Best Fanconi Hope Podcasts (2025)

1
6. How do we raise awareness of rare conditions 17:30

13d ago17:30

17:30

This final episode looks at the lack of public awareness about rare bone marrow conditions and the challenges in getting people to understand them. We highlight the work of the collective charities to raise awareness. Conditions mentioned in this episode: Shwachman Diamond Syndrome, Dyskeratosis Congenita, Paroxysmal Nocturnal Haemoglobinuria Furth…

1
5. Navigating the healthcare system 15:27

14d ago15:27

15:27

When conditions are rare, even healthcare professionals fail to recognise them. This episode discusses some of the struggles that people living with rare blood disorders can experience when trying to get medical care. Conditions mentioned in this episode: Paroxysmal Nocturnal Haemoglobinuria, Fanconi Anaemia, Shwachman Diamond Syndrome Further read…

1
4. How to find your tribe 16:58

17d ago16:58

16:58

Loneliness is rife among people living with rare blood disorders. But there’s a whole community of people out there who are willing to connect. How are people with similar conditions finding each other? Conditions mentioned in this episode: Fanconi anemia, Aplastic Anaemia, Paroxysmal Nocturnal Haemoglobinuria Further Reading: super-rare.org theaat…

1
3. How do you find psychological support? 18:03

18d ago18:03

18:03

Around two-thirds of people living directly or indirectly with a rare bone marrow condition feel they need more psychological support. Why is it important, how does it help and what resources are available? Conditions mentioned in this episode: Sickle cell anemia, Fanconi Anaemia, Shwachman Diamond Syndrome Further Reading: super-rare.org theaat.or…

1
2. Dealing with parental anxiety 22:35

19d ago22:35

22:35

For parents of those with rare bone marrow conditions, life can be exceedingly stressful. How can you manage this anxiety and support their child well? Conditions mentioned in this episode: Fanconi Anaemia, Shwachman Diamond Syndrome, Dyskeratosis Congenita. Further reading: fanconihope.org sdsuk.org dcaction.org theaat.org.uk super-rare.org…

1
1. Living with a rare condition 23:23

20d ago23:23

23:23

What is it like living with a rare blood or bone marrow disorder? In the first episode of this series, we discuss what it’s like to live with a rare condition day-to-day. Conditions mentioned in this episode: Sickle cell anemia, Dyskeratosis Congenita, Paroxysmal Nocturnal Haemoglobinuria Content note: This episode discusses miscarriage and pregnan…

1
Daniel Kolt: Living with Fanconi Anemia and Using Humor to Inspire Others 32:30

5+ y ago32:30

32:30

Living with Fanconi anemia and surviving cancer twice, Daniel exemplifies remarkable resilience. He launched the Life, Death, and Happiness podcast to give others a platform to share their incredible journeys of navigating chronic and, at times, terminal illnesses. With a sharp sense of humor, Daniel shares his own story to inspire and uplift other…

1
Finding His Voice with AC Fischer 32:32

5+ y ago32:32

32:32

AC Fischer grew up in a very religious Christian family. They didn't allow him to ask deep questions about things that he understood differently than they did it had a devastating impact on him. Fischer lost his voice, felt estranged and began to walk a path that led him away from his church and the ones he had loved the most in his life. Listen to…

1
Battered Hope with Carol Graham 30:22

5+ y ago30:22

30:22

Through multiple devastating experiences, Carol has never ever given up Hope. She is resilient and strong and helps Women create the life of their dreams. Today, may you be inspired and take one step closer to creating the life of your dreams. Carol Graham has survived the challenges of major illnesses, devastating personal losses including the los…

1
Overcoming Rejection with LeRon Barton 31:38

5+ y ago31:38

31:38

Could you imagine what it would be like to write your first play, share it with your school and then have your peers and teacher tell you it was the worst thing they ever wrote? LeRon was a young man overcoming the challenge of speaking with a stutter while being faced with serious rejection. He is here today to share how he overcame his stutter an…

