Welcome to Our Skin, a Personal Discovery Podcast. Each week, host Holly Frey showcases a personal story from someone who lives–and thrives!--while managing psoriasis. Being diagnosed with a chronic skin condition can throw anyone off track, but Our Skin guests have a message of hope: a diagnosis can be an opportunity to discover new things about ourselves, our grit, and our power. In addition to these tales of hope, Frey and her guests plunge into the jaw-dropping, bizarre, and occasionally ...
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In this episode, we speak with Patient Advocate Nathan Ehrlich about SAMD9L mutations and their connection to a range of conditions, including bone marrow failure disorders, cytopenia and ataxia-pancytopenia syndrome. If you'd like to get in touch with Nathan, you can email him at [email protected]. You can also check out the SAMD9L mutations Facebook support page here.
76 episodes