#269 Inside the NervGen NVG-291 Trials: Part II

In Part II of our special series on the groundbreaking NVG‑291 clinical trial from NervGen, we hear from Leslie Fuller, a spinal cord injury survivor and participant in the chronic-phase arm of the study. Leslie shares her powerful personal story, beginning with the day of her injury and unfolding through the emotional landscape of trauma, uncertainty, and the choice to take part in an experimental therapy for nerve regeneration.

We follow her path from the earliest days after paralysis to her time at the Shirley Ryan AbilityLab as part of the NVG‑291 trial. Leslie describes what it felt like to join something truly new, the day-to-day experience of being in the study, and both the subtle and profound improvements she has experienced in her body and functionality. She also shares other meaningful changes related to autonomic dysreflexia and spasms. And she reflects on the emotional and psychological impact of hope—what it feels like when science breathes life into possibility.

Building on the insights from Part I with Larry Williams, this episode brings us even closer to the lived experience of regeneration research and the people helping to shape its future.

Resources
https://nervgen.com/

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BLINK of an Eye® Podcast is sponsored by BLINK of an Eye® Non-Profit:

A non-profit which originated the first SCI Navigator Program in the country for newly injured SCI Families by SCI Families as an essential national resource for Spinal Cord Injured families in the first days, weeks and months of SCI crisis when life turns upside down and few medical teams in the US have SCI expertise or lived experience. They bring essential support, connections, life expertise and resources. BLINK of an Eye non profit deploys a rapid response HEAL Team for ICU bedside support to create an Extraordinary Experience despite the devastation for SCI families and a personal SCI Navigator for 24/7 support in the first 90 days and throughout the Miracle Year. BLINK of an Eye non profit also provides a Multidisciplinary Wrap Around Team and SCI Expert Medical Panel. Stay tuned for their launch of a National Digital Resource Library, the SCI PLAYBOOK, chocked full of essential SCI information and trauma informed responses for the first hours, days and months after injury. To find out more, get involved, or make a donation, visit www.BLINKofaneye.org.

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