Best Shaimond Foye Podcasts (2025)

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Episode 47: Caring for a Loved One with Charles Bonnet Syndrome: Jo Hill's Story 51:16

6d ago51:16

51:16

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond speaks with Jo Hill, who shares her experiences as a caregiver for her husband, Frankie. Frankie has been dealing with glaucoma for over 20 years and started experiencing CBS symptoms in December 2018. Jo discusses the challenges they faced, the path to discovering CBS through re…

1
Episode 46: Exploring Intracortical Visual Prosthesis with Dr. Phil Troyk 36:57

20d ago36:57

36:57

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. Phil Troyk, a professor and leading research innovator in the field of biomedical engineering at the Illinois Institute of Technology. Dr. Troyk discusses the FDA-approved Intracortical Visual Prosthesis (ICVP) project, which aims to help blind individuals perceive…

1
Episode 45: Exploring Vision Restoration with Functional Neurosurgeon Dr. Nader Pouratian 39:40

1M ago39:40

39:40

In this episode of The Charles Bonnet Syndrome Podcast, host Shaimond interviews Dr. Nader Pouratian, a professor and chair of neurological surgery at UT Southwestern Medical Center in Dallas. Dr. Pouratian discusses his work on experimental treatments aimed at restoring vision for individuals who have lost it, specifically through the use of neura…

1
Episode 44: Living with CBS: Frank Hill Sr.'s Story 26:41

2M ago26:41

26:41

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond speaks with Frank Hill Sr., who has experienced visual hallucinations caused by CBS for six years due to glaucoma. Frank shares his initial confusion about the condition and describes the vivid and intrusive visions he encounters daily seeing animals, unclear human figures and mo…

1
Episode 43: Bettie Stanger-Black's CBS Caregiving Experience 54:24

2M ago54:24

54:24

In this episode of The Charles Bonnet Syndrome Podcast, Shaimond interviews Bettie Stanger-Black, who shares her journey as a caregiver for her mother who has CBS. Bettie recounts the initial signs of hallucinations, the diagnostic process, and her challenges as a caregiver. They discuss the importance of proper diagnosis, the emotional toll of car…

1
Episode 42: The Journey and Mission of Mary Carmel's Light 1:16:31

3M ago1:16:31

1:16:31

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Eva and Kevin Potts, co-founders of Mary Carmel's Light. The organization, named in honor of their mother, was recently designated a 501(c)(3) nonprofit. They share their deeply personal and challenging journey of identifying and coping with Mary Carmel's Charles Bonne…

1
Episode 41: Art Beyond Sight with Selene Carboni 25:30

3M ago25:30

25:30

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Selene Carboni, an art educator from Italy who specializes in teaching visually impaired individuals how to create and appreciate art. Selene discusses her journey from an art historian to advocating for the artistic capabilities of blind individuals. She shares her ex…

1
Episode 40: Guide Dogs 101 with Guiding Eyes for the Blind’s Melissa Carney 40:23

3M ago40:23

40:23

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Melissa Carney, Community Outreach and Graduate Support Manager at Guiding Eyes for the Blind. Melissa shares insights into her role, the criteria for obtaining a guide dog, the training process for guide dogs, and her personal experiences as a guide dog handler. She d…

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Episode 39: Phyllis Stanger’s Journey with CBS 39:36

4M ago39:36

39:36

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Phyllis Stanger, who discusses her experiences living with CBS. Phyllis describes her journey from being diagnosed with macular degeneration to later developing CBS symptoms, which include visual hallucinations. She shares the challenges she faces, such as giving up driv…

1
Episode 38: Exploring Art Beyond Vision with Eriko Watanabe 36:43

4M ago36:43

36:43

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond talks with Eriko Watanabe, a blind artist from Augsburg, Germany. Eriko, originally from Japan, shares her compelling journey from losing her sight due to pediatric cancer to becoming an artist specializing in tactile line drawings. Despite her blindness, Eriko creates detailed a…

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Episode 37: Dr. John Kennedy Discusses Imagery, Perception and CBS 50:44

5M ago50:44

50:44

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. John Kennedy, a psychologist and senior investigator from the University of Toronto. Dr. Kennedy shares his extensive research on imagery, perception, and the fascinating abilities of blind individuals in creating art. He discusses his encounters with various visua…

1
Episode 36: Kim Kimberley's Journey with Charles Bonnet Syndrome 57:17

5M ago57:17

57:17

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Kim Kimberley who shares her personal experiences of living with CBS after sustaining a head injury from being assaulted. She discusses the nature of her hallucinations, interactions with medical professionals, and the coping mechanisms she has developed, including the…

