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Stroke with Saran - Australia and New Zealand

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Manage episode 480149062 series 3465393
Content provided by Hidden Disabilities Sunflower. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Hidden Disabilities Sunflower or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

Saran Chamberlain shares her journey as a young stroke survivor, from experiencing a life-changing event at 38 to becoming a national advocate for the stroke community.
• Initially misdiagnosed as a migraine, the stroke left her entire left side paralysed with no sensation
• Saran discusses the challenges of identity shift and the unseen deficits like fatigue, depression, and sensory overload
• Highlights the isolation younger stroke survivors often face in healthcare and rehabilitation settings
• Saran works on research co-design, speaks openly about stigma, and supports other survivors as a mentor.
• Emphasises the importance of meaningful inclusion of people with lived experience in research using "nothing about us without us" principles
• Believes in taking small wins and finding hope in the lifelong journey of post-stroke life
Visit our website or find us on Facebook and Instagram

  continue reading

Chapters

1. Stroke with Saran - Australia and New Zealand (00:00:00)

2. Welcome to Sunflower Conversations (00:00:13)

3. Experiencing a stroke at 38 (00:01:18)

4. Identity shift and advocacy journey (00:02:57)

5. Challenges as a younger stroke survivor (00:05:25)

6. Finding community and support networks (00:09:21)

7. Systemic barriers and research improvements (00:11:26)

8. Life can still be good (00:16:24)

128 episodes

Artwork
iconShare
 
Manage episode 480149062 series 3465393
Content provided by Hidden Disabilities Sunflower. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Hidden Disabilities Sunflower or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

Saran Chamberlain shares her journey as a young stroke survivor, from experiencing a life-changing event at 38 to becoming a national advocate for the stroke community.
• Initially misdiagnosed as a migraine, the stroke left her entire left side paralysed with no sensation
• Saran discusses the challenges of identity shift and the unseen deficits like fatigue, depression, and sensory overload
• Highlights the isolation younger stroke survivors often face in healthcare and rehabilitation settings
• Saran works on research co-design, speaks openly about stigma, and supports other survivors as a mentor.
• Emphasises the importance of meaningful inclusion of people with lived experience in research using "nothing about us without us" principles
• Believes in taking small wins and finding hope in the lifelong journey of post-stroke life
Visit our website or find us on Facebook and Instagram

  continue reading

Chapters

1. Stroke with Saran - Australia and New Zealand (00:00:00)

2. Welcome to Sunflower Conversations (00:00:13)

3. Experiencing a stroke at 38 (00:01:18)

4. Identity shift and advocacy journey (00:02:57)

5. Challenges as a younger stroke survivor (00:05:25)

6. Finding community and support networks (00:09:21)

7. Systemic barriers and research improvements (00:11:26)

8. Life can still be good (00:16:24)

128 episodes

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