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In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her story, from being misdiagnosed with ADHD and ODD as a child to finally receiving the correct diagnosis at 22. She discusses her struggles with maintaining jobs, her journey through various treatments, and the significant lifestyle changes she implemented after her diagnosis. Tara's advocacy work, including her role as a patient ambassador for WSG and her social media presence, underscores her commitment to raising awareness about narcolepsy. The episode also delves into the challenges and triumphs of living with a chronic sleep disorder, offering a poignant look at resilience and self-advocacy.
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***If you find these symptoms relatable, please seek medical advice.***
Chapters
1. S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy (00:00:00)
2. Early childhood signs of narcolepsy (00:04:00)
3. The turning point: falling asleep behind the wheel (00:12:00)
4. Life as an EMT and firefighter (00:15:00)
5. How Lumryz transformed her sleep (00:23:00)
6. Becoming an advocate and patient ambassador (00:33:00)
7. Would I press the red button?” — Tara’s reflection (00:39:00)
40 episodes
