Welcome to Our Skin, a Personal Discovery Podcast. Each week, host Holly Frey showcases a personal story from someone who lives–and thrives!--while managing psoriasis. Being diagnosed with a chronic skin condition can throw anyone off track, but Our Skin guests have a message of hope: a diagnosis can be an opportunity to discover new things about ourselves, our grit, and our power. In addition to these tales of hope, Frey and her guests plunge into the jaw-dropping, bizarre, and occasionally ...
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In this episode, we discuss Leigh Syndrome, a rare mitochondrial disease, with Kasey Woleben and Sophia Zilber of the Cure Mito Foundation. We talk about the importance of patient registries and how rare disease patients and families band together to work for a better future. To learn more about Leigh Syndrome and the Cure Mito Foundation, visit their website at www.curemito.org.
76 episodes