1
Saved From Suicide with Sean Douglas 39:47

5+ y ago39:47

39:47

Integrating from Military Service to everyday family life is a challenge. Sean Douglas takes us on his journey down a dark and dangerous path that nearly led to taking his own life. He shares the decisions he made and the steps he took to stop drinking, smoking and to get his family back. Each step added up and brought him to be the man he is today…

1
Overcoming devastating childhood abuse and working in the sex industry to living the Dream Life as a millionaire Stay At Home Mom Entrepreneur with Kat McLead 34:14

5+ y ago34:14

34:14

Welcome to the Valleys and Mountaintops podcast. Today we talk about getting past the hold that childhood trauma has on our lives. I am talking with Kat McLead, she is the creator of the Stay at Home Mom Entrepreneur where he helps Mom's create a highly profitable business they love working only 2 hours per day. From the mucky mud of life to a 6 fi…

1
Overcoming Cancer As a Teen with Timothy Lawson 36:11

5+ y ago36:11

36:11

When most boys are choosing their education path and graduation Timothy was having Chemo and overcoming Cancer. This young man demonstrated courage, faith and encouraged others. He shares how to get through cancer and some great tips to help your loved ones along the journey. Timothy lives in The District of Columbia. He has lived in about a dozen …

1
Rags to Riches with Jerry Brazie 32:13

5+ y ago32:13

32:13

Today's episode is about how to overcome a poverty mindset after living in poverty. I am talking with Jerry Brazie who grew up being the 7th child coming from a family of 9 brothers and sisters. We will talk about how many of us are taught we can't achieve, we are not worth anything and hold on to the little we have afraid to let go and make more. …

1
Turning a Multiple Sclerosis Diagnosis into an Enabled Warrior with Jessie Ace 25:32

5+ y ago25:32

25:32

Jessie Ace was diagnosed with Multiple Sclerosis, referred to as MS, in her early 20's. Undoubtedly shocked, she went through a difficult time while she learned about it and figured out what to do. Instead of considering herself disabled, she chose to see her self as an enabled warrior and founded a group to support others diagnosed with a disease …

1
Entrepreneurship, Dialysis and a Kidney Transplant with Craig Dias 33:07

5+ y ago33:07

33:07

Craig waited for 7 years before he was able to receive a kidney transplant. Throughout that time, he ran businesses, started a family and even played football, or soccer, depending on where you are in the world. Although he had many difficulties throughout his journey, he never gave up, made it through and stopped by to share his journey with you. …

1
How to Forgive and Live After A Painful Divorce with Daeyna Jackson 27:12

5+ y ago27:12

27:12

Daeyna teaches English in Japan and is the host of the, She is a Mess Podcast. After discovering her husband was gay, going through a painful divorce and starting over from scratch she decided to helps others embrace the mess and share their message one story at time. Topics We Talk About: How holding on to hate towards someone only hurts us Moving…

1
Bootstrapping Your Dreams with Manuj Aggarwal 30:54

5+ y ago30:54

30:54

Welcome to the Valleys and Mountaintops of life podcast. We share real life stories to give you hope and inspire you to take action with whatever you're facing. No matter how difficult your life circumstances are, never give up. These words are peppered through the conversation today. Our guest began his journey in India, working in a factory as a …

1
The Power of Conversation with Engel Jones 38:04

5+ y ago38:04

38:04

Engel and his wife Amanda traveled across North America this summer. They met with people along the way and shared their inspiring stories. Not long before their trip, Engel's ended up off work without a paycheck. He shares with us how the difficult time ended up propelling him to get out of debt and change course. You will hear the highs, the lows…

1
From Diagnosis to Dreaming Again with Dr. Jennifer “Kaylene” Carter 29:41

5+ y ago29:41

29:41

For years Kaylene experienced many medical symptoms and illnesses. After a long journey, she was diagnosed with Complex PTSD. While in treatment she was able to link the medical challenges she had been faced with to the trauma from the abuse she endured as a child. Today on the show, From Diagnosis to Dreaming Again with Dr. Jennifer “Kaylene” Cart…

