In the MS-Perspektive Podcast, I present my view of multiple sclerosis and show you how you can make the best of the diagnosis. Because a beautiful and fulfilling life is also possible with multiple sclerosis. Here you will find information and strategies on how you can actively influence your course. In addition, I publish solo articles with my experiences, interview experts and on various topics related to living with MS as well as other affected people. In addition, there are a few episod ...
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#111: Pregnancy, childbirth, and breastfeeding with multiple sclerosis—my personal experiences
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16:28Learn more about my experiences with pregnancy, childbirth, postpartum, prenatal classes, and breastfeeding with multiple sclerosis. You can read through the complete post on my blog: https://ms-perspektive.com/111-childbirth Today, I’m sharing my experiences of pregnancy, birth preparation, giving birth, the postpartum period, and breastfeeding wi…
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#110: 10 things you should know about MRI scans for MS
40:19
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40:19Neuroradiologist Prof. Mike Wattjes explains in easy-to-understand terms what you need to know about MRI scans for MS. You can read through the transcript here: https://ms-perspektive.com/110-10-mri-facts This time, I have translated the original German interview with Prof. Dr. Mike P. Wattjes on the importance of MRI as an imaging technique for di…
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#109: Understanding Cognitive Reserve and Its Role in Multiple Sclerosis
16:34
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16:34Cognitive reserve is important for PwMS as it can compensate damage caused by MS to a certain amount. Learn how to measure and improve it. You can read through the complete article on my blog: https://ms-perspektive.com/109-cognitive-reserve I often talk about the cognitive reserve in my podcast and blog posts. When it is used up, the brain can no …
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#108: How you can use ChatGPT (or another AI) to prepare for the doctor’s consultation
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13:24Find out how AI can help you to get a more structured doctor's appointment that allows you to address all important points. You can read through the article or copy the prompts and replacing the details with your symptoms and request: https://ms-perspektive.com/108-chatgpt Today, I’ll show you how you can use AI, for example ChatGPT, to better prep…
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#107: LGBTQ+ and MS: The Fight for Inclusive and Equitable Care with Dr. William Conte
45:57
45:57
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45:57Dr. William Conte talks about the challenges and opportunities for LGBTQ+ people with MS – and how inclusive, empathetic care can succeed. You can find the transcript on my blog: https://ms-perspektive.com/107-lgbtq How do LGBTQ+ people with multiple sclerosis experience the healthcare system – and where do they encounter hurdles that often remain …
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#106: Trigeminal neuralgia and MS – an invisible challenge. Interview with Dr. Monika Köchling
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19:35
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19:35MS patients can also suffer from trigeminal neuralgia, which is very painful. Dr. Köchling explains the treatment. Translated interview. You can read the full article including the treatment details on my blog: https://ms-perspektive.com/106-trigeminal-neuralgia This time, I've translated the German interview with Dr. Monika Köchling about the caus…
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#105: The Sumaira Foundation & NMO: How One Woman’s Journey is Changing Lives Worldwide
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40:17Sumaira Ahmed turned her NMOSD diagnosis into a global movement, founding The Sumaira Foundation to support patients and drive research. You can read through all questions and answers on my blog: https://ms-perspektive.com/105-tsf Neuromyelitis Optica Spectrum Disorder (NMOSD) is a rare autoimmune disease that can feel isolating and overwhelming. B…
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#104: Leveraging AI in MS Care and Shared Decision-Making with Dr. Stefan Ebener
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50:05AI is transforming Multiple Sclerosis (MS) care by enhancing Shared Decision-Making (SDM), improving diagnosis, personalizing treatments, and empowering patients—discover the future of AI in MS with Dr. Stefan Ebener. You can read the short version of the interview on my blog: https://ms-perspektive.com/104-ai-in-ms-care Artificial intelligence (AI…
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#103: Can epigenetic research transform MS treatment? Insights into DNA methylation and MS progression with Dr. Majid Pahlevan Kakhki
42:26
42:26
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42:26Discover how epigenetic research is transforming multiple sclerosis treatment by uncovering the role of DNA methylation, gene regulation, and potential new therapies for MS progression. You can read through all questions and answers on my blog: https://ms-perspektive.com/103-majid Have you ever wondered how epigenetic mechanisms influence multiple …
