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HBO and The Ringer's Bill Simmons hosts the most downloaded sports podcast of all time, with a rotating crew of celebrities, athletes, and media staples, as well as mainstays like Cousin Sal, Joe House, and a slew of other friends and family members who always happen to be suspiciously available.
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On this episode of the Dementia Podcast, Colm chats with Steve Macfarlane, Head of Clinical Services at Dementia Support Australia and Lynne Sewell whose husband, Rick, is living with Frontotemporal Dementia (FTD).
In the episode Steve gives us a clinical overview of FTD, the differences from types of Dementia like Alzheimer's disease, typical features of the condition and outlines current treatment options.
Lynne then shares her story and advocacy for Rick, from his diagnosis to the challenges of finding assistance, both in terms of care and living arrangements.
One of the key areas that is brought up in the podcast is the diagnosis, the way in which it was delivered and what post-diagnostic care and support both Rick and Lynne received. If you’d like to learn more about finding support after diagnosis, we’d encourage you to visit Forward with Dementia.
Lynne also shares with Colm about her role as Rick’s full-time carer and experiences of living with someone with FTD, the sources of support she has relied on and her journey to accessing specialist disability accommodation.
If you’d like to hear more about our Talking Dementia series and more about post diagnostic care we’d love for you to have a listen of one of our previous episodes, Talking Dementia: Diagnosis and Post-Diagnostic Care.
Additional resources and support services
The Association for Frontotemporal Degeneration (US)
Alzheimer’s Research UK (living with frontotemporal dementia)
Alzheimer’s Disease International (Details of your local support associations)
39 episodes
