"So you're basically tired all the time?" No, it's #notjustfatigue.

In this episode of That Chronic Thing, Cathy chats with Elizabeth Ansell (Founder, Executive Director) of notjustfatigue.org, a site dedicated to the education and advocacy of Myalgic Encephalomyelitis, or ME/CFS, an extremely debilitating illness.

→ 75% of those affected are unable to attend school or work (note: this includes your host and guest!)

→ 25% are completely homebound or bedbound (note: this also includes your host and guest!)

→ There are no FDA approved treatments, biomarkers, or diagnostic tests.

→ There are over 60 symptoms, it's #notjustfatigue.

→ 45% of the Long COVID community fit the case definition for ME/CFS.

The multimedia website is a wonderful destination for those wanting to learn more about ME/CFS past, present, and future. It is a great resource for those with ME/CFS who are wanting to educate their friends and family when they say, "so you're basically tired all the time?" No, it's #notjustfatigue.

See it all at notjustfatigue Instagram TikTok X

Follow Elizabeth Instagram TikTok X

[Recorded April 1, 2025]

💌 Stay in touch with me at @indoorcathy on Instagram.
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"Glitter Blast" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/