1
Fearless Faith Mindset with MJ Callaway 35:35

5+ y ago35:35

35:35

MJ is the first guest on the show that has not only beat cancer but is currently overcoming it now. She has a fearless faith mindset and came on the podcast to share her testimony of just how much can be overcome for anyone that is facing something challenging. MJ Callahan is an award-winning and 7times author, member of the National Speakers Assoc…

1
Diz Runs Radio: Gina Johnson Relied On Running To Help Her Through Dark Times 54:56

6y ago54:56

54:56

Denny Krahe of Diz Runs Radio shared my story on his podcast. We talked about quitting smoking, loosing weight and the relentless pursuit of achieving your dreams. You can find the show notes he wrote up at: http://www.dizruns.com/gina-johnson/

1
Healing From The Ground Up with Michael Hsu 50:26

6y ago50:26

50:26

Many of us grow up feeling invisible or not good enough. Some of us are aware of it and others have yet to discover it. If we are faced with trauma or have parents that faced difficulties in coping in life, we may interoperate that in a negative way within ourselves. Today we talk about what it is like to be a highly sensitive person. If someone is…

1
How To Answer Why Did This Happen To Me? with Aaron Keith Hawkins 40:46

6y ago40:46

40:46

Aaron was a Police Chief, Husband and Father when he experienced a close call with death. After realizing he could have suffered a heart attack, mini-stroke or aneurism he experienced a change in his life. He shares his journey through more than a decade of personal growth and a shift from surviving to now living an intentional life that is thrivin…

1
Vision With Geoff Hughes 50:31

6y ago50:31

50:31

Life is full of twists and turns and ups and downs. For our guest today, there has been no exception. He shares the story of his life; from being raised by a Single-Mother on Welfare to becoming an unfulfilled millionaire. He tells us how he bought his Porche 911, home and became a Millionaire only to realize that the vision he had created for his …

1
Something To Live For With Rob Decker 53:09

6y ago53:09

53:09

How do you free yourself from the struggles and pains that started in the generations before you were born? What happens when a parent is not equipped with everything they need to parent well, and they are not able to learn the skills necessary? Our guest today shares his story of a difficult and dark start to life, followed by struggle nearly endi…

1
Bullish on Bitcoin with Misha Yurchenko 35:08

6y ago35:08

35:08

Have you ever made a mistake that took a while to get over? You asked yourself questions such as how did this happen and why? How about losing a couple hundreds of thousands of dollars? Join me as we walk along Misha’s journey through life as he learned a hard lesson by losing a lot of money. He has a curious mindset and looked for the answers to l…

1
Finding Meaning with John Graham 48:28

6y ago48:28

48:28

John began life as an adventurer. He took on climbing mountains that have never again been climbed, was active in wars, revolutions and many thrill-seeking adventures that brought him near death a dozen times. In the midst of a war, he had a light bulb moment and realized that all the thrill and adventure had not brought him meaning in life. He sha…

1
ADHD a Superpower with Maneesh Sethi 29:57

6y ago29:57

29:57

Our guest today often speaks on topics such as: · How to raise millions for your startup · Productivity hacks that work and · Travelling the world He was told as a boy that he had a disorder called ADHD. Today instead of sharing his business expertise, he has joined us to share his story about how he turned ADHD into Super Power. He learned how to …

1
Business Culture and Mindset with Julie Ann Sullivan 31:14

6y ago31:14

31:14

Julie Ann Sullivan speaks about business culture and shares her journey from quitting her first job on the spot without savings or a plan to being the successful entrepreneur she is today. She has interviewed over 40 C-Suite leaders about the award-winning cultures they have created and maintained. Julie Ann Sullivan is a business culture expert. S…