1
Episode 35: Neuro-Ophthalmologist Andrew G. Lee, MD 39:27

6M ago39:27

39:27

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. Andrew G. Lee, a neuro-ophthalmologist and the Herb and Jene Lyman Centennial Chair of Ophthalmology at Blanton Eye Institute, Houston Methodist Hospital. They discuss Charles Bonnet Syndrome, a condition involving visual hallucinations due to vision loss, and expl…

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Episode 34: CBS Researcher Aysha Kinakool 1:04:40

6M ago1:04:40

1:04:40

In this episode of The Charles Bonnet Syndrome Podcast Shaimond interviews doctoral candidate Aysha Kinakool from York University, the discussion covers various aspects of CBS. Topics include the complexity of studying CBS, patient experiences, and the necessity of raising awareness and education among healthcare providers. The conversation highlig…

1
Episode 33: The Vivid World of Ruth Bieber 52:11

7M ago52:11

52:11

In this episode of the Charles Bonnet Syndrome podcast, Shaimond interviews Ruth Bieber, a retired social worker and artist living with Charles Bonnet Syndrome (CBS). Bieber, who was diagnosed with legal blindness at age 6, shares her journey of losing central vision and later experiencing CBS. At 67, she reflects on her 25-year experience with CBS…

1
Episode 32: Cognitive Neuroscientist Dr. Robin Walker 38:56

7M ago38:56

38:56

In this episode of The Charles Bonnet Syndrome Podcast, host Shaimond welcomes Professor Robin Walker, a cognitive neuroscientist from Royal Holloway, University of London. They discuss Dr. Walker's extensive research on visual perception and macular degeneration, and his current focus on Charles Bonnet Syndrome. The conversation delves into a read…

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Episode 31: Patient Advocate Richie Kahn 1:07:04

8M ago1:07:04

1:07:04

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Richie Kahn, a public health professional, clinical researcher, and patient advocate. Richie shares his personal journey with optic atrophy and Charles Bonnet Syndrome. With a background in public health and a passion for patient advocacy, Richie talks about his career…

1
Episode 30: Cognitive Appraisal Theory and Reframing Your Thoughts 9:56

8M ago9:56

9:56

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond delves into Cognitive Appraisal Theory, a psychological framework that explains how our interpretations of events shape our emotional responses. He explains the two stages of cognitive appraisal—primary and secondary—and provides therapeutic techniques such as cognitive restructu…

1
Episode 29: Unraveling CBS: Dr. Kat Da Silva Morgan's Neuroscientific Insights 38:44

9M ago38:44

38:44

In this episode, Shaimond interviews Dr. Kat Da Silva Morgan from Newcastle University's Translational and Clinical Research Institute. Dr. Morgan discusses her extensive research into Charles Bonnet Syndrome (CBS), explaining her journey from psychology to neuroscience and her focus on visual hallucinations. She elaborates on the unique aspects of…

1
Episode 28: Neuroscience of CBS with Dr. Jennifer K. Steeves 56:47

9M ago56:47

56:47

In this episode, Shaimond and guest host Duchess Antoinette McDonald-Ellis welcome cognitive neuroscientist Dr. Jennifer K Steeves from York University. Dr. Steeves discusses visual and sensory processing, emphasizing her research on Charles Bonnet Syndrome (CBS). She recounts her discovery of CBS through collaborative research and shares insights …

1
Episode 27: Living with and Researching CBS: Dr. Anica Zeyen's Dual Perspective 1:08:56

10M ago1:08:56

1:08:56

In this episode, Shaimond welcomes Dr. Anica Zeyen, a UK-based researcher who has CBS and cone-rod dystrophy. Dr. Zeyen shares her experiences with vision loss and the onset and development of her CBS symptoms. She offers insights into coping mechanisms and discusses how trust, relationships, and communication play a crucial role in managing the co…

1
Episode 26: The Blind Life: Sam Seavey's Tech Tips for Visual Impairment 44:29

10M ago44:29

44:29

In this episode, Shaimond and guest host Dr. Gary Cusick welcome Sam Seavey, an online health advocate for the blind community and owner of the popular YouTube channel 'The Blind Life.' Sam shares his journey with Stargardt's disease and how it took him decades to fully accept his visual impairment. He discusses his work at the Bluegrass Council of…

1
Episode 25: From Viral Infection to CBS: Nina Chesworth's Visual Odyssey 57:25

10M ago57:25

57:25

In this episode, Shaimond welcomes Nina Chesworth, a volunteer with Esme's Umbrella, to share her personal journey and insights into living with Charles Bonnet Syndrome (CBS). Nina discusses the complexities of her vision loss stemming from a viral infection and subsequent accidents, leading to her current state of blindness. She candidly describes…

