How do you transform personal adversity into a lifeline for others? In this deeply moving episode of Eagle Freedom Presents, Deston sits down with Sandi Shaner—author of "The Journey: Embracing The Extraordinary" and founder of the nonprofit Carly’s Cause—to discuss the raw realities and triumphs of special needs parenting.

From surviving homelessness as a teen to pursuing a doctorate at USC, Sandi’s story is one of resilience. She opens up about her daughter Carly’s medical odyssey, from a cleft palate repair to the discovery of DDX3X, an incredibly rare genetic condition. Listeners will hear how a mother’s intuition saved her daughter's life, how they bridged the gap of non-verbal communication through the power of singing, and how Sandi is now revolutionizing support for families navigating the school system.

Whether you are navigating IEP meetings, looking for hope after a rare diagnosis, or seeking balance in a complex family dynamic, this episode offers a roadmap for embracing the extraordinary.

Key Topics & Takeaways

• Overcoming Against Odds: Sandi’s inspiring backstory of moving from homelessness to academic excellence and automotive technology.

• The DDX3X Diagnosis: Understanding the journey of a rare genetic condition (one of only ~300 identified cases) and the search for medical answers.

• Singing Beyond Words: How Sandi developed a unique communication method through music after Carly became non-verbal following brain surgery.

• Advocacy in Education: Practical advice on navigating the school system, understanding IEPs (Individualized Education Programs), and securing technology like iPads for autism education.

• Holistic Support: The role of early intervention, ABA therapy, sound healing, and the groundbreaking work of Dr. Jerry Landman in neuron repair.

• Parental Mental Health: A candid look at the emotional toll of the pandemic, coping mechanisms, and the importance of building a support network.

Featured Resources

• Book: "The Journey: Embracing the Extraordinary" – Featuring a 5-day action plan for parents.

• Organization: Carly’s Cause – Supporting children with special needs and their families.

• Actionable Advice: Tips on balancing sibling dynamics and effective advocacy for special education services.

After the rush of Black Friday, #GivingTuesday on December 2nd is our global reminder to pause and pour back into our communities. This year, we invite you to stand with Carly’s Cause, a lifeline for families navigating the complex world of rare genetic conditions. Whether it’s funding crucial research for DDX3X or putting communication technology into the hands of a non-verbal child, your donation gives a voice to those who need it most. Please consider making a gift this December 2nd—or becoming a year-round supporter—to help turn struggle into hope for special needs families.

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