What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1] Proud Stutter podcast

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What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]

2d ago 32:18

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Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support.

This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills.

Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.

If you'd like to reach out to Bobby, you can email him at [email protected].

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