Manage episode 507036415 series 3676729
Hosts Julianna Scott and Kelley Jensen tackle the common "diagnose and adios" experience that leaves autism parents without guidance after diagnosis. They discuss how parents must become researchers themselves, using what they call "The Try-entific Method" to navigate off-label treatments. The hosts share personal experiences with brain stimulation therapies like MeRT and EMDR, provide practical financial advice including ABLE accounts, and emphasize that there is no cure for autism—only ways to improve function. They offer a roadmap for evaluating treatments safely while avoiding dangerous interventions.
Key Takeaways
- "Diagnose and adios" is the common experience of receiving an autism diagnosis without treatment guidance.
- Parents inevitably use off-label treatments because only two FDA-approved medications exist for autism.
- Establish ABLE accounts immediately after diagnosis for tax-free savings on disability-related expenses.
- There is no cure for autism—focus on improving function and managing symptoms.
- Brain stimulation therapies (MeRT, TMS) show promise for comorbid conditions like OCD.
- EMDR can help with trauma processing and anxiety reduction in autistic individuals.
- Always exhaust insurance-covered treatments first before pursuing expensive alternatives.
- Evaluate treatments critically and avoid anything promising a "cure."
- Progress continues throughout life, even if slow—reassessment is crucial as children age.
- Safety first: Avoid dangerous treatments like chelation therapy, hyperbaric oxygen, and restrictive diets.
🔗 Learn More:
Website: refrigeratormoms.com
Instagram: https://www.instagram.com/refrigeratormoms/
LinkedIn: https://www.linkedin.com/company/refrigeratormoms
Facebook: https://www.facebook.com/refrigeratormoms/
TikTok: https://www.tiktok.com/@RefrigeratorMoms
15 episodes