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With EhlersDanlos Syndrome Podcasts

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Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand. Each week, join Dr. Linda Blues ...
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Sick, I Swear

Kaitlyn Rohde

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Welcome to Sick I Swear, a podcast designed to lift the curtain on life with invisible illnesses and disabilities. Through candid conversations, humor, and honest insights, we explore what it’s like navigating a world that often can’t see our challenges. From daily struggles to surprising victories, we tackle topics ranging from managing symptoms and healthcare hurdles to relationships, mental health, and the art of keeping it together (or not). Whether you're living with a chronic illness, ...
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The Chronically Courageous, where chronic illness warriors come to feel empowered and uplifted. Listen each week to be inspired by others who have found happiness and peace, despite the physical and emotional tolls of chronic illness. Together, we navigate this complex journey and move forward with courage, passion, and purpose! Hosted on Acast. See acast.com/privacy for more information.
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The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan's, Ankylosing spondylitis, Sjogren's syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
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In this episode, Dr. Linda Bluestein is joined by Professor Tara Renton, a globally recognized expert in orofacial pain, to explore the nuanced world of facial pain, temporomandibular joint (TMJ) dysfunction, and migraine disorders. Together, they unpack why so many patients suffer from persistent facial, jaw, or head pain despite “normal” scans an…
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In this raw and uncompromising conversation, Dr. Linda Bluestein and co-host Jennifer Milner sit down with Skylar Brandt, principal dancer with American Ballet Theatre, for a gripping look at what it truly takes to perform at the highest level. Skylar pulls back the curtain on the physical and psychological demands of elite ballet—the toll it takes…
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In this solo episode, Dr. Linda Bluestein brings on her producers to help unpack the hidden complications that can follow seemingly routine medical procedures. From the lingering effects of breast surgery to the controversial use of nitrous oxide, Dr. Bluestein explores how standard treatments can backfire, especially for patients with EDS, MCAS, o…
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In this solo episode, Dr. Linda Bluestein brings on her producers to ask your most pressing questions about what it’s really like to live with and treat Ehlers-Danlos Syndromes (EDS) and Mast Cell Activation Syndrome (MCAS). From the pitfalls of internet misinformation to the hidden ways MCAS impacts medication tolerance, Dr. Bluestein shares her u…
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In this eye-opening conversation, Dr. Linda Bluestein sits down with psychiatrist Dr. Janet Settle to unpack the medical mystery that is mast cell activation syndrome (MCAS) and why it may be hiding in plain sight as depression, anxiety, panic attacks, or even psychosis. Together, they explore how immune system dysregulation can masquerade as psych…
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In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is …
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In this eye-opening episode, Dr. Linda Bluestein speaks with Dr. Alexis Cutchins, a cardiologist passionate about uncovering missed and misunderstood diagnoses. One of those? Pelvic Venous Disease, a condition affecting countless patients but rarely identified. They explore how PVD can mimic or exacerbate conditions like dysautonomia, MCAS, and chr…
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A conversation with Tayler Goectau, known as Distaaybled online, about navigating EDS, POTS, endometriosis, ostomy and more. We yap about medical gaslighting, self-advocacy, digital education, and her next chapter as a patient-scientist at the Norris Lab. Rate and follow Sick, I Swear podcast, and make sure you’re hitting that subscribe button so y…
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In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by neurosurgeon and social media educator Dr. Betsy Grunch to tackle complex questions around spine health, chronic pain, and the unique challenges faced by people with hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes (EDS). Together, they explore why “normal” …
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In this empowering episode, Dr. Linda Bluestein is joined by OG Bendy Bodies cohost, Jennifer Milner. Jen is a ballet coach, Pilates trainer, and specialist in working with hypermobile bodies. Together they explore why traditional movement cues don’t always work for bendy bodies, how dancers and athletes can train smarter (not harder), and what it …
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In this raw and reflective Office Hours episode, Dr. Linda Bluestein responds to listener feedback and dives deep into the cultural and clinical gaslighting faced by people, especially women, navigating complex health conditions. From the dismissal of perimenopause to the rise of so-called “TikTok diseases,” Dr. Bluestein explores the dangerous dis…