1
Episode 24: Coping Mechanisms, General Tips, Natural Remedies and More 14:07

11M ago14:07

14:07

In this episode, Shaimond shares a comprehensive guide to coping with Charles Bonnet Syndrome (CBS). He covers general tips, coping mechanisms, natural remedies, and innovative treatments gathered from people with CBS and experts in the medical and research field. Key topics include recognizing hallucinations, stress management, utilizing support g…

1
Episode 23: Lucia Ricardo from the CNIB 1:12:54

11M ago1:12:54

1:12:54

In this episode, Shaimond and Antoinette interview Lucia Ricardo, a program lead at the Canadian National Institute for the Blind (CNIB). They explore the condition's history, personal experiences, the importance of awareness among medical professionals, and the impact of peer support. Lucia shares insights into the CNIB's efforts in supporting ind…

1
Episode 22: Visualizing CBS: Vicky Hamilton's Artistic Research 59:27

12M ago59:27

59:27

In this episode, Shaimond interviews Vicky Hamilton, a PhD candidate performing research on Charles Bonnet Syndrome (CBS) at Griffith University, Queensland College of Art and Design in Brisbane, Australia. Hamilton shares her journey with CBS. Utilizing art and digital technology, Hamilton's research focuses on recreating the visions experienced b…

1
Episode 21: Low Vision Occupational Therapist Meagan Chapman 49:22

1y ago49:22

49:22

In this episode, Shaimond interviews Megan Chapman, an occupational therapist specializing in low vision, from Low Vision Works in Sarasota, Florida. They discuss the role of occupational therapy in helping individuals with low vision, including those suffering from Charles Bonnet Syndrome (CBS). Chapman explains the broad scope of occupational the…

1
Episode 20: Illustrating CBS with Graphic Novelist Gareth Brookes 38:06

1y ago38:06

38:06

In this episode, Shaimond and guest co-host Dr. Gary Cusick interview graphic novelist and researcher Gareth Brookes. Brookes discusses his graphic novel, “A Thousand Coloured Castles” which features a main character with Charles Bonnet syndrome (CBS). Inspired by his grandmother's experiences with the condition, Brookes aims to raise awareness and…

1
Episode 19: Advancing CBS Research with Dr. Jasleen Jolly 39:48

1y ago39:48

39:48

In this episode, Shaimond interviews Dr. Jasleen Jolly, Associate Professor in Vision and Eye Research at Anglia Ruskin University in Cambridge, England and Director of Jolly Vision Science. Dr. Jolly discusses her extensive work and research on Charles Bonnet Syndrome. She explains the misconceptions about the syndrome, its prevalence and highligh…

1
Episode 18: Scot Muirden from the Charles Bonnet Syndrome Foundation 1:25:41

1y ago1:25:41

1:25:41

In this episode, Shaimond interviews Scot Muirden, Director at Charles Bonnet Syndrome Foundation AU. He explains the mission of the Foundation, which includes providing direct services to those affected by CBS and raising awareness within the medical and healthcare sectors. The conversation covers the importance of a multidisciplinary approach to …

1
Episode 17: Blindness and CBS: Robin's Story of Resilience 48:59

1y ago48:59

48:59

In this episode, Shaimond interviews Robin Davies who is totally blind and shares his journey with Best disease and Charles Bonnet Syndrome. The episode emphasizes resilience, the value of community and support, and how remaining engaged with life and passions can help navigate the challenges of visual impairment and Charles Bonnet syndrome. Contac…

1
Episode 16: CBS Support with Chris Wilsdon 36:25

1y ago36:25

36:25

In this episode, Shaimond interviews Chris Wilsdon a representative from the Kent Association for the Blind, to discuss Charles Bonnet Syndrome (CBS) and how his organization supports the visually impaired in Kent and parts of London, UK. Wilsdon shares his personal journey from experiencing vision problems to dedicating over 15 years to aiding tho…

1
Episode 15: Empowering Caregivers with Tanya Straker 44:50

1y ago44:50

44:50

In this episode, Shaimond interviews Tanya Straker, who shares her journey as a caregiver and discusses her book “6 Life Hacks For Family Caregivers,” her weekly caregiver support group, Coffee with Caregivers, and shares tips to help caregivers manage, among other things she does to support people on their journey to being their best self. For mor…

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Episode 14: Retinitis Pigmentosa to CBS: Susan's Visual Journey 23:02