1
Project Woo Woo with Lisa Orkin 19:27

6y ago19:27

19:27

Living in LA as an artist is quite an adventure. Lisa shares her ups and downs with us today on the show! We talk about divorce, the grieving process and how to have fun in life. Favorite Book: The Alchemist: https://www.goodreads.com/book/show/865.The_Alchemist The Illustrated Man: https://www.goodreads.com/book/show/24830.The_Illustrated_Man Favo…

1
Master your Time, Talent and Treasures with Scott Maderer 41:20

6y ago41:20

41:20

Episode 75 on The Synergy Mindset Podcast and Community. Driving a long way down a country road, contemplating sending his car off the road, Scott made a decision in his mind to end his life. He had thought that his wife could pay off the debt with the life insurance payout. As he was wrestling with his decision, Dave Ramsey came on the radio and h…

1
Do Good, Be Awesome with Steve Reiter 43:39

6y ago43:39

43:39

Today I have the honour and privilege to speak with the cohost of the Eternal Leadership Podcast. He interviews incredibly inspiring and successful business professionals alongside his good friend John Ramstead. Steve Reiter is an entrepreneur, Husband, Father, Podcast Host and shares his story of how he faced burnout, left his job, began to work f…

1
Kingdom Mindset with Christian CEO Kelly Baader 33:20

6y ago33:20

33:20

Kelly Baader is here to share her inspiring story of how she had to overcome insurmountable odds since her childhood to achieve the success she enjoys today. She is a wife and Mom, lives in Switzerland with a well-traveled Labrador, a renowned Digital Sales and Marketing Strategist, Certified Business Coach, Mentor to emerging Christian entrepreneu…

1
Setting Intentions that Succeed with Karen Liebenguth 33:40

6y ago33:40

33:40

Over half of people that set intentions fail at succeeding with them but it's not you, it doesn't have to be. If you have started to fall away from the intentions you set on New Years or have fallen away completely, don’t worry, Karen is here to share with you some great ways that you can not only get back on track but ensure success to see them th…

1
Helping Moms Ditch the Stress and Find Joy with Marina Pearson 45:47

6y ago45:47

45:47

Marina Pearson is a mother, bestselling author, international TEDx speaker, investor and Joy Retreat Facilitator. Most of all she is a human Be-ing. She lives her life working on projects that light her up and in the process assists others to also light up their lives. Over 14 years’ experience in the transformation industry has culminated in Marin…

1
Ending the Overwhelm and Stress with Nicole Burgess 25:50

6+ y ago25:50

25:50

Nicole Burgess is a licensed psychotherapist, host of Soulfilled Sisterhood podcast, and introvert empowerment coach to high achieving and sensitive professional women. She helps highly sensitive women end the overwhelm and stressed out cycle, perfectionism and find balance in their life. They go from surviving to thriving in our busy world. Nicole…

1
Wyred to Win with James Newcomb 32:06

6+ y ago32:06

32:06

"This too shall pass" is a powerful quote we hear when going through a storm in life. Our guest today is in the middle of one and instead of postponing the interview, he shared with us from a place of vulnerability and truth. What do you do when you feel like a failure? How do you move forward? James shares his walk through these questions and the …

1
Gratitude’s Lifeline with Rachel DesRochers 22:40

6+ y ago22:40

22:40

"You can not be in gratitude and have lack at the same time. It is a conscious choice that you as a human being are making to say, I don't have enough or look at how full my cup is." -Rachel DesRochers Show notes coming soon......... Mentions: 5 Love Languages https://www.5lovelanguages.com Links: www.racheldesrochers.com Instagram - @racheldesroch…

1
When A Child Attempts Their Life with Anna Milne 16:20

6+ y ago16:20

16:20

Suicide rates continue to rise and it has been estimated that it is the second leading cause of death in teens. Although it is all too common it is not often spoken about and it can be difficult to find support if you have a teen that has attempted to take their life. There is often a stigma attached to what it means to have a child try to take the…