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#102: MS and domestic violence and abuse (DVA). Raising awareness, offering support, creating change with Sue Britt
1:05:25
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1:05:25MS patients especially women are at higher risk of ewxperiencing domestic violence and abuse. Awareness is key followed to create change. You can read through the questions and answers on my blog: https://ms-perspektive.com/102-dva Domestic violence and abuse (DVA) is a silent crisis affecting millions worldwide – but what happens when a chronic il…
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#101: Shared Decision Making and AI: Making the best decisions for MS together with Dr. Sven Jungmann
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47:25How AI can improve shared decision making (SDM) for multiple sclerosis patients on their journey with Dr. Sven Jungmann. You can read the full interview on my blog: https://ms-perspektive.com/101-sdm-ai In today’s rapidly evolving healthcare landscape, the intersection of medicine and technology is transforming the way we approach patient care, tre…
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#100: The Future of MS Care. Can Digital Twins Predict Your Disease Progression? With Prof. Tjalf Ziemssen
51:34
51:34
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51:34Find out how digital twin technology based on AI and big data is transforming the treatment of Multiple Sclerosis by enabling personalized treatment, predicting disease progression, and optimizing patient management. You can read a shortened summary of the interview on my blog: https://ms-perspektive.com/100-digital-twin The concept of a digital tw…
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#099: Insights from Groundbreaking MS Studies on Risks, Trends, and Equity an ECTRIMS Special
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25:52Learn more about epidemiology of MS including risks, trends and where clincial trials need to be revised for better equity. You can read the full article on my blog: https://ms-perspektive.com/99-epidemiology In this overview of papers from ECTRIMS 2024, I have selected studies that look at development and frequency and influence progression. You w…
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#098: New Research for Managing Primary Progressive Multiple Sclerosis (PPMS) an ECTRIMS Special
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31:22Latest treatments and research presented at ECTRIMS 2024 for managing primary progressive MS (PPMS). including innovative therapies like CAR T-cell therapy. You can read the full article on my blog: https://ms-perspektive.com/098-ppms-ectrims Primary Progressive Multiple Sclerosis (PPMS) presents unique challenges, as it often worsens without relap…
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#097: Late-Onset Multiple Sclerosis (LOMS): Symptoms, treatment options, and prognosis with Dr. Abdulkadir Tunc
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28:55Discover expert insights on Late-Onset Multiple Sclerosis (LOMS) from Assoc. Prof. Dr. Abdulkadir Tunç, a leading neurologist dedicated to advancing MS care and improving lives. You can read the interview on my blog: https://ms-perspektive.com/97-loms I am pleased to welcome Associate Professor Dr. Abdulkadir Tunç in this interview, a neurologist w…
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#096: From Fatigue to Focus. The Power of Sleep and Exercise in Managing MS an ECTRIMS Special
27:16
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27:16Improving sleep quality is vital for managing MS, reducing fatigue, enhancing cognitive function, and boosting overall well-being. You can find the complete summary on my blog: https://ms-perspektive.com/096-sleep Sleep is one of the most critical yet often underestimated aspects of managing MS. For many of us living with MS, poor sleep can worsen …
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#095: Hidden Challenges – Exploring Smoldering MS with Prof. Gavin Giovannoni
1:03:29
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1:03:29Prof. Gavin Giovannoni explores the complexities of multiple sclerosis, the concept of "smoldering MS," and future treatment strategies. You can find the full transcript of the interview to read on my blog: https://ms-perspektive.com/95-smoldering-ms Welcome to today’s interview, in which I am accompanied by one of the most influential personalitie…
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#094: Effects of the Mediterranean diet on MS an ECTRIMS Special
27:55
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27:55The mediterranean diet is healthy, tasty and contributes to a better quality of life when having MS from fatigue to brain health to mood. You can read the full article on my blog: https://ms-perspektive.com/94-mediterranean-diet This time, I have compiled papers on the Mediterranean diet that were presented at ECTRIMS 2024. The diet, which is high …
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Explore aging's impact on MS, highlighting research on cognition, inflammation, brain changes, and treatments. You can read the text version on my blog: https://ms-perspektive.com/093-aging-with-ms Living with multiple sclerosis in old age presents a unique challenge in understanding how the disease interacts with the natural aging process. This sp…
