and part rough draft. Most of all, it is pure PKD. Plus: Riffing on the Royal Portable. Fappers. And making groovy sandwiche…

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Changing the Future of Your Kidneys: PKD and Beyond 28:48

3M ago28:48

28:48

When was the last time you thought about your kidney? If you’re a healthy individual, maybe not so much. But this unassuming organ is vital—and kidney diseases, like polycystic kidney disease, can put people at serious risk of health complications. On this episode of Health Matters, we’re talking with Dr. Fouad Chebib to sing the praises of the sma…

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When Do I Need a Tetanus Vaccine? 28:28

3M ago28:28

28:28

Remember the childhood warning about rusty nails and tetanus? Turns out, there’s more to the story. On this episode of Health Matters, Dr. Priya Sampathkumar unpacks the truth about tetanus—how it spreads, the signs of infection, and why staying up to date on your vaccines is crucial. Find us online at Mayo Clinic Press for more health and wellness…

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Tomorrow's Cure: AI Powered Stethoscopes Improve Access to Heart Care 28:56

3M ago28:56

28:56

We've got a special episode for you today from our friends at Tomorrow's Cure! Tomorrow's Cure is a Mayo Clinic podcast that is bringing the future of healthcare to the present. The stethoscope, one of the most iconic symbols of medicine, was invented over 200 years ago. Today, artificial intelligence is revolutionizing this essential tool, empower…

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Beyond Ozempic: The GLP-1 Boom 33:50

4M ago33:50

33:50

Ozempic. Wegovy. Mounjaro. Zepbound. You’ve probably heard the name of one of these drugs in the past few years—maybe you’ve even thought about taking them. Every day, more Americans are taking these drugs known as GLP-1s, either for chronic conditions like diabetes or, increasingly, for weight loss. So do these drugs deliver on the promise of easy…

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I Have Breast Cancer - Now What? 35:03

4M ago35:03

35:03

Life after a breast cancer diagnosis is rarely the same as it was before. Breast cancer changes your relationship with your body. It changes your relationship with the people around you. It changes life’s daily rhythms. But that doesn’t mean life can’t be richer, more meaningful and perhaps even healthier. Living with breast cancer is about more th…

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Pregnancy: The Heart's First Stress Test 34:17

5M ago34:17

34:17

Cardiovascular disease accounts for more than a fourth of pregnancy-related deaths in the U.S. The good news is that doctors believe the vast majority of those are entirely avoidable. On this episode of Health Matters, Dr. Niti Aggarwal shares how heart issues during pregnancy aren't just a temporary condition for nine months -- instead, they're ac…

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Facts on Fertility, Part II 36:33

5M ago36:33

36:33

If you're struggling with infertility, what are your options for available treatment? On this episode of Health Matters, Dr. Zaraq Khan returns to share the details on IUI, IVF, ICSI, third party reproduction, and more. He'll also break down the myth of cyropreservation, and explain newer experimental technologies -- from ovary and uterine transpla…

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Facts on Fertility, Part 1 36:55

6M ago36:55

36:55

One out of eight couples in the United States experience difficulty getting pregnant. A large and often unspoken contributor to that statistic? Male factor infertility. On this episode of Health Matters, Dr. Zaraq Khan breaks down all the necessary components to create a pregnancy, and shares his thoughts on how infertility -- generally a couple's …

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PKD Conference 29:51

6M ago29:51

29:51

On this episode of Just Listen: Voices of PK Deficiency, guest host Janie Davis (Director, Patient Advocacy at Agios) is joined by special guests Tamara Schryver, Jill Welle, and Alejandra Watson to discuss the impact and organization of the second international PKD Conference. They share their experiences, the importance of international collabora…

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How to Sleep Better 45:34

6M ago45:34

45:34

Sleep: it's complicated. Our sleep quality is at the root of countless health issues. So, how do we change our habits? On this episode of Health Matters, we're speaking with Dr. Timothy Morgenthaler, a sleep medicine specialist and the director of Mayo Clinic’s Center for Sleep Medicine, about how to sleep better. Dr. Morgenthaler shares tips about…

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Interview #34 - Linda Castellani - The Dark-Haired Girl 1:17:12