1y ago23:02

23:02

In this episode, Shaimond and Eva interview Susan Michel who shares her journey with Retinitis Pigmentosa, Macular Degeneration and Charles Bonnet Syndrome. For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS car…

1
Episode 13: CBS Through an Ophthalmologist's Lens: Dr. Leonid Skorin Jr. 1:03:40

1y ago1:03:40

1:03:40

In this episode, Shaimond and Eva interview Dr. Leonid Skorin, an ophthalmologist at the Mayo Clinic. He gives an ophthalmic view of Charles Bonnet Syndrome. Contact Dr. Skorin at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-base…

1
Episode 12: Macular Degeneration and CBS with Irvine Harris 49:46

1y ago49:46

49:46

In this episode, Shaimond and Eva interview Irvine Harris who shares his journey with Macular Degeneration and Charles Bonnet Syndrome. Contact Irvine at [email protected] Irvine’s website https://savinghumanity.net/ For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cus…

1
Episode 11: Esme's Umbrella: Judith Potts on CBS Awareness and Support 1:10:14

1y ago1:10:14

1:10:14

In this episode, Shaimond interviews Esme’s Umbrella founder, Judith Potts. She shared how she first became aware of Charles Bonnet Syndrome (CBS) when it affected her mother and how she founded Esme's Umbrella, her Charity that focuses on raising awareness, offering support and sourcing funding for research for CBS. Contact Judith Potts at judith@…

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Episode 10: A Son's Perspective: Dave's Caregiving Journey 42:29

1y ago42:29

42:29

In this episode, Shaimond and Eva interview Dave Hommel who shares his story as a caregiver for his mother who has journey Charles Bonnet Syndrome. Contact Dave at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtu…

1
Episode 9: Who Was Charles Bonnet 4:25

1y ago4:25

4:25

In this episode, Shaimond discusses who Charles Bonnet was. For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS…

1
Episode 8: Navigating Glaucoma and CBS with Theo's Blue 48:21

1y ago48:21

48:21

In this episode, Shaimond and Eva interview Theo Blue who shares his journey with Glaucoma and Charles Bonnet Syndrome. Contact Theo at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS care…

1
Episode 7: Supporting a Mother with CBS: Janet's Story 1:06:58

1+ y ago1:06:58

1:06:58

In this episode, Shaimond and Eva interview Janet Duke, who shares her story as a family member and caregiver for her mother who has Charles Bonnet Syndrome. Contact Janet at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly …

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Episode 6: Dr. Gary Cusick: CBS Education and Support 1:06:52

1+ y ago1:06:52

1:06:52

Dr. Gary Cusick shares how he has helped the blind and visually impaired community for decades and why he has chosen to help people with Charles Bonnet Syndrome (CBS) as his life’s passion. As of the release of this episode, he is the leading authority on CBS education, research and support in the U.S. Contact Dr. Gary Cusick at 502-439-0398 or gar…

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Episode 5: Four Decades of Vision Support with Jonathan's Ward 40:12

1+ y ago40:12

40:12

In this episode, Shaimond and Eva interview Jonathan Ward who shares his journey helping the blind and visually impaired community for nearly 40 years. He also discusses his visual impairment and first-hand experiences with Charles Bonnet Syndrome. Contact Jonathan at [email protected] For help with Charles Bonnet Syndrome call 1-704…

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Episode 4: Macular Degeneration and CBS: Carole's Experience 1:10:54

1+ y ago1:10:54

1:10:54

In this episode, Shaimond and Eva interview Carole Hommel who shares her journey with Macular Degeneration and Charles Bonnet Syndrome. For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group…

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Episode 3: A CBS Caregiver's Perspective with Ken's Ellis 37:35

1+ y ago37:35

37:35

In this episode, Shaimond and Eva interview Ken Ellis, who shares his story as a caregiver for his wife, Antoinette, who has Charles Bonnet Syndrome. Contact Ken at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly …

1
Episode 2: Living with Glaucoma and CBS: Antoinette's Journey 58:52

1+ y ago58:52

58:52

In this episode, Shaimond and Eva interview Antoinette McDonald-Ellis who shares her journey with Glaucoma and Charles Bonnet Syndrome. Contact Antoinette https://www.facebook.com/antoinette.mcdonald1 For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based …

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Episode 1: What is Charles Bonnet Syndrome 32:27

1+ y ago32:27

32:27

In this episode, hosts Shaimond Foye and Eva Potts introduce themselves and discuss what Charles Bonnet Syndrome is and why they created this podcast. For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregiver…

Podcasts Worth a Listen

Shaimond Foye Podcasts

Podcasts Worth a Listen