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Rare Care Podcasts

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Rare Voices reveals the wisest path to a fulfilled life for patients with rare and orphan disorders. Brought to you by the people at Optime Care, a pioneering specialty pharmacy. In each episode, we uncover insights from patient advocates, pharmaceutical innovators, leaders in insurance, physicians, and caregivers. Prepare to provoke your mind and fuel your drive to serve rare and orphan patient populations.
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RARECast

RARECast

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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Nutricia’s Caring for Rare explores what life is like with a rare metabolic disorder – from difficulties at diagnosis to adapting to condition management to thriving in everyday joys. Episodes feature personal experiences with rare inborn errors of metabolism like phenylketonuria (PKU). These stories may not be representative of all rare metabolic disorders, and this podcast in no way replaces the guidance and supervision of metabolic healthcare professionals. Guests on Caring for Rare are c ...
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The AOP Health Group is the European pioneer for integrated therapies for rare diseases and in critical care. Over the past 25 years, the Group has become an established provider of integrated therapy solutions and has a highly consistent and pragmatic orientation towards the needs of all its stakeholders– especially the patients and their families as well as also the healthcare professionals treating them.
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This is the Fight2Breathe podcast, hosted by Caleigh Haber, a cystic fibrosis survivor and two-time double lung transplant recipient. The podcast aspires to be the go-to platform for the CF community, featuring powerful personal stories, expert insights, and the latest advancements in CF care. Each episode engages individuals living with CF, their families, caregivers, and medical professionals, fostering understanding, celebrating victories, and tackling challenges. Tune in to inspire, educ ...
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Rare Kidney Disease Show

Travere Therapeutics

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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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PEP Talks ISPEP

Emma Sutcliffe

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PEP Talks from ISPEP The role of a patient engagement professional can be ... lonely, rewarding, frustrating, demanding. All of these things! It is a challenge advocating for people living with chronic, rare, sometimes life-threatening conditions. These short PEP Talks are there for you when you need a boost from a fellow professional. Brought to you by ISPEP -- the professional home for all patient engagement experts.
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Let the weekly podcast from DK Vine be the anthem in your ears whether you’re on the street or feeling the Jungle Beat. In these uncertain times, you don’t want to just fight the power. You want to fight the power while playing with Nintendo Power! It’s a regular Rarevolution as we debate current events or the lessons of history from the Donkey Kong Universe: Donkey Kong Country, Banjo-Kazooie, Conker, Dinosaur Planet, Yooka-Laylee, Sea of Thieves, and much more. No kings. No tyrants. Just t ...
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The Elective Rotation - the number 1 ranked Hospital Pharmacy podcast - is created for YOU Pharmacy Nation! If you are a Pharmacy Student, Resident, Pharmacist, Nurse, Physician, or Critical Care Practitioner in a hospital, intensive care unit (ICU) or emergency department looking to improve your practice, The Elective Rotation delivers unbiased critical care and hospital pharmacy content from a Board Certified Pharmacotherapy Specialist. Episodes are published every Monday and Thursday at 3 ...
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FabryCast

Canadian Fabry Association

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The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry. Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space.
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Write Medicine

Alexandra Howson PhD | CME Writer, Educator, Researcher

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If TED Talks and a mastermind group had a podcast baby for CME professionals, it would be Write Medicine. Think of Write Medicine as the NPR of continuing medical education—smart, engaging, and always packed with insights you can use right away. Every week, your host, Alexandra Howson PhD, cracks open the secrets of powerful CME content, decoding adult learning, designing impactful outcomes, and navigating the fast-changing world of medical education. Sometimes, she goes solo. Other times, s ...
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We call ourselves the 4am Mom Club because more nights than not, our kids are awake at 4am. We both have very medical, complicated, rare, beautiful children. This is a podcast for medical and disability mamas (and the people who love them) who are facing a life they never expected. We share hope-filled stories of families, all shapes, colors, sizes and abilities, all in different phases of their medically complex or disabled caregiving journey. When Autumn Comes Podcast is a program of the A ...
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Organized Money