7M ago1:17:12

1:17:12

Content warning: Linda is honest about the sexist environment at the university at the time; there are plenty of ugly moments between Phil and Linda, which are explained in this podcast. –DAOn this episode of the Dickheads podcast, The Davids welcome Linda Castellani. In the early 70s, she was an English major at Cal State Fullerton when her profes…

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Feel the Burn? GERD and Acid Reflux 36:54

7M ago36:54

36:54

Heartburn, acid reflux, GERD—what’s the real difference? In this episode of Health Matters, gastroenterologist Dr. Dawn Francis breaks it down, explaining why an estimated 1 in 5 Americans experience frequent reflux symptoms. We dive into how diet factors into your gastro health, the mechanics of the digestive system, and the lifestyle changes you …

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The Role of AI in Medicine feat. Joe Lennerz, BostonGene 38:33

7M ago38:33

38:33

On this episode of the podcast, we discuss the role of artificial intelligence (AI) in medicine – specifically in the areas of analysis and diagnosis. Our guest, Dr. Joe Lennerz, is the chief scientific officer at BostonGene, an American clinical technology company that studies and produces new diagnostic tools in the areas of oncology and immunolo…

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Supplements, Simplified 37:08

7M ago37:08

37:08

1 in 5 people use herbs and other dietary supplements to improve their health and well being. But with all the conflicting information out there, it can be hard to tell: Are supplements good for you, or not? On this episode of Health Matters, Dr. Brent Bauer talks about the possible benefits and pitfalls of taking supplements, and how to go about c…

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Episode #51 - In Milton Lumky Territory 2:17:15

7M ago2:17:15

2:17:15

Hello fellow DickHeads. Yes, we are back. No, Langhorne is not dead yet. And this time, it's another straight novel, In Milton Lumky Territory. Another trunk piece published shortly after his untimely death. Here, he tells the story of young Bruce, his attempt to make it as a salesman in the Pacific Northwest, and the typewriters that would plague …

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How the News Rewires Your Brain 38:35

8M ago38:35

38:35

Constantly tuning into the news can feel stressful, and sometimes... inescapable. Even when you turn off your TV, you'll still find out what's going on - online, through friends, or through social media. So how can we find ways to be calm when it feels like we're constantly being bombarded? On this episode of Health Matters, clinical psychologist A…

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Spreading PAH Awareness featuring Steve Smith 25:38

8M ago25:38

25:38

In this episode of the podcast we speak to Steve Smith, a patient advocate who is living with Pulmonary Arterial Hypertension (PAH), a rare and progressive condition characterized by narrowing of the blood vessels in the heart and lungs. Steve is a college administrator and avid theater participant who uses his PAH story to connect with others, bel…

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Who's the Queen of Hemorrhoids? 36:05

8M ago36:05

36:05

Awkward. Taboo. The stuff of juvenile comedy. That's how many people would describe hemorrhoids, if they even talk about them at all. And if the emotional discomfort isn't enough, they're also pretty physically uncomfortable. But for something we don't talk about, a LOT of us experience them. One in two people will experience a hemorrhoid by the ti…

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Optimizing Nutrition for PK Deficiency: A Patient & Dietitian's Perspective 37:49

8M ago37:49

37:49

his episode, Dr. Rachael Grace welcomes back Tamara Schryver, PhD, RD, President of Thrive with PK deficiency, to discuss the essential role of nutrition and physical activity for individuals with PK deficiency. They explore the importance of iron management, vitamin intake, and tailored dietary plans developed by registered dietitians. Dr. Schryve…

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Is My Dog or Cat Improving My Health? 25:28

9M ago25:28

25:28

Pets are close to our hearts — and they’re good for our hearts. Having a pet is linked to a whole host of cardiovascular benefits, from reduced blood pressure to increased physical activity. So snuggle up with your pup, and let’s learn how caring for our animals helps us care for ourselves, too. On this episode of Health Matters, cardiologist Dr. F…

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All About Koolen de-Vries Syndrome, feat. Patient Advocate Ashley Point 26:49

