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Lucas: Epidermolysis Bullosa Simplex

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Manage episode 484108425 series 3321973
Content provided by Scott Whitney. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Scott Whitney or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

Our first episode with Matt Witts interviewing one of our All 4 Inclusion members.

Lucas is a keen photographer and has a rare condition called Epidermolysis Bullosa Simplex, also known as E.B Simplex.

In this conversation, Lucas shares his personal experiences living with epidermolysis bullosa simplex, a rare genetic skin condition that causes severe blistering.

He discusses the daily challenges he faces, including pain management, mobility issues, and the emotional impact of living with a disability.

The conversation also covers practical advice for others with similar conditions, emphasizing the importance of understanding and empathy.

#Epidermolysis Bullosa

#disability awareness

#chronic pain

#personal experiences

#skin conditions

#empathy

#healthcare

#living with disabilities

#advice for patients

#rare diseases

  continue reading

49 episodes

Artwork
iconShare
 
Manage episode 484108425 series 3321973
Content provided by Scott Whitney. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Scott Whitney or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://staging.podcastplayer.com/legal.

Our first episode with Matt Witts interviewing one of our All 4 Inclusion members.

Lucas is a keen photographer and has a rare condition called Epidermolysis Bullosa Simplex, also known as E.B Simplex.

In this conversation, Lucas shares his personal experiences living with epidermolysis bullosa simplex, a rare genetic skin condition that causes severe blistering.

He discusses the daily challenges he faces, including pain management, mobility issues, and the emotional impact of living with a disability.

The conversation also covers practical advice for others with similar conditions, emphasizing the importance of understanding and empathy.

#Epidermolysis Bullosa

#disability awareness

#chronic pain

#personal experiences

#skin conditions

#empathy

#healthcare

#living with disabilities

#advice for patients

#rare diseases

  continue reading

49 episodes

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