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#092: Empowering the MS Community: Advocacy, Diversity, and Inclusion with patient expert Roxy Murray
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49:15Roxy wants to empower underrepresented groups such as people of color or the LGBTQIA+ community to increase awareness of diversity in MS. You can read the short version of the interview here: https://ms-perspektive.com//92-roxy-murray In this episode, I am joined by Roxy Murray, also known as the “Multiple Sclerosis Fashionista”. Roxy is a passiona…
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#091: New treatment strategies in MS an ECTRIMS Special
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27:06Learn more about new treatment for MS, focusing on innovative therapies like engineered vesicles, CAR-T, CD40L and high-dose vitamin D. To read the full article visit my blog article: https://ms-perspektive.com/091-new-treatment-strategies This time, I will present some studies on new treatment options for MS that show promising results and were pr…
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#090: Empowering the black MS community – advocacy, awareness, and support with Natalie Diana Busari
1:12:56
1:12:56
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1:12:56Natalie focuses primarily on advocacy, awareness and support in her work to empower women and girls from the black MS community. You can read the whole interview on my blog: https://ms-perspektive.com/90-natalie-diana-busari Living with multiple sclerosis can be an isolating experience, but what happens when you feel even more invisible because of …
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#089: Understanding the Hidden Challenges of MS: Sexual, Bladder, and Bowel Health an ECTRIMS Special
22:40
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22:40Learn more about the impact of sexual, bladder, and bowel issues in MS and the importance of tailored care to improve quality of life. You can read the corresponding article here: https://ms-perspektive.com/89-sexual-bladder-bowel Living with MS means coping with a complex mix of symptoms that can affect both physical and emotional well-being. Thes…
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#088: Immune Tolerance and MS. How the RED4MS Study Could Change MS Treatment with Dr. Andreas Lutterotti
23:26
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23:26Andreas Lutterotti explains the mode of action, the concept of the early clinical trial RED4MS, and what a success could mean for patients. You can read through all questions and answers on my blog: https://ms-perspektive.com/88-red4ms Multiple sclerosis is one of the absolute success stories in terms of disease-modifying therapy. Nevertheless, the…
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#087: Understanding and managing Neuromyelitis Optica (NMOSD). Latest Advances in treatment with Dr. Luis Alfonso Zarco
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32:06
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32:06Neuromyelitis Optica Spectrum Disorder (NMOSD) need to be diagnosed and treated fast with highly effective therapies for a good prognosis. You can read the transcript of the interview here: https://ms-perspektive.com/87-luis-alfonso-zarco Living with neuromyelitis optica spectrum disorder (NMOSD) can be challenging. But the more you understand abou…
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#086: Navigating Menopause with MS – Key insights on symptom progression, aging, and personalized care (ECTRIMS Special)
22:42
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22:42Find out how the menopause affects MS. What new research reveals about progression, symptom management, biological aging and quality of life. You can read the full article here: https://ms-perspektive.com/86-ectrims-menopause If you’re living with MS and approaching menopause, you might wonder how this life stage could impact your MS journey. Menop…
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#085: ECTRIMS Special on innovative MS rehabilitation for better quality of life
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17:58
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17:58New approaches to MS Rehabilitation: From Telerehab to Ocean Sailing and individualized trainings plans for improved wellness. You can read the complete article here: https://ms-perspektive.com/085-ectrims-rehab Rehabilitation for multiple sclerosis (MS) is rapidly evolving, with exciting new approaches tailored to the unique needs of people with p…
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084: Vascular dysfunction and Multiple Sclerosis. How Your vessels Could Shape Your MS Journey with Dr. Jonathan Pansieri
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48:01Dr. Jonathan Pansieri explains how vascular dysfunction could worsen multiple sclerosis and become a target for future treatment approaches. You can read all questions and answers here: https://ms-perspektive.com/84-Vascular-dysfunction When it comes to multiple sclerosis (MS), you probably know that the immune system plays a role in attacking the …
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#083: ECTRIMS Special on De-escalation and discontinuation of therapies for MS – What does it mean and how can it work?