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Chronic illness, even for the most social among us, can be profoundly isolating. There are days when it’s simply too painful or too exhausting to respond to a text, make plans, pick up the phone—or even record a podcast. One of the hardest parts of living with chronic illness is the not knowing—the endless search for answers. Currently, Bonni is em…
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Abdominal pain in EDS can be a puzzle with countless hidden pieces. In this episode, Dr. Linda Bluestein welcomes back Dr. Pradeep Chopra for part two of their exploration into gastrointestinal problems. Together, they uncover overlooked causes of abdominal pain, from drooping intestines and tethered spinal cords to mast cell activation and nerve e…
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In honor of Pain Awareness Month, I wanted to share an episode of one of my favorite healthcare podcasts, “Knock Knock Hi with the Glaucomfleckens.” In this interview from last July, Will and Kristin Flanary (AKA Dr. and Lady Glaucomflecken) kindly invited me on to talk about my journey from ballet to anesthesiology to integrative pain care, and ho…
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In this informative and eye-opening episode, Dr. Linda Bluestein sits down with foot and ankle surgeon Dr. Patrick Agnew, who specializes in treating patients with joint hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes. Together, they explore why lower extremity pain and dysfunction are so common and often misunderstood in…
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Dr. Audrey Kershaw returns to chat with Dr. Linda Bluestein and demystify wisdom tooth extraction, appliances for TMJ disorder, and everyday oral health habits for people with EDS/HSD. We cover when third molars should be removed (and when they shouldn’t), why local anesthetic can fail in some patients, how to approach dental procedures when CCI (c…
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Dr. Linda Bluestein is joined by award-winning psychiatrist and author Dr. Shimi Kang to explore a radical, yet intuitive concept: that play, creativity, and rest aren’t luxuries - they’re medicine. In a world where high-achievers and neurodivergent thinkers are pushed to exhaustion, Dr. Kang unpacks how this cultural mindset leads to burnout, infl…
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Deena shares her powerful 25-year journey with migraine from her first symptoms at age 3 to becoming a leading advocate for migraine care and awareness. Misdiagnosed early on, her condition turned chronic by age 20. Deena endured decades of medical gaslighting, so many failed treatments, and endless battles for care before discovering relief. She n…
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After a wave of passionate listener feedback sparked intense conversations behind the scenes, The Bendy Bodies Podcast returns with a candid and heartfelt follow-up. In this episode, Dr. Linda Bluestein is joined by author and communications expert Kate Colbert to openly address the concerns raised about recent content and to set the record straigh…
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Donna Irene joins me for Young Women Living With Ehlers-Danlos Syndrome (EDS) in America to share her story of living with a misunderstood, invisible disability. From years of medical gaslighting and dismissal by doctors to embracing mobility aids and confronting internalized ableism, Donna’s journey is raw, real, and full of insight. We talk about…
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In the season five finale of the Bendy Bodies Podcast, Dr. Linda Bluestein reflects on powerful listener feedback and opens up important conversations about language, intent, and identity in medicine. She clarifies the purpose behind episodes on pain neuroscience and mast cells in autism, acknowledges the concerns raised, and discusses the fine lin…
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In this illuminating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with pain neuroscientist and physical therapist Dr. Adriaan Louw to explore the power of education in managing chronic pain. With a passion for helping people understand the "why" behind their symptoms, Dr. Louw breaks down the science of how the brain processes…
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In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down once again with fellow pain specialist Dr. Pradeep Chopra to take listeners on a guided “walk” through the GI tract. From teeth to the stomach and beyond, they uncover how connective tissue disorders like EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorder…
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In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase), S…
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In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS). From major flaws in the 2017 diagn…
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Dr. Linda Bluestein dives deep into the tangled web of gastrointestinal disorders with neurogastroenterologist Dr. Zachary Spiritos. They tackle the silent struggles of patients with EDS (Ehlers-Danlos Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), and MCAS (Mast Cell Activation Syndrome), especially those whose GI tests always come b…
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Speech-language pathologist and vocal specialist Stacy Menton joins Dr. Linda Bluestein to expose the surprising links between connective tissue disorders like EDS and common (but misunderstood) issues with voice, breathing, and swallowing. From overlooked diagnostics to cutting-edge therapies and startling new research, this conversation peels bac…
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