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My friend Susan who was born with retinopathy of prematurity and had 20/400 and 20/800 she is effectively mobility visually impaired – perhaps that cutoff is 20/500, so by 100 ? that’s a lot of stress. Susan and I met because she was the interim director of a program that I was hired to take over, she was the boss, and then I became her boss- e.

Susan’s life experiences are as a “high partial” someone considered having a lot of vision at the school for the blind, and not so much at home. It’s a tough place to reside. – I really think this interview is raw, inciteful and worth a listen.

Wow- she really never understood that it was her right as a human being to be able to feel safe – she began telling us that to get about she held her mother’s hand and she wasn’t allowed to travel alone until freshman in college or 16 -either way – all related to the other problem of her parents not wanting her to use a white cane – so as to attempt to conceal her visual impairment. That’s a rough way to grow up-

I wish we could all just allow blind and low vision human beings to feel safe from the start.

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61 episodes