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This week's episode is with Nicole Kenyon, head of the National MS Society Community Council in Tampa and a passionate fitness enthusiast. Living with Multiple Sclerosis and Type 1 Narcolepsy, she is committed to empowering others through legislative advocacy, fundraising, and fitness and community initiatives.
In our conversation, Nicole opens up about navigating the complexities of the healthcare system to ensure she receives proper care, and she shares the challenges she has faced in receiving her MS and Narcolepsy diagnoses. We also touch on the importance of self-advocacy in the medical setting, drawing from her experiences.
Beyond her personal journey, Nicole discusses her impactful work supporting others, including advocating for legislation on Capitol Hill that assists individuals living with MS and Narcolepsy. Her dedication to helping others, whether organizing community fitness events or engaging in personal conversations, is truly inspiring.
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Follow me on Instagram: @neurologicaldisorderpodcast
Email me at: [email protected]
Follow Nicole on Instagram: @fitniknarcoleptic
Helpful resources:

• https://my.clevelandclinic.org/health/diseases/17248-multiple-sclerosis
• https://my.clevelandclinic.org/health/diseases/12147-narcolepsy