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HBO and The Ringer's Bill Simmons hosts the most downloaded sports podcast of all time, with a rotating crew of celebrities, athletes, and media staples, as well as mainstays like Cousin Sal, Joe House, and a slew of other friends and family members who always happen to be suspiciously available.
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When the federal government slashes Medicaid funding, states are left to decide what happens next... and families like ours are left bracing for the fallout.
In this mini episode, Madeline and Alyssa talk about what these federal cuts really mean for families of disabled and medically complex children. They break down the impacton Medicaid HCBS waivers, what states can (and might) do next, and why the math just doesn’t add up for our kids.
They also get real about the mental health toll of uncertainty, the pain of being ignored, and what it means to build community resilience when the systems built tosupport you start to crumble.
If you’re feeling confused, furious, or just deeply tired, this conversation is for you.
Links:
Join The Rare Life newsletter and never miss an update!
Fill out our contact form to joinupcoming discussion groups!
Follow Alyssa at @caffeinated_caregivers!
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Access the transcript on the website here.
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