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#119: Voices of Leadership. CEO of MS South Africa on Patient Support and the Future of MS Care

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Manage episode 490751995 series 3562061
Content provided by Nele Handwerker. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Nele Handwerker or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

👉 Read the full blog article here: https://ms-perspektive.com/119-mssa

In this powerful episode, I speak with Non Helena M. Smit, CEO of MS South Africa, about the unique challenges and inspiring progress in the fight against multiple sclerosis in South Africa. From personal loss to national advocacy, Non Helena shares her journey and the work her team is doing to improve care, increase awareness, and empower people living with MS.

This conversation is part of my international series, showcasing how MS impacts lives across the globe — because while the disease may be the same, the experiences are not. Let’s learn, support, and stand together.

🔍 In This Episode You’ll Learn About:
  • The structure of MS care in South Africa (private, public, allied)

  • Major challenges: delayed diagnosis, lack of access, stigma, and employment insecurity

  • MS South Africa’s successes: MSIF membership, nationwide peer support, GP training, workplace advocacy

  • Ongoing projects: public access to DMTs, MS registry, EBV prevention, Africa-wide early diagnosis

  • Clinical trial diversity and why representation matters

  • Mental health support, SADAG partnership, and emotional resilience

  • The crucial role of families, caregivers, and informed self-advocacy

  • The legal protections available to people with MS in South Africa

  • Why early diagnosis and prevention should be top priorities in the next 5 years

🔗 Important Links

📝 Full Blog Article & Interview Transcript https://ms-perspektive.com/119-voices-of-leadership-ms-south-africa

🌍 MS South Africa Website https://www.multiplesclerosis.co.za

📱 MS South Africa on Instagram https://www.instagram.com/multiplesclerosis

💼 MS South Africa on LinkedIn https://www.linkedin.com/company/multiplesclerosis-sa

📘 MS South Africa on Facebook https://www.facebook.com/multiplesclerosisSA

▶️ MS South Africa on YouTube https://www.youtube.com/@multiplesclerosisSA

📲 WhatsApp Support Line Available via the contact page on their website: https://www.multiplesclerosis.co.za

💬 South African Depression and Anxiety Group (SADAG) https://www.sadag.org

👟 The May 50K Campaign (Global MS Research Fundraiser) https://www.themay50k.com

🌐 Multiple Sclerosis International Federation (MSIF) https://www.msif.org

💡 Let’s Stay Connected!

Don’t forget to subscribe, leave a review, and share this episode with anyone who needs to hear more about MS advocacy and support around the world. Together, we can raise awareness, build community, and push for better care — everywhere.

🎤 Host: Nele von Horsten 🌍 Podcast: MS-Perspektive International – The Multiple Sclerosis Podcast 📬 Contact: https://ms-perspektive.com/kontakt

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.

  continue reading

112 episodes

Artwork
iconShare
 
Manage episode 490751995 series 3562061
Content provided by Nele Handwerker. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Nele Handwerker or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

👉 Read the full blog article here: https://ms-perspektive.com/119-mssa

In this powerful episode, I speak with Non Helena M. Smit, CEO of MS South Africa, about the unique challenges and inspiring progress in the fight against multiple sclerosis in South Africa. From personal loss to national advocacy, Non Helena shares her journey and the work her team is doing to improve care, increase awareness, and empower people living with MS.

This conversation is part of my international series, showcasing how MS impacts lives across the globe — because while the disease may be the same, the experiences are not. Let’s learn, support, and stand together.

🔍 In This Episode You’ll Learn About:
  • The structure of MS care in South Africa (private, public, allied)

  • Major challenges: delayed diagnosis, lack of access, stigma, and employment insecurity

  • MS South Africa’s successes: MSIF membership, nationwide peer support, GP training, workplace advocacy

  • Ongoing projects: public access to DMTs, MS registry, EBV prevention, Africa-wide early diagnosis

  • Clinical trial diversity and why representation matters

  • Mental health support, SADAG partnership, and emotional resilience

  • The crucial role of families, caregivers, and informed self-advocacy

  • The legal protections available to people with MS in South Africa

  • Why early diagnosis and prevention should be top priorities in the next 5 years

🔗 Important Links

📝 Full Blog Article & Interview Transcript https://ms-perspektive.com/119-voices-of-leadership-ms-south-africa

🌍 MS South Africa Website https://www.multiplesclerosis.co.za

📱 MS South Africa on Instagram https://www.instagram.com/multiplesclerosis

💼 MS South Africa on LinkedIn https://www.linkedin.com/company/multiplesclerosis-sa

📘 MS South Africa on Facebook https://www.facebook.com/multiplesclerosisSA

▶️ MS South Africa on YouTube https://www.youtube.com/@multiplesclerosisSA

📲 WhatsApp Support Line Available via the contact page on their website: https://www.multiplesclerosis.co.za

💬 South African Depression and Anxiety Group (SADAG) https://www.sadag.org

👟 The May 50K Campaign (Global MS Research Fundraiser) https://www.themay50k.com

🌐 Multiple Sclerosis International Federation (MSIF) https://www.msif.org

💡 Let’s Stay Connected!

Don’t forget to subscribe, leave a review, and share this episode with anyone who needs to hear more about MS advocacy and support around the world. Together, we can raise awareness, build community, and push for better care — everywhere.

🎤 Host: Nele von Horsten 🌍 Podcast: MS-Perspektive International – The Multiple Sclerosis Podcast 📬 Contact: https://ms-perspektive.com/kontakt

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.

  continue reading

112 episodes

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