Manage episode 521842636 series 3465393
Simone Round shares how a hand tremor evolved into a complex FND diagnosis, now consisting of tics, chronic migraines, non‑epileptic seizures, and the reality of becoming an ambulant wheelchair user. In this episode, Simone talks us through her journey from an active lifestyle and career, working over 70 hours a week, to the steps she now takes to support her mental health and wellbeing. She explains how she now takes pleasure in a much slower pace of life, mindfulness and connection with people who also live with chronic illness.
Simone also describes the differences between carers and PAs and how her independence feels restored since having the aid of one.
If you are concerned about any of the subjects discussed in the podcast, please follow up and seek support from your healthcare practitioner.
For support:
- Visit your Healthcare practitioner
- FND Hope International
- FND Hope UK
- FND Action UK
- FND Ireland
- FND Matters Northern Ireland
- FND Hope Canada & USA Facebook support page
Hosted by Chantal Boyle, Hidden Disabilities Sunflower.
If you enjoyed this podcast, please leave a rating and review.
Find out more about the Sunflower by visiting the website hdsunflower.com
Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website
Chapters
1. FND with Simone Round (00:00:00)
2. Host And Guest Introductions (00:00:40)
3. Visual Descriptions And Setup (00:02:49)
4. Diagnoses And Early Symptoms (00:05:09)
5. Tremor Progression To FND (00:08:38)
6. Tics, Triggers, And Seizure Types (00:11:37)
7. Acceptance Through Education (00:17:25)
8. Career, Identity, And Lifestyle Shift (00:19:54)
9. Sensory Triggers And Public Environments (00:24:22)
10. Daily Routines, Pacing, And Movement (00:29:05)
11. Stigma, Pathways, And Healthcare Gaps (00:34:06)
12. Ambulant Wheelchair Use Explained (00:38:18)
13. PAs Versus Carers And Independence (00:41:54)
144 episodes