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HBO and The Ringer's Bill Simmons hosts the most downloaded sports podcast of all time, with a rotating crew of celebrities, athletes, and media staples, as well as mainstays like Cousin Sal, Joe House, and a slew of other friends and family members who always happen to be suspiciously available.
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Life Before and After Diagnosis: Rewriting Your Story with Chronic Illness
The SpoonFull Show- A Chronic Illness Podcast by SpoonFull of Strength
Manage episode 520218941 series 3648435
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In this Spoonie Chats episode, Rachel is joined by Christina Lisk, one of the top-downloaded guests from episode 6 of the SpoonFull of Strength podcast.
Christina shares big updates since her first appearance: her ovarian vein transposition surgery has now been declared a success, and she’s received formal diagnoses of hypermobile Ehlers-Danlos Syndrome (hEDS) and POTS. What once felt like “bad luck” running through generations is now understood as genetics—and that shift changes everything about how she sees her past, her body, and her future.
Together, Rachel and Christina explore what it means to live a life that feels split into “before diagnosis” and “after diagnosis.” They talk about:
The shock of a diagnosis that shatters your story overnight
When your body slows down but your mind is still go-go-go
Redefining success after you can’t work the way you used to
Learning to ask for help and respect your limits (instead of self-abandoning for productivity)
Advocating with doctors, using research wisely, and getting clear on what you want from your care
Christina’s powerful concept of “catastrophic reconstruction”—rebuilding your identity after everything you believed about yourself breaks
If you’re still in the “before” phase—searching for answers, feeling gaslit, or terrified of what a diagnosis might mean—or if you’re trying to figure out who you are after everything changed, this conversation will make you feel seen.
What’s one way you’ve changed—for better or for harder—since your diagnosis?
Follow Christina on Instagram at https://www.instagram.com/therunciblespoonie/
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