In this episode of Conversations with Dr Theo Blackmore, Dr Theo sits down with Hayley Newman, a mother, counselor, and advocate, to discuss her experiences raising her daughter Natty, who has Down’s syndrome.

Hayley shares the highs and lows of parenting a child with a learning disability, reflecting on the challenges of navigating the education system, transitioning from pediatric to adult care, and finding meaningful opportunities for Natty as she reaches adulthood. From preschool inclusion to specialist schooling, Hayley details how finding the right support and environment helped Natty thrive, highlighting the importance of being judged against one’s own abilities rather than standardised expectations.

The conversation also explores the broader social context, including representation of disabled people in media, the ethics of antenatal screening, and the impact of high termination rates on the Down’s syndrome community. Hayley emphasises the joy, resilience, and lessons learned from her daughter, showing that families with disabled children often experience profound love, pride, and personal growth.

Hayley also shares her professional journey, from teaching to counseling parents of children with special educational needs and disabilities (SEND), illustrating how personal experiences can inspire meaningful work. The discussion touches on sibling dynamics, societal perceptions of disability, and the shifting language and understanding around disability, offering both insight and inspiration for parents, educators, and anyone interested in inclusive communities.

Resources:

https://www.downs-syndrome.org.uk/

http://www.downssideup.com/