Thyroid Eye Disease: Breakthroughs, Barriers, And The Need For Diversity With Dr. Vivek Patel Voices Of Inclusive Research podcast

Thyroid Eye Disease: Breakthroughs, Barriers, and the Need for Diversity with Dr. Vivek Patel

1M ago 30:05

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Did you know that thyroid eye disease (TED) can cause vision loss, double vision, and even blindness?

In this episode of Voices of Inclusive Research, host Renarda Jones sits down with Dr. Vivek Patel, Chief of Neuro-Ophthalmology at UC Irvine, to explore new breakthroughs in thyroid eye disease treatment and the critical need for diverse participation in clinical trials.

Dr. Patel explains the warning signs of TED, who is most at risk, and why many clinical studies lack representation from communities of color. He breaks down the latest biological treatments beyond steroids and surgery, and how they’re transforming care for TED patients.

Why does representation matter in TED research? Because different populations may respond differently to treatments, and without diversity in clinical trials, we don’t have the full picture.

🎧 Listen now to learn more about the latest advancements in TED research and why diverse participation is key to better outcomes for all.

Learn more about TED research and clinical trials:

TED Community link for more TED patient and caregiver information and resources. That URL is https://tedcommunity.org/
argenx website: https://argenx.com/
argenx Clinical Trials List: https://argenx.com/patients/clinical-trials
Uplighted Study – TED Research: https://uplightedstudyus.com/
Contact: [email protected] (Patient Advocacy Lead for the Thyroid Eye Disease program at argenx)

Must-Hear Insights and Key Moments

What is Thyroid Eye Disease?
Dr. Patel explains TED as an autoimmune disorder that impacts the eyes, causing inflammation, vision issues, and disfigurement—sometimes leading to blindness.
The Evolution of TED Treatments
For years, steroids and surgery were the only treatment options. Now, new biological therapies are changing how TED is managed.
The Importance of Early Detection
Common symptoms like dry eyes, puffiness, and double vision can signal TED. Seeing an eye doctor early can lead to faster diagnosis and treatment.
Diversity in Clinical Trials Matters
Most research on TED has been conducted on predominantly white populations—meaning we lack critical data on how different ethnic groups respond to treatments.
Why More People Should Consider Clinical Trials
Dr. Patel highlights how clinical trial participants receive high-quality, closely monitored care and play a crucial role in advancing treatment options for future generations.

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Chapters

1. Introduction (00:00:00)

2. What is Thyroid Eye Disease? Symptoms & Risks (00:02:42)

3. The Evolution of TED Treatments: Beyond Steroids & Surgery (00:06:12)

4. The Role of Endocrinologists & Ophthalmologists in Diagnosing TED (00:09:57)

5. Why Diversity in TED Research is Critical (00:13:27)

6. How Clinical Trials Work & Why More People Should Consider Them (00:17:12)

7. The Connection Between Autoimmune Diseases & TED (00:20:42)

8. How the Community Can Educate Themselves on TED (00:24:57)

17 episodes