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Stroke with Saran - Australia and New Zealand
Manage episode 480149062 series 3465393
Saran Chamberlain shares her journey as a young stroke survivor, from experiencing a life-changing event at 38 to becoming a national advocate for the stroke community.
• Initially misdiagnosed as a migraine, the stroke left her entire left side paralysed with no sensation
• Saran discusses the challenges of identity shift and the unseen deficits like fatigue, depression, and sensory overload
• Highlights the isolation younger stroke survivors often face in healthcare and rehabilitation settings
• Saran works on research co-design, speaks openly about stigma, and supports other survivors as a mentor.
• Emphasises the importance of meaningful inclusion of people with lived experience in research using "nothing about us without us" principles
• Believes in taking small wins and finding hope in the lifelong journey of post-stroke life
Visit our website or find us on Facebook and Instagram
Chapters
1. Stroke with Saran - Australia and New Zealand (00:00:00)
2. Welcome to Sunflower Conversations (00:00:13)
3. Experiencing a stroke at 38 (00:01:18)
4. Identity shift and advocacy journey (00:02:57)
5. Challenges as a younger stroke survivor (00:05:25)
6. Finding community and support networks (00:09:21)
7. Systemic barriers and research improvements (00:11:26)
8. Life can still be good (00:16:24)
128 episodes
Manage episode 480149062 series 3465393
Saran Chamberlain shares her journey as a young stroke survivor, from experiencing a life-changing event at 38 to becoming a national advocate for the stroke community.
• Initially misdiagnosed as a migraine, the stroke left her entire left side paralysed with no sensation
• Saran discusses the challenges of identity shift and the unseen deficits like fatigue, depression, and sensory overload
• Highlights the isolation younger stroke survivors often face in healthcare and rehabilitation settings
• Saran works on research co-design, speaks openly about stigma, and supports other survivors as a mentor.
• Emphasises the importance of meaningful inclusion of people with lived experience in research using "nothing about us without us" principles
• Believes in taking small wins and finding hope in the lifelong journey of post-stroke life
Visit our website or find us on Facebook and Instagram
Chapters
1. Stroke with Saran - Australia and New Zealand (00:00:00)
2. Welcome to Sunflower Conversations (00:00:13)
3. Experiencing a stroke at 38 (00:01:18)
4. Identity shift and advocacy journey (00:02:57)
5. Challenges as a younger stroke survivor (00:05:25)
6. Finding community and support networks (00:09:21)
7. Systemic barriers and research improvements (00:11:26)
8. Life can still be good (00:16:24)
128 episodes
All episodes
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