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2. Dealing with parental anxiety
Manage episode 483722451 series 3666517
Content provided by The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN., The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN.. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN., The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN. or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.
For parents of those with rare bone marrow conditions, life can be exceedingly stressful. How can you manage this anxiety and support their child well?
Conditions mentioned in this episode: Fanconi Anaemia, Shwachman Diamond Syndrome, Dyskeratosis Congenita.
Further reading:
fanconihope.org
sdsuk.org
dcaction.org
theaat.org.uk
super-rare.org
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