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Stargardt Disease with Erin - Australia and New Zealand
Manage episode 485362547 series 3465393
Erin Philpott shares her journey with Stargardt disease, revealing how she navigated diagnosis as a teenager and now balances motherhood while advocating for invisible disabilities in the workplace and beyond.
• Erin faces significant daily challenges with transportation as a legally blind mother to a five-year-old
• Often encounters misconceptions as she doesn't "look blind" without using a cane or guide dog
• Erin chairs an employee-led committee advocating for disability, accessibility and inclusion
• Erin emphasises that accessibility benefits everyone, not just people with disabilities
• Advocates for building accessibility into initial designs rather than adding as afterthoughts
• Challenges the stigma that disability means limitation: "Make it accessible and we'll come in droves"
Please keep the conversation going via our Website, on Facebook, or on Instagram.
Chapters
1. Introduction to Erin's Journey (00:00:00)
2. Diagnosis and Teenage Defiance (00:03:25)
3. Daily Challenges with Transportation (00:05:37)
4. Workplace Barriers and Accommodations (00:09:41)
5. Becoming a Disability Advocate (00:12:50)
6. Breaking Down Misconceptions (00:16:56)
128 episodes
Manage episode 485362547 series 3465393
Erin Philpott shares her journey with Stargardt disease, revealing how she navigated diagnosis as a teenager and now balances motherhood while advocating for invisible disabilities in the workplace and beyond.
• Erin faces significant daily challenges with transportation as a legally blind mother to a five-year-old
• Often encounters misconceptions as she doesn't "look blind" without using a cane or guide dog
• Erin chairs an employee-led committee advocating for disability, accessibility and inclusion
• Erin emphasises that accessibility benefits everyone, not just people with disabilities
• Advocates for building accessibility into initial designs rather than adding as afterthoughts
• Challenges the stigma that disability means limitation: "Make it accessible and we'll come in droves"
Please keep the conversation going via our Website, on Facebook, or on Instagram.
Chapters
1. Introduction to Erin's Journey (00:00:00)
2. Diagnosis and Teenage Defiance (00:03:25)
3. Daily Challenges with Transportation (00:05:37)
4. Workplace Barriers and Accommodations (00:09:41)
5. Becoming a Disability Advocate (00:12:50)
6. Breaking Down Misconceptions (00:16:56)
128 episodes
All episodes
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