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33:08When can we consider de-escalation or even discontinuation of a high-efficient immunotherapy for MS without risking a disease worsening? You can read the full article on my blog: https://ms-perspektive.com/83-deescalation Hello and welcome to another summary of ECTRIMS 2024, this time on the topic of de-escalation and discontinuation of therapy. Th…
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#082: Living with neuromyelitis optica (NMO) in Denmark with Leda Bresnov
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39:30Leda Bresnov shares her diagnosis, coping strategies, and insights on living with neuromyelitis optica (NMO) in Denmark. You can read all questions and answers on my blog: https://ms-perspektive.com/82-leda Meet NMO patient Leda Bresnov, a strong and inspiring woman who is originally from Brazil and has been living in Denmark since 1991. Leda, a wi…
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#081: Navigating Treatment and Support for MS, NMOSD, and MOGAD in Montenegro with Dr. Sanja Gluscevic
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45:29Dr. Sanja V. Gluscevic, a neurologist from Montenegro, specializes in MS, NMOSD and MOGAD, and is dedicated to patient care and advocacy. You can read all questions and answers on my blog: https://ms-perspektive.com/81-sanja-gluscevic Today I would like to introduce you to Dr. Sanja V. Gluscevic, a renowned neurologist who specializes in multiple s…
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#080: B-Cell Depletion – Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) for active RRMS and SPMS, and early PPMS
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30:40Learn more about b-cell depletion, including Ocrevus, Kesimpta, Bonspri, Mabthera, Rituxan, and Briumvi, used for active RRMS, SPMS, and PPMS. You can read the full article on my blog: https://ms-perspektive.com/080-b-cell-depletion B-cell depletion therapies such as ocrelizumab (Ocrevus), ofatumumab (Kesimpta, Bonspri), rituximab (Mabthera, Rituxa…
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Special: ECTRIMS 2024 - Personalized MS treatments, genetic risk factors and the benefits of early, effective therapies for women and children
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19:51Personalized treatments, genetic risk factors, gender differences and the advantages of early, highly effective therapies. You can read the full article here: https://ms-perspektive.com/ectrims-2024-ww1 This year, ECTRIMS 2024 in Copenhagen, Denmark, will once again bring together leading experts in multiple sclerosis (MS) from around the world. Th…
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#079: How your gut microbiome could influence Multiple Sclerosis with Prof. Dr. Natalia Szejko
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44:52Dr. Natalia Szejko reveals latest research on gut microbiome for MS, MOGAD, and NMOSD, offering new hope for managing these conditions. You can read all the questions and answers in the corresponding blog article: https://ms-perspektive.com/079-natalia-szejko Welcome to today’s episode. Whether you have MS, MOGAD (myelin oligodendrocyte glycoprotei…
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#078: Cladribine (Mavenclad, Leustat, Litak) for highly active MS
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24:37Cladribine (Mavenclad, Leustat, Litak) is an induction therapy the supresses the immun system and is used for highly active MS. You can read the complete article at: https://ms-perspektive.com/078-cladribine Cladribine (Mavenclad, Leustat, Litak) is an immunotherapy from the field of immunosuppressants that is used to treat highly active multiple s…
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#077: Tailoring MS Treatment. The Impact of Mood Disorders on Patient Care with Dr. Emine Rabia Koç
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37:47Explore Dr. Emine Rabia Koç's insights on blending emotional and physical health for a holistic approach to MS treatment. You can find the written version as blog article here: https://ms-perspektive.com/77-emine-rabia-koc Today I speak with Dr. Emine Rabia Koç about the important intersection between mood disorders and patient care in multiple scl…
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#076: Alemtuzumab (Lemtrada, Campath) for highly active relapsing MS
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27:06Alemtuzumab (Lemtrada, Campath) is a DMT to treat highly active MS and has long-lasting effects and potential severe side effects. You can read the full article on my blog: https://ms-perspektive.com/076-alemtuzumab This time the focus is on alemtuzumab (Lemtrada, Campath). It is one of the highly effective immunotherapies and, in a subgroup of pat…
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#075: Decoding the EDSS Score. How It's Measured and What It Means
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7:41The EDSS score helps neurologists to measure the progression of MS as it measures limitations in functional systems. You can find the full article at: https://ms-perspektive.com/75-edss The Expanded Disability Status Scale (EDSS) is a key tool used by neurologists to measure how Multiple Sclerosis (MS) affects your body. Understanding the EDSS can …
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#074: S1P Modulators - Fingolimod (Gilenya), Ozanimod (Zeposia), Ponesimod (Ponvory), Siponimod (Mayzent) for active RRMS & SPMS
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31:10Learn more about the S1P Modulators, known by the brand names Gilenya, Zeposia, Ponvory, Mayzent and their usage against active RRMS & SPMS. You can find the complete text to read on my blog: https://ms-perspektive.com/074-s1p-modulators Today it’s all about the group of S1P modulators, which includes fingolimod (Gilenya), ozanimod (Zeposia), pones…