1
Mindset Monday with Terri Fry 32:14

6+ y ago32:14

32:14

Do you ever tire from hearing about how positive you should always be while juggling all that life demands each day? There is a time for positivity and reality that there are negative things that happen, we must acknowledge, feel and move through. That is what Terri, podcast host of Mom Like that, wife and working Mother has come to share. Today we…

1
Mindset Monday with Karly Nimmo 25:41

6+ y ago25:41

25:41

Show notes coming soon........ Book: Podcast: Links: https://www.karlynimmo.com https://www.instagram.com/karlosophies/ Music, Corporate Innovative by Scott Holmes scottholmesmusic.com

1
Heart for Jesus with Mike Stone 25:53

6+ y ago25:53

25:53

Today we take a deep dive into the scripture and talk about having a renewed mind, forgiveness and Grace. Mike is a serial entrepreneur with a passion to share the Grace of Jesus. He co-hosts the Grace Coach Podcast with Kevin Smith and after finding it over the holidays, I reached out to ask him to share with you. Today we cover the following topi…

1
Second Chances with Rhonda Britten 48:05

6+ y ago48:05

48:05

Rhonda Britten shares a story that takes most peoples breath away. Today she is here to share the story of how her childhood was taken away in a moment when her father murdered her mother in front of her. The years between him taking his own life after to appearing on Oprah and sharing her story for the first time were difficult. She engaged in sel…

1
The Mindset to Socialize Alcohol Free with James Swanwick 25:23

6+ y ago25:23

25:23

Have you ever had one too many drinks at a social event and suffered from that regret of having said or done something that you only wish you could take back? I had the privilege of having James Swanwick stop by for the second time to share some great stories about how people are having fun and enjoying the Christmas season without the hangovers, r…

1
Burnout to Thriving Solopreneur with David Ralph 30:45

6+ y ago30:45

30:45

Burnout to Thriving Entrepreneur with David Ralph David was determined to see his business thrive. When he was given a stern warning from his doctor that he may only have 6 months left if he didn't slow down, he increased his workload intending to accomplish his goal before his health runway ran out. His ended up burning out and in the hospital nee…

1
Frustrated, Stressed & In Debt to The Abundance Mindset with Nate Ridgeway 33:25

6+ y ago33:25

33:25

Welcome to the Synergy Mindset Podcast, Mindset Monday Edition. Nate Ridgeway is here to share about the Scarcity Mindset vs. the Abundance Mindset. We will find out what the Abundance Mindset is and how can we adopt an Abundance Mindset? Nate is a Husband, Father, Entrepreneur, John Maxwell Certified Coach, Pastors’ Son, the Leader of Life Tribe a…

1
Back from Heaven's Front Porch with Danny Bader 31:59

6+ y ago31:59

31:59

Life is a gift and at any moment can be taken from us. It is a miracle that our guest today is alive and here to share his amazing story. He brings hope in the darkest of places and wisdom he learned from a difficult journey. Danny Bader is a best-selling author, inspirational coach, a member of the Elite Catholic Speakers Organization, CatholicSpe…

1
Scarcity Mindset With Jiaying Zhao 25:47

6+ y ago25:47

25:47

Today on Mindset Monday I speak with Jiaying Zhao about the Scarcity mindset and how it impacts everyone. She brings her own story about growing up in China living in an area experiencing poverty and tells us that is has led her to dedicate her life to researching and helping some of the most vulnerable and poor people. She shares her lens on this …

1
Post Traumatic Growth from Failed Relationships with Katrina Goff 26:36

6+ y ago26:36

26:36

Have you felt the pain of losing someone that you love followed by the frustration of thinking about how difficult starting over would be? Post Traumatic Growth can show up from failed relationships. If you are hurting or keep repeating the same cycle of relationship- single- relationship tune in to this podcast interview with Katrina Goff. Katrina…

Podcasts Worth a Listen

Fanconi Hope Podcasts

Podcasts Worth a Listen