Rock Creek Sound

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Organized Money is a podcast about how the business world really works, and how corporate consolidation and monopolies are dominating every sector of our economy. The series is hosted by writers and journalists Matt Stoller and David Dayen, both thought leaders in the antimonopoly movement. Organized Money is a fresh spin on business reporting, one that goes beyond supply and demand curves or odes to visionary entrepreneurs. Each week Matt and David break down the ways monopolies control eve ...
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UpStream

The River

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It can be tough navigating life's rough waters. Up Stream is here to help make that journey a little smoother. About the host: Joy Tolle Joy has been with The River in various capacities since 2016. An ordained chaplain since 2019, she is now the lead chaplain for the team of River chaplains. She holds a deep compassion for people and believes her role is best described as a bridge between the sacred and secular, bringing Christ’s care and hope to those hurting and in crisis. Joy holds a Bac ...
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Raise the Line

Osmosis from Elsevier

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Join host Lindsey Smith and other Osmosis team members for a global conversation about improving health and healthcare with prominent figures in education and healthcare innovation such as Chelsea Clinton, Mark Cuban, Dr. Ashish Jha, Dr. Eric Topol, Dr. Vivian Lee and Sal Khan, as well as senior leaders at organizations such as the CDC, National Institutes of Health, Johns Hopkins University, WHO, Harvard University, NYU Langone and many others.
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GRACEcast Kidney Cancer Video

cancerGRACE - H. Jack West, MD

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Oncology experts summarize current and emerging issues in cancer management for patients and caregivers. Information from the Global Resource for Advancing Cancer Education (GRACE) helps people to become informed partners in their care.
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The Tyler G. Show

Tyler Gulley

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Welcome to a podcast where grown men obsessed with collecting plastic forms of their favorite DC heroes can discuss in a safe environment. Where we don't have to force our family members to pretend they care as we describe finding the last rare figure with a good paint job and no googly eyes. Should be a blast! Interviews weekly from toy photographers, toy collectors, and creators in general. Support this podcast: https://podcasters.spotify.com/pod/show/batmanfigs/support
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The Factor Care Podcast

Produced By Rhea Media Group

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At Factor Care RX, their commitment to individuals with hemophilia is deeply rooted in empathy and understanding. They recognize the unique challenges and obstacles that come with managing this complex condition and approach each interaction with care and compassion. Whether it's assisting with medication access, navigating insurance complexities, or simply providing a listening ear, Factor Care RX is there every step of the way.
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For Those Who Care

RuthAnn Batchelder

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Join us for honest and authentic conversations about the profound experiences of long-term caregiving, grief, loss, and the journey of moving forward. This podcast delves into a personal journey spanning 27 years, marked by encounters with cancer, dementia, decline, and loss. Amidst these challenges, we also explore themes of hope, gratitude, and the transition from merely existing to truly living. Gain valuable insights and a deeper understanding of the caregiver’s life. Whether you’re a ca ...
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SSRI’M OK

ssrimokpod

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Join Dr. Bijan Zarrabi, a resident psychiatry doctor at Harvard Medical School, and Macey Isaacs, a stand-up comedian, as they conduct insightful interviews with experts in the field of psychiatry. With the help of comedians, they navigate discussions on topics such as depression, anxiety, ADHD, and more, aiming to debunk misinformation and demystify mental health. Their goal is to destigmatize these issues through a blend of expertise and humor, making listeners feel understood and supporte ...
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Primary Care UK: Let's Learn Together

Dr Munir Adam & the Primary Care UK Team

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Primary Care UK: Let's Learn Together is the podcast for the busy healthcare Professional interested in Clinical updates, System updates, Primary Care Roles, Supervising & Support and Personal wellbeing. Main website: www.primarycareuk.org The multi-professional team ensures that every episode is for all: GPs, Nurses, and all the AHPs (Allied Health Professionals) including Clinical Pharmacists, Physician Associates, First Contact Physiotherapists and Paramedics, Nursing Associates, other do ...
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The Daily

