Manage episode 516369797 series 3485537
In this episode, we chat with power couple Esther and Elman about what it means to navigate brain tumour care and recovery as young adults. Esther reflects on her experience as a young adult caregiver, the challenges and barriers she faced, and the support that helped her along the way. Together, they reflect on their shared commitment to giving back to the brain tumour community and how they continue to build a life rooted in purpose, hope and resilience.
For additional information, you may visit:
- Elman and Esther’s story: Living fully after a brain tumour diagnosis - Brain Tumour Foundation of Canada
- Brain Injury Rehab Clinic - Acquired Brain Injury Outpatient Clinic
- Extend Pharmacy - Enhancing the cancer medication experience for lives affected by cancer.
- Grief Circle/Ring Theory - Ring theory (psychology) - Wikipedia
If you’d like to share your story and take part in our Beyond Brain Tumours podcast, we invite you to fill out this short form.
Learn more about Brain Tumour Foundation of Canada at BrainTumour.ca. Follow us on Facebook, Instagram, X, YouTube and Linkedin.
Chapters
1. Welcome Back And Focus For Part Two (00:00:00)
2. Canada’s Care Strengths And Gaps (00:00:36)
3. The Cost Of Oral Chemo And Coverage (00:02:16)
4. Pharmacy Advocates And Funding Help (00:03:04)
5. The Hidden Labour Of Caregiving (00:04:51)
6. Identity, Boundaries, And Marriage Strain (00:05:15)
7. Therapy, Communication, And Tools (00:07:27)
8. Community Support And Clear Asks (00:10:36)
9. Different Coping Styles In The Circle (00:12:39)
10. Joy, Normalcy, And Friends’ Nights (00:15:03)
11. Naming The Tumour And Personifying Fear (00:19:07)
12. Meaning, Goals, And The Grief Circle (00:20:04)
13. Caregiver Selfhood, Travel, And Renewal (00:22:21)
14. Gratitude, Takeaways, And Closing (00:24:24)
17 episodes