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A conversation with Tayler Goectau, known as Distaaybled online, about navigating EDS, POTS, endometriosis, ostomy and more. We yap about medical gaslighting, self-advocacy, digital education, and her next chapter as a patient-scientist at the Norris Lab.
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Chapters

1. Host Update And Guest Intro (00:00:00)

2. Early Childhood Clues And Sepsis (00:00:57)

3. Scoliosis, Pain, And Missed Signals (00:02:43)

4. Teen POTS Diagnosis And Sports Struggles (00:06:08)

5. Birth Control Fallout And First Endo Surgery (00:08:14)

6. EDS, MCAS, ADHD, Autism Considerations (00:10:14)

7. Vascular Compressions And GI Failures (00:12:10)

8. Ileostomy And The Seven-Foot Colon (00:15:04)

9. Self-Advocacy And Identity Balance (00:17:52)

10. Medical Gaslighting In Hospital Care (00:21:19)

11. Digital Advocacy And Education (00:26:20)

12. Destigmatizing Ostomies And Disability (00:30:04)

13. New Scientist Role And Big Move (00:33:07)

14. Working While Disabled And Support (00:36:21)

15. Closing Gratitude And CTAs (00:41:06)

10 episodes