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Solving a diagnostic puzzle: the challenges of rare diseases

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Manage episode 341029899 series 3253844
Content provided by HudsonAlpha Institute for Biotechnology. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by HudsonAlpha Institute for Biotechnology or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

Join us for this tiny expedition into rare disease research and advocacy. You’ll hear from a family who turned their experiences caring for their son with a rare disease and turned them into an advocacy organization to help other parents. You will also learn how scientists are trying to end the long and emotional diagnostic odysseys that many patients and their families endure.

To go behind the scenes and learn more about this episode, visit “Solving a diagnostic puzzle: the challenges of rare diseases.”

Thanks for listening! Follow us on Twitter at @ExpeditionsTiny. To receive episode updates and bonus material, subscribe to our mailing list here.

  continue reading

41 episodes

Artwork
iconShare
 
Manage episode 341029899 series 3253844
Content provided by HudsonAlpha Institute for Biotechnology. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by HudsonAlpha Institute for Biotechnology or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

Join us for this tiny expedition into rare disease research and advocacy. You’ll hear from a family who turned their experiences caring for their son with a rare disease and turned them into an advocacy organization to help other parents. You will also learn how scientists are trying to end the long and emotional diagnostic odysseys that many patients and their families endure.

To go behind the scenes and learn more about this episode, visit “Solving a diagnostic puzzle: the challenges of rare diseases.”

Thanks for listening! Follow us on Twitter at @ExpeditionsTiny. To receive episode updates and bonus material, subscribe to our mailing list here.

  continue reading

41 episodes

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