The New York Times

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This is what the news should sound like. The biggest stories of our time, told by the best journalists in the world. Hosted by Michael Barbaro, Rachel Abrams and Natalie Kitroeff. Twenty minutes a day, five days a week, ready by 6 a.m. Unlock full access to New York Times podcasts and explore everything from politics to pop culture. Subscribe today at nytimes.com/podcasts or on Apple Podcasts and Spotify. Listen to this podcast in New York Times Audio, our new iOS app for news subscribers. D ...
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Chatting with Candice

Candice Horbacz

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Hi, I'm Candice Horbacz I believe that life is messy and that's okay, that thinking for yourself is rare but necessary, and that we should always be expanding our curiosity. This podcast aims to have conversations that are thought provoking and challenge you to become a critical thinker.
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Out of Patients with Matthew Zachary

Matthew Zachary Worldwide

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Out of Patients with Matthew Zachary is the longest-running, independent healthcare podcast. Since 2007, Matthew’s been calling out the hypocrisy, hubris, and hostage-taking baked into American healthcare—with a mic in one hand and a middle finger in the other. What started as a pirate radio rebellion is now the most trusted, notorious, and unfiltered show in the game. Patients love it. Industry listens. And anyone who’s ever been gaslit by the system knows exactly where to turn to nod their ...
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WeHaveAVoice

WeHaveAVoice

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WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.
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I am a fellowship-trained and Board Certified Sleep Medicine specialist, and chronic insomniac turned sleep biohacker, who is on a mission to empower my listeners to improve their sleep naturally. Season 2 will explore insomnia as a symptom of other deeper issues and sleep disorders. It is all about circadian misalignment, sleep apnea, rare central disorders of hypersomnia, and beyond. Wellness is about maintaining our health as long as possible, and maximizing our potential for restful slee ...
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Chats that encourage women to live well

Zenobia Bailey and Living Well

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This show examines everyday concerns with a focus on women. Relationships, responsibilities, personal safety, health and wellness, nutrition supplementation, exercise and fitness, skin care, retirement, and residual income streams are among the many topics that will be explored.
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EyeCan

Canadian Ophthalmological Society

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EyeCan: A Canadian Lens on Ophthalmology. In this series, we examine all aspects of what it means to be an Ophthalmologist in Canada; we speak with leaders in our field about their contributions and life journey; we explore new and emerging techniques and technologies in eye care. Through it all we hope to connect with our community and have those that listen understand the value of who we are and what we do for our patients. We’ll share our experiences as ophthalmologists today and tackle s ...
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Marsha P. Johnson is THE icon of the LGBTQ+ movement and one of the mothers of the fight for trans rights. Today, you can buy T-shirts emblazoned with her face or walk through a park named in her honor. This season on Afterlives, we hear from Marsha in her own words. Afterlives is a documentary podcast series about trans lives we’ve lost and the ways their stories have reshaped our world. Host Raquel Willis brings Marsha’s story to life through rare archival interviews and intimate conversat ...
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Medicine is often portrayed in entertainment with questionable accuracy. These women in medicine break it down for you; from the rare diagnosis, to the downright weird, they cover it all. With some drinks and laughs sprinkled in, they take you on a lively tour of medicine in media. If you have ever questioned how healthcare is portrayed in your favorite television show, Tik tok reel, song or movie, or just need a few laughs, tune in to “Medical Media Mixer”, The Perfect Cocktail.
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Health Tech is a GeekWire podcast that explores the cutting edge of digital health. On each episode, we bring you stories about innovative technologies for patients, doctors and more, giving you a window into the future of health. Our fifth season is sponsored by Premera Blue Cross. Learn more about Premera here: https://www.premera.com/premera-voices/
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Sam Talks Telehealth

Slice of Healthcare LLC

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A Slice of Healthcare podcast hosted by Sam Lippolis, Telehealth Consultant & FMR Director of Connected Care at UC Health. Key topics center around telehealth planning, key industry trends, and more!
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AVM Alliance Podcast

