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In the fourth episode of our five-part series, Kevin and Allison open up about the complex and often unspoken guilt that shadows their journey as parents of a child with multiple disabilities. They explore how guilt shows up in the decisions they make for each of their children, in their relationship with each other, and in their friendships—often leading them to question their decisions and wonder if they are doing enough.

Despite making time for each other every day, they reflect on how the demands of caregiving and the absence of typical outings or date nights have changed what their relationship looks like. They candidly discuss the ways guilt can silently shape daily life, from second-guessing choices to feeling isolated by exhaustion. Kevin and Allison share how their silence or withdrawal is sometimes a signal that they need more outside support, a reality that resonates with many caregivers.

Listeners will hear honest reflections on anticipatory guilt, talking about their feelings with their children, and the strategies Kevin and Allison use to get through their days. Their story is a reminder that silence is not the absence of need, and that caregivers everywhere deserve understanding, empathy, and support.

KEY MOMENTS IN THIS EPISODE:

[00:01:09] The Weight of Guilt: Kevin and Allison talk about how guilt plays a role in their daily lives of caring for their children.

[00:04:22] Anticipatory Guilt: Kevin explains briefly what anticipatory guilt is and how that plays out in their life

[00:05:48] Talking with Their Children: They discuss that they talk about their feelings of guilt with their kids, and Allison describes how their daughters respond.

[00:07:11] Coping Strategies: Kevin and Allison share how they cope with feelings of guilt.

[00:08:21] Advice for Parents: They offer some advice to other parents facing similar struggles with guilt.

[00:09:53] Reminders of Love: Kevin and Allison talk about how they remind themselves of the love and care they give, especially when guilt creeps in.

[00:14:12] Gaining Perspective: They discuss who, beyond their children, helps them see things differently when they feel guilty.

[00:18:01] Guilt in Their Relationship: Kevin and Allison open up about how guilt affects their relationship as a couple.

[00:22:03] Moments of Pride: The couple shares stories that make them proud of all of their children.

[00:23:41] Finding Strength and Hope: Kevin and Allison reflect on how strength and hope play a role in their life.

[00:27:19] A Movie’s Message: Kevin shares a favorite movie scene that resonates with his experience as a caregiver.

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52 episodes