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Episode 132: The Power of Choice: Nick Palmer on Declining Transplant and Choosing Quality of Life

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Manage episode 478160511 series 3323554
Content provided by Dee Moore. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Dee Moore or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Nick Palmer, who shares his extraordinary journey of living with chronic kidney disease (CKD) and focal segmental glomerulosclerosis (FSGS). Diagnosed at just 19 years old, Nick opens up about navigating the complex realities of kidney disease as a young adult—balancing university, a demanding career, and the emotional toll of a condition that would require multiple transplants and ongoing dialysis.

With unflinching honesty, Nick reflects on his decision to decline a third kidney transplant and instead embrace home nocturnal dialysis—a choice that profoundly improved his quality of life, restored his sense of independence, and helped him reclaim control of his health. He discusses the impact of this decision on his mental well-being, family life, and career, and how it ultimately allowed him to thrive in ways he never expected.

Nick’s story challenges traditional narratives around kidney treatment, shining a light on the importance of patient choice, education, and mental health advocacy in chronic illness care. This episode is a must-listen for anyone navigating kidney disease, healthcare professionals, or anyone seeking inspiration from a story of resilience and informed self-advocacy.

Key topics include:

  • Living with FSGS and the impact of early diagnosis

  • The emotional and physical toll of dialysis in early adulthood

  • The recurrence of FSGS post-transplant

  • Choosing nocturnal dialysis and the profound benefits for quality of life

  • Mental health, self-advocacy, and redefining what it means to live fully with CKD

Follow Diary of a Kidney Warrior:

📸Instagram: www.instagram.com/diaryofakidneywarrior

📘Facebook: www.facebook.com/diaryofakidneywarrior

🐦Twitter: www.twitter.com/diaryofakidneyw

🎵Tik Tok: @diaryofakidneywarrior

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

💌 Join the Diary of a Kidney Warrior Family Mailing List

Get updates on new episodes, vlogs, newsletters, and more!

👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

📲 Follow the Podcast on WhatsApp

Stay updated with new episodes and exclusive content!

👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r

Follow Nick Palmer

Twitter (X) https://x.com/nick_fire1

Blue Sky: https://bsky.app/profile/nick-fire1.bsky.social

Kidney Care UK

• Website: www.kidneycarekuk.org

• Email: [email protected]

• Tel: 01420 541 424

• Facebook: www.facebook.com/kidneycareuk.org

• Instagram: @kidneycareuk

• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

  continue reading

152 episodes

Artwork
iconShare
 
Manage episode 478160511 series 3323554
Content provided by Dee Moore. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Dee Moore or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Nick Palmer, who shares his extraordinary journey of living with chronic kidney disease (CKD) and focal segmental glomerulosclerosis (FSGS). Diagnosed at just 19 years old, Nick opens up about navigating the complex realities of kidney disease as a young adult—balancing university, a demanding career, and the emotional toll of a condition that would require multiple transplants and ongoing dialysis.

With unflinching honesty, Nick reflects on his decision to decline a third kidney transplant and instead embrace home nocturnal dialysis—a choice that profoundly improved his quality of life, restored his sense of independence, and helped him reclaim control of his health. He discusses the impact of this decision on his mental well-being, family life, and career, and how it ultimately allowed him to thrive in ways he never expected.

Nick’s story challenges traditional narratives around kidney treatment, shining a light on the importance of patient choice, education, and mental health advocacy in chronic illness care. This episode is a must-listen for anyone navigating kidney disease, healthcare professionals, or anyone seeking inspiration from a story of resilience and informed self-advocacy.

Key topics include:

  • Living with FSGS and the impact of early diagnosis

  • The emotional and physical toll of dialysis in early adulthood

  • The recurrence of FSGS post-transplant

  • Choosing nocturnal dialysis and the profound benefits for quality of life

  • Mental health, self-advocacy, and redefining what it means to live fully with CKD

Follow Diary of a Kidney Warrior:

📸Instagram: www.instagram.com/diaryofakidneywarrior

📘Facebook: www.facebook.com/diaryofakidneywarrior

🐦Twitter: www.twitter.com/diaryofakidneyw

🎵Tik Tok: @diaryofakidneywarrior

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

💌 Join the Diary of a Kidney Warrior Family Mailing List

Get updates on new episodes, vlogs, newsletters, and more!

👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

📲 Follow the Podcast on WhatsApp

Stay updated with new episodes and exclusive content!

👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r

Follow Nick Palmer

Twitter (X) https://x.com/nick_fire1

Blue Sky: https://bsky.app/profile/nick-fire1.bsky.social

Kidney Care UK

• Website: www.kidneycarekuk.org

• Email: [email protected]

• Tel: 01420 541 424

• Facebook: www.facebook.com/kidneycareuk.org

• Instagram: @kidneycareuk

• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

To sign up to receive the Kidney Matters Quarterly Magazine Email: [email protected]

Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

  continue reading

152 episodes

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