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Solving a diagnostic puzzle: the challenges of rare diseases
Manage episode 341029899 series 3253844
Join us for this tiny expedition into rare disease research and advocacy. You’ll hear from a family who turned their experiences caring for their son with a rare disease and turned them into an advocacy organization to help other parents. You will also learn how scientists are trying to end the long and emotional diagnostic odysseys that many patients and their families endure.
To go behind the scenes and learn more about this episode, visit “Solving a diagnostic puzzle: the challenges of rare diseases.”
Thanks for listening! Follow us on Twitter at @ExpeditionsTiny. To receive episode updates and bonus material, subscribe to our mailing list here.
41 episodes
Solving a diagnostic puzzle: the challenges of rare diseases
Tiny Expeditions - A Podcast about Genetics, DNA and Inheritance
Manage episode 341029899 series 3253844
Join us for this tiny expedition into rare disease research and advocacy. You’ll hear from a family who turned their experiences caring for their son with a rare disease and turned them into an advocacy organization to help other parents. You will also learn how scientists are trying to end the long and emotional diagnostic odysseys that many patients and their families endure.
To go behind the scenes and learn more about this episode, visit “Solving a diagnostic puzzle: the challenges of rare diseases.”
Thanks for listening! Follow us on Twitter at @ExpeditionsTiny. To receive episode updates and bonus material, subscribe to our mailing list here.
41 episodes
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