Raylene Lewis

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The AVM Alliance Podcast was created for parents who are taking care of a medically complex child including those who have been diagnosed with epilepsy or rare disease. This podcast has a slight focus on pediatric stroke, Brain AVM / Aneurysm (brain vessel disease) and traumatic brain Injury (TBI). The goal is to provide helpful information and remind other parents they are not alone on this difficult journey. Thank you for joining us.
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Welcome to Barn & Soul, a podcast brought to you by Dalby Farm - where we will explore the heart of "pet farm" life, learn about critically populated (if not outright) endangered farm breeds, and highlight the deep connections between animals and humans which we strive to encourage and preserve. The farm has been Kendall's (your host) family since 1861 but it wasn't always a sanctuary for endangered farm breeds or an educational venue for the community. This podcast will touch upon aspects o ...
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This podcast is about the advancement of rare disease research told by health professionals, researchers, parents, and advocates. This podcast is for you to learn how newborn screening research saves the lives of babies every day through discoveries of new technologies and treatments. You will hear stories from experts who treat babies, the families who care for them, and the researchers who make it all happen.
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Empowered by Hope

Emily K. Whiting and Ashlyn Thompson

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You want the best possible quality of life for your child regardless of diagnosis or prognosis. Raising a child with medical complexities is often lonely, scary and overwhelming. Join two parents of amazing children with rare medical complexities, Emily K. Whiting and Ashlyn Thompson, to get help and grow with them into empowered advocates for our kids. Here you’ll find a community of support, encouragement, education and resources, equipping you to navigate your child’s medical complexities ...
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Behind the Genes

Genomics England

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We are Genomics England and our vision is to create a world where everyone benefits from genomic healthcare. Introducing our refreshed podcast identity: Behind the Genes, previously known as The G Word. Join us every fortnight, where we cover everything from the latest in cutting-edge research to real-life stories from those affected by rare conditions and cancer. With thoughtful conversations, we take you behind the science. You can also tune in to our Genomics 101 explainer series which br ...
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Trusted ER doctor Brian Goldman brings you honest and surprising stories that can change your health and your life. Expect deep conversations with patients, families and colleagues that show you what is and isn't working in Canadian healthcare. Guaranteed you’ll learn something new. Episodes drop every Friday.
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ABCs of NMOSD

Siegel Rare Neuroimmune Association (SRNA)

