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Fiona is mama to Casey, a 2 year old living with Prader-Willi syndrome. She shared with me her birth story and the challenges that arose from some common PWS characteristics. We also talked diagnosis, not looking too far ahead, and the beautiful lessons that can be learned from being the mother to a child born with a genetic condition. I also share a recently written piece called, “This Is Not Political.”

https://www.annefricke.com/courses

https://medium.com/@annefricke/this-is-not-political-731951d8994f

https://pwsunited.podbean.com

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91 episodes