9M ago26:49

26:49

In this episode of the podcast we speak to Ashley Point, a patient advocate advocate whose son Davis was diagnosed with Koolen de-Vries Syndrome (KdVS) in 2016. She also serves as the president for both the Koolen de-Vries Syndrome Foundation and My Kool Brother, two non-profits that help to support families living with KdVS through advocacy, resea…

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What Happens If an Astronaut Gets Sick in Space? 37:50

9M ago37:50

37:50

Space: the final medical frontier. This is the interview with Dr. Jan Stepanek. His continuing mission: to explore strange new medicine; to seek out new treatment and new conditions; to boldly treat where no doctor has treated before. Or in other words, on this episode of Health Matters, we talk with aerospace medicine specialist Dr. Jan Stepanek a…

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How Much Sun Is Too Much Sun? 37:28

10M ago37:28

37:28

Nothing says summer like fun in the sun. But that can also give us cancer! In fact, skin cancer is the most common form of cancer in the U.S. — one in every five Americans will develop it. So how do we enjoy the sun, soak up its benefits, and stay safe? On this episode of Health Matters, we talk with dermatologist Dr. Naiara Sbroggio Barbosa about …

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Understanding Splenectomy in PK Deficiency 27:34

10M ago27:34

27:34

On this episode, host Dr. Rachel Grace interviews Dr. Satheesh Chonat, a pediatric hematologist and expert in red cell disorders. They discuss Dr. Chonat’s career path and focus on the complexities of managing anemia in patients with pyruvate kinase deficiency, emphasizing the role of the spleen. They explore why splenectomy might be considered, po…

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Should I Be Signing Up for a Polar Bear Plunge? 31:13

10M ago31:13

31:13

Sweating. Freezing. Sweating. Freezing. That's the “nordic cycle,” or alternating between a sauna and cold water. More spas are offering both hot and cold therapies as part of their services, and at-home sauna tents and ice baths are becoming more and more popular. But how beneficial are these methods of extreme temperature exposure for your health…

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PKD and the Gift of Life, feat. Patient Advocate Valen Keefer 40:10

10M ago40:10

40:10

In this episode of the podcast we speak to Valen Keefer, a professional speaker and patient advocate who was diagnosed with polycystic kidney disease (PKD) at age 10. Valen has faced a number of challenges in her journey, including a double organ transplant, and now inspires other PKD and chronic illness patients by sharing her story. Connect with …

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Who's Afraid of Brain-Eating Amoebas? 27:59

11M ago27:59

27:59

In 2023, both a toddler in Arkansas and a swimmer in Texas died from the infection of a brain-eating amoeba, Naegleria fowleri, likely contracted from local water sources. ""Brain-eating amoebas"" is a scary headline that sounds like something out of the Twilight Zone, but just how worried should we be? And how serious are the ramifications of infe…

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Is This ADHD? 43:01

11M ago43:01

43:01

Distraction runs rampant in our society — we can all relate. But when you have ADHD, navigating a chaotic world can be especially challenging. And adult ADHD is on the rise. During the pandemic, diagnoses and prescriptions for ADHD in adults increased significantly. So what’s driving this increase in diagnoses? And how do you tell if you yourself h…

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Health Matters Trailer 2:07

11M ago2:07

2:07

Join host Kristen Meinzer in conversation with Mayo Clinic’s leading medical experts as she asks all the questions you’re eager to (or maybe even afraid to) ask, letting curiosity lead the way. Wondering if you might have ADHD? Or how your pet affects your health? Be part of an informative—and fun—discussion about one of the most important topics: …

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The Power of Resiliency, Feat. Multiple Myeloma Patient Advocate Keisha Hickson 50:02

11M ago50:02

50:02

In this episode of the podcast, we speak to professional speaker and community advocate Keisha Hickson, who was diagnosed with multiple myeloma in 2016. That’s a rare form of cancer that develops in a type of white blood cell called a plasma cell. We discuss navigating a rare cancer diagnosis, adjusting to a new normal and the importance of resilie…

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PKD International Guidelines 37:30

12M ago37:30

37:30

On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation to discuss the newly available international guidelines for diagnosing and managing pyruvate kinase deficiency (PKD). The discussion highlights the impor…