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ABCs of NMOSD brings together the latest information and research about all things NMOSD, from diagnosis and treatment to quality of life and what it’s like to live with NMOSD. We invite medical experts and researchers, to share the latest up-to-date research and clinical knowledge. We have conversations with individuals who have been diagnosed with NMOSD, their caregivers, and allied health professionals. We give tips on how to advocate at school and at work, where to find help and support, ...
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Carolina Barnett-Tapia, MD PhD, an associate professor of neurology at the University of Toronto, about how myasthenia gravis is treated throughout the Western Hemisphere.By Rare Care Podcast
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A little over a week after the devastating floods in Central Texas, the death toll has reached more than 130 people — and the search for the missing continues. In the aftermath of the disaster, there have been mounting questions about how local officials handled the critical hours before and after the storm. Today, we look at the missed opportuniti…
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After the outbreak of the 2011 Syrian War, a number Syrian-Armenians who had lived in the territory for generations, fled to the Republic of Armenia. This book traces the experiences of Syrian-Armenian women as they navigated their changing and gendered identities from their adopted 'homeland' to their socially constructed new 'ancestral' home in A…
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In this episode, a rare piece of good news in prescription drug pricing. Matt and David speak with Antonio Ciaccia, president of 3 Axis Advisors and architect of Ohio’s Medicaid pharmacy overhaul, and Benjamin Jolly, pharmacist and advocate with the American Economic Liberties Project. Together, they unpack how Ohio kicked pharmacy benefit managers…
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The AIDS crisis devastated our community in the 1980s. It’s an era defined by loss. But those feelings of helplessness gave rise to unprecedented love in the form of caretaking and bold activism. For Marsha, the 80s were all of these things. The era was also marked by a new home and a chosen family in Hoboken, New Jersey. Hear how Marsha found stab…
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Send us a text In the heartfelt finale of our five-part series, Kevin and Allison share their journey of advocating for their son with multiple disabilities, navigating the legal guardianship process, and thriving as a team. Kevin, a philosophy professor, reflects on his writings about disability and advocacy, revealing the personal motivations beh…
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Dr. Anne Marie Morse walks into the studio like a one-woman Jersey Broadway show and leaves behind the best damn TED Talk you’ve never heard. She’s a neurologist, sleep medicine doc, narcolepsy expert, founder of D.A.M.M. Good Sleep, and full-time myth buster in a white coat. We talk about why sleep isn’t a luxury, why your mattress does matter, an…
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First, we talk to The Indian Express' Tanusree Bose about the IIM rape case, where a woman psychologist has alleged that she was sexually assaulted by a second year student of the institution when she came for his counselling session. Next, we talk to The Indian Express' Heena Khandelwal about the new trend where people are using AI chatbots for th…
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Send us a text, we want to hear from you! The journey of caring for a child with rare disease or complex medical needs often leaves parents and caregivers isolated in their experience. While friends and family genuinely want to help, many struggle with knowing how to truly support without overstepping or saying the wrong thing. Amy (Board) Bradford…
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When Republicans passed their big domestic policy bill just over a week ago, they kept making the same argument about sweeping changes to Medicaid: that the measures, including new work requirements, would encourage able-bodied adults to earn their health care, ultimately creating a fairer system for everyone. Critics said the opposite: they have p…
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In this week’s episode of Medical Media Mixer Podcast we cover: The Netflix series “Surviving Death” 📺 We discuss: ✅Near Death Experiences (NDE) 🎙️Have you ever had a NDE or know someone who has? Is it the brain misfiring or is this a peek into the afterlife? 🎧 Listen on: | Apple Podcasts | Spotify | YouTube | Amazon Music | iHeart | Podbean | Play…
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Show notes at pharmacyjoe.com/episode1043. In this episode, I'll discuss the risk factors for not attaining target beta-lactam levels in ICU patients. The post 1043: Three risk factors for not attaining target beta-lactam levels in ICU patients appeared first on Pharmacy Joe.By Pharmacy Joe
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First, The Indian Express’ Legal Affairs Editor Apurva Vishwanath explains the arguments made by those challenging the Election Commission’s controversial Special Intensive Revision in Bihar, and why the Supreme Court refused to halt the exercise last week. Next, The Indian Express’ Aditi Raja tells us about the Gambhira bridge collapse in Gujarat,…
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The best-selling author and motivational podcast host Mel Robbins is known for her blunt advice and viral wisdom, from The 5-Second Rule to countless proverbs on relationships, confidence and everyday stuck-ness. Her most recent book, “The Let Them Theory,” has given her readers a fresh perspective for navigating disappointment, rejection and uncer…
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Manchester United are terrible, even according to their own manager. Last season saw their worst ever performance in Premier League history. But at the same time, according to Forbes magazine, they’re still the second most valuable football club in the world. How is that possible? Tim talks to Kieran Maguire, a football finance expert and the autho…
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We'll discuss proposals to reform the bailiff industry, hearing from a man whose small parking fine ballooned into a debt of more than £400 once bailiffs got involved. Paul Lewis interviews the minister responsible for the planned changes: will they be fair on both creditors and debtors and will they bring rogue bailiffs into line? Also, the Chance…
