A Parent’s Tale of Grief, Special Needs and the Healing Power of Writing

Bereaved But Still Me

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Join us in this episode as our host Michael Liben opens up about the complexities of explaining death to his children and welcomes the insights of James Robinson who did likewise with his little ones. Together, they'll explore James' son Nadav's impactful life, marked by a congenital heart defect, and the unwavering spirit it revealed. His story, though filled with vulnerability, is a testament to the remarkable endurance of love and the human soul.
Parenting children with special medical needs is unique, often requiring parents to balance transparency with the preservation of childhood innocence. In this heartfelt exchange, between bereaved fathers Michael and James, they recount the promises made to their children to be forthright in the face of life-altering medical conditions. Discover how their children surprised them with their remarkable adaptability, and how the definition of 'normal' was reshaped within the walls of a home where love and medical care were intertwined.
They conclude this episode by traversing the path of healing that unfolds in the wake of profound loss. James shares his family's transformative road trip across America, an exploration of grief and remembrance following Nadav's passing. This moving experience culminates in the creation of "More Than We Expected: Five Years with a Remarkable Child," a memoir by James that seeks to offer comfort and connection to those on similar journeys. Through these stories, we honor the legacies of our loved ones and the infinite capacity of the human heart to heal and embrace resilience.
To Order James' book, use this link: https://www.amazon.com/More-Than-We-Expected-Remarkable/dp/1637588224
Or you can visit his website here: https://morethanamemoir.com/
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