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Every house is haunted. In each episode of Family Ghosts, we investigate the true story behind a mysterious figure whose legend has followed a family for generations. Grandmothers who were secretly jewel smugglers, uncles who led double lives, siblings who vanished without a trace, and other ghostly characters who cast shadows over our lives in ways that might not be immediately obvious. We are all formed in part by our familial collections of secrets, intrigues, and myths. By engaging with ...
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My guest today is Elaine Perlman, an altruistic kidney donor, President of the Coalition to Modify NOTA, and Executive Director of Waitlist Zero. She is leading campaigns to pass the End Kidney Deaths Act (which is the subject of our discussion today) and the Honor Our Living Donors Act.
As a bit of background, the End Kidney Deaths Act (H.R. 2687/ EKDA) is a ten year pilot program that would provide a refundable tax credit of $10,000 each year for five years ($50,000 total) to living kidney donors who donate a kidney to a stranger, which would go to those who have been waiting longest on the kidney waitlist. You can read the full text of the End Kidney Deaths Act from the link in the show notes, along with other relevant sources that we discuss during today’s podcast.
Show Notes
About Elaine Perlman
About Kim Krawiec
About Denise Azadeh
End Kidney Deaths Act legislation
JAMA opposition article
Our JAMA response
Their JAMA reply
Good Morning America segment, Elaine’s son meeting his recipient (9 minutes)
Video about ethics and the End Kidney Deaths Act (3 minutes)
Video "Why Donate our Kidney to a Stranger (20 minutes)
69 episodes
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