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From the moment President Trump and Republicans took control of Washington this year, they set out to turn their longtime threats against public media, which they see as biased, into action. Now, a piece of Republican legislation would cut more than a billion dollars from the Corporation for Public Broadcasting, which finances PBS and NPR. As the b…
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Through deep attention to sense and feeling, Go with God grapples with the centrality of Evangelical faith in Rio de Janeiro's subúrbios, the city's expansive and sprawling peripheral communities. Based on sensory ethnographic fieldwork and attuned to religious desire and manipulation, this book shows how Evangelical belief has changed the way peop…
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How far would you go to test your body in extreme heat? Ironworker apprentice Britnee Miazek travels hundreds of kilometres to Brock University in St. Catharines, Ontario for a gruelling experiment to see how her body deals with high temperatures. She wants to find out why she stopped getting her period while working in sweltering conditions on a c…
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First, we talk to The Indian Express' Sukrita Baruah about the Manipur government's decision to resettle around 57,000 people who have been living in relief camps since the ethnic conflict broke out in the state. Next, we talk to The Indian Express' Anonna Dutt about palm oil and the concerns that are being raised around it. She shares what makes i…
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“Very often, doctors try to suppress what they feel or don't even have the vocabulary to describe their emotions,” says Professor Alicja Galazka of the University of Silesia, an observation based on decades of work with physicians to enhance their emotional intelligence and resilience. Galazka, a psychotherapist, psychologist, lecturer and coach, b…
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The Trump hokey-kokey is back. Tariffs on, tariffs reduced - now they’re heading back up again. It really got going on April 2nd- President Trump’s so-called “Liberation Day” - when he announced a swathe of punitive tariffs on trading partners across the world. The markets tanked and then there was a pause. Countries had 90 days to strike a trade d…
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After months of delaying his most extreme tariffs, President Trump is now threatening to revive the most aggressive version of his global trade war. America’s trading partners, investors and consumers are bracing for impact. The Times journalists Natalie Kitroeff, Ana Swanson, Maggie Haberman and Ben Casselman sit down to discuss what we can expect…
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Decolonizing Ukraine, by Dr. Greta Lynn Uehling, illuminates the untold stories of Russia's occupation of Crimea from 2014 to the present, revealing the traumas of colonization, foreign occupation, and population displacement. Drawing upon extensive fieldwork in Ukraine, including over 90 personal interviews, Dr. Uehling brings her readers into the…
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Tepezza became an instant blockbuster when it hit the market as the first targeted therapy for thyroid eye disease, a rare autoimmune condition that causes eyes to bulge, vision problems, and can lead to long-term damage to the eyes. The success of Tepezza drove Amgen’s $27.8 billion acquisition of Horizon Therapeutics, announced at the end of 2022…
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🎙️ Barn & Soul – Where farming meets heart, history, and a mission to preserve the past for a more sustainable future. Welcome back to Barn & Soul! I’m Kendall, and today we’re tackling a big question: Who decides which animals get to survive? Here at Dalby Farm in Scituate, MA, we care for rare and endangered livestock—animals most people have nev…
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Firstly, we are joined by The Indian Express' Shubhangi Khapre who discusses Maharashtra, where cousins and political rivals Uddhav and Raj Thackeray shared a stage for the first time in nearly two decades, rekindling their alliance over concerns for the Marathi identity and state politics. Next, The Indian Express' Sophiya Mathew talks about a fue…
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In this episode, Jason and Bradford light up a rare Partagas 160 cigar and go head-to-head in a blind bourbon tasting featuring two very different expressions: Four Roses Super Premium (a Japanese market-only release) and the George Dickel 17-Year. They explore the history behind these legendary distilleries—Four Roses with its long, winding owners…
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For months, President Trump and Attorney General Pam Bondi suggested that they would expose the hidden, potentially sinister truth about Jeffrey Epstein’s death in 2019. But over the past few days, the Trump administrationWhite House decided to shut down has poured cold water on the conspiracy theories surrounding the financier. Glenn Thrush, who c…
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Tim Harford investigates some of the numbers in the news and in life. This week: Is the secret to halving obesity rates really just a matter of cutting back on one fizzy drink a day? How many new babies in the City of London have a foreign-born parent? And since fewer than one baby a week is actually born in the City of London, how much should we c…
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Even casual observers of the military will notice the unique ways that service members use language. With all of the acronyms and jargon, some even argue that membership in the military requires learning a whole language. But rather than treat military-specific language as a cultural difference of the institution or a technical requirement for the …
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Two juxtaposed years frame the subject matter of Moving Memory: Remembering Palestine in Postdictatorship Chile. In one, 1973, General Augusto Pinochet’s troops stormed Chile’s presidential palace. In the other, 1948, Zionist militias expelled hundreds of thousands of Palestinians from their homeland. That 1973 should move memories in Chile is obvi…
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In this episode of Sleep is My Waking Passion, I sit down with Vincent Arthur—mechanical engineering student, NASCAR race engineer, and fierce advocate for narcolepsy awareness. Vincent shares his journey from years of misdiagnosed symptoms to finding his place on the track and in the sleep community. What you’ll learn: The winding road to a narcol…
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