Matty J Interview with Lee – Raising Awareness for CDG and Celebrating Kelsey Stewart 120525

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14d ago 17:24

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In this heartfelt and powerful conversation, Matty J speaks with Broome local Lee, mother of 9-year-old Kelsey Stewart, who lives with a rare genetic condition called CDG1A (Congenital Disorder of Glycosylation). With only around 1,200 cases worldwide, CDG is a complex and often misunderstood disorder that affects physical and intellectual development. Lee shares her family’s story—raising Kelsey in Broome, navigating therapy and travel challenges, and advocating for greater inclusion and support through the Sybree Rose Button Foundation. She also highlights Kelsey’s incredible milestones: learning to crawl, speak with the help of a $7,500 communication device, and her love for music, school, and community. This interview builds toward the CDG Awareness Family Fundraiser, held at St Mary's Primary School on Saturday, May 17 from 2 PM. Featuring: A Wonka movie screening 🍬 Glow-in-the-dark laser tag 🔫 Pony rides 🐴 Face painting, crafts, raffles, Thai food 🍜 A sensory-friendly zone for kids with disabilities 🌈 🎟️ Entry: $5 — All proceeds go to support local families living with disability and rare conditions. If you can’t attend, donations can be made via Kelsey’s Facebook page (Kelsey Stewart CDG Superhero) or directly to the Sybree Rose Button Foundation. 💜 Let’s show that disability inclusion is a Broome priority. join us in creating a brighter, more inclusive future for all. #CDGAwareness #BroomeCommunity #InclusionMatters #KelseyStewart #RadioGoolarri

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