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#073: “Haciendo Lo Invisible, Visible”. Crys's Journey of Invisible Battles and Visible Triumphs as Latina with MS in the US
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52:57Crys was diagnosed with MS at the age of 11. She talks about her experiences as a first-generation Latina and her mission on social media. You can find all questions and answers on my blog: https://ms-perspektive.com/073-crys Today I’m talking to Crys about her life with multiple sclerosis as a first generation Latina. Crys was diagnosed at age ele…
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#072: Natalizumab (Tysabri, Tyruko) for active relapsing remitting MS
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22:13Natalizumab (Tysabri, Tyruko) is approved as disease-modifying therapy (DMT) for active RRMS with a rapidly evolving severe MS. You can read the complete article on my blog: https://ms-perspektive.com/072-natalizumab Today we are talking about natalizumab, which is known under the trade names Tysabri and Tyruko. The immunotherapy is used for active…
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#071: Insights into MS treatment in Colombia with neurologist Dr. Adriana Casallas Vanegas
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41:39Dr. Adriana Casallas V. provides insights into the treatment and care of MS patients in Colombia including improvements and challenges. You can find all questions and answers to read through on my blog: https://ms-perspektive.com/71-adriana-casallas MS has long been known as an orphan disease in Colombia, but the increasing number of newly diagnose…
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#070: Teriflunomide (Aubagio) for relapsing remitting MS
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19:06Teriflunomide (Aubagio) is approved as disease-modifying therapy for mild to moderate RRMS from 10 years of age. You can find the full article to read on my blog: https://ms-perspektive.com/70-teriflunomide This time it’s about teriflunomide, which is known under the trade name Aubagio. The immunotherapy is used for mild to moderate courses of rela…
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#069: Beyond Boundaries. Advocacy, Research, and Recognition in MS with Rachel Horne
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1:00:18MS patient and advocate Rachel Horne sponsors a prize for women in MS research and campaigns for more diversity in clinical trials. You can read all questions and answers on my blog: https://ms-perspektive.com/69-rachel-horne Rachel Horne was diagnosed with multiple sclerosis at the age of 43, when she felt fit and healthy. She established the Rach…
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#068: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, …) for CIS, RRMS & SPMS
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21:52Interferon-beta (Avonex, Betaferon, Extavia, Plegrid,y Rebif) is used as a disease-modifying therapy for mild to moderate RRMS, CIS & SPMS. You can find the full article to read on my blog: https://ms-perspektive.com/068-interferons In today’s article, I present interferon-beta, which include several active substances and are known as Avonex, Betaf…
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#067: MS Speech Therapy Insights. Enhancing Communication and Swallowing
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16:19Discover how speech therapists can address often overlooked MS-related swallowing and communication disorders for timely intervention. You can find the written version to read on my blog: https://ms-perspektive.com/67-speech-therapy Swallowing and speech disorders usually play a subordinate role in the perception of patients. However, problems with…
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#066: Pioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara Samadzadeh
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49:08Dr. Sara Samadzadeh contributes to research in the field of NMOSD and MS by creating networks between young researchers worldwide. You can find all questions and answers as well as all links on the blog article: https://ms-perspektive.com/066-sara-samadzadeh Multiple sclerosis and NMOSD have made tremendous advances in treatment due to research con…
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#065: Glatiramer Acetate (Copaxone, Brabio) for relapsing remitting multiple sclerosis
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18:31Glatiramer Acetate, brand names Copaxone and Brabio, belongs to the oldest immunotherapies for relapsing remitting multiple sclerosis. You can find the written version of this episode on my blog: https://ms-perspektive.com/065-glatiramer-acetate This time I am presenting glatiramer acetate, which is known as Copaxone, Brabio or other tradenames and…
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#064: Navigating MS Treatment in Turkey with Neurologist and Associate Professor Meral Seferoglu
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28:55Dr. Meral Seferoglu gives an insight into the treatment of MS in Turkey and how she uses her expertise to support patients. You can read all questions and answers on my blog: https://ms-perspektive.com/64-meral-seferoglu This time I have Dr. Meral Seferoglu as an interview guest on the show and we talk about MS treatment in Turkey. It’s always inte…
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#063: Finding Joy Again. Navigating MS-Related Sexual Dysfunction
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17:11Sexual dysfunction is common in multiple sclerosis. However, there are many ways to overcome them and enjoy intimacy again. You can find the written version of the episode on my blog: https://ms-perspektive.com/63-sexual-dysfunction Sex can be one of the best things in life and sexual dysfunction can therefore cause a lot of